Hi there if anyone here has gotten any answers my daughter is 15 years old has been through an endoscopy colonoscopy endless blood tests And scans And we are getting absolutely nowhere the doctors are stumped the most we're getting is she has some sort of inflammation most likely being caused by a form of colitis
She is also experiencing symptoms of dysautonomia (POTS) causing her to experience constant body aches, pains and exhaustion
She was taking pentasa at 3,000 mg a day which seem to alleviate the bloody diarrhea And abdominal pain that initially alerted us to the problem but her levels are still in the 3000s and refuse to drop
These problems are causing her to live a life of stress and anxiety that is negatively impacting her quality of life as parents were naturally wanting to do anything we can to help if anyone has any suggestions they would be greatly appreciated 🙏