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COPD Friends

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zephyr valve’s

I have severe emphysema, I am scheduled to get zephyr valves put in on the15th of October 2024. Has anyone else had this procedure, and if so what was the...

I have severe emphysema, I am scheduled to get zephyr valves put in on the15th o...

•1 month ago

Reaching out.

Hello. This may be familiar to others, I commiserate, and appreciate any tips/insights. I am struggling with moderate/severe COPD with asthma overlap, which...

Hello. This may be familiar to others, I commiserate, and appreciate any tips/i...

•2 years ago

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How to clear your lungs - and save $25!

LOTS being written right now about what is being wrongly called a 'breakthrough' aid to COPD patients and their breathing. Sorry to say that in my opinion it...

LOTS being written right now about what is being wrongly called a 'breakthrough'...

•2 years ago

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Try a new way to manage your COPD.

Hi All, this could be really helpful to some of you. I posted a few months ago about Filter...

Hi All, this could be really helpful to some of you. I posted a few months ago ...

•2 years ago

Noshers time

Only just been diagnosed, love to chat to someone

Only just been diagnosed, love to chat to someone

•2 years ago

COPD

Good morning, I have been tested for COPD since 2017. I am taking BREO Ellipta & Spiriva in the mornings, also Salbutamol HFA 100UG when needed. Now I have had...

Good morning, I have been tested for COPD since 2017. I am taking BREO Ellipta &...

•3 years ago

Asthma/COPD... Unsure but need diagnosis? Anyone else's results not confirmed please?

Hi All, Firstly I'd just like to say how great this group is and how we all support each other!! Secondly, I'd like your opinion/thoughts please if......

Hi All, Firstly I'd just like to say how great this group is and how we all sup...

•4 years ago

ANXIETY SUFFERERS - COPD - WHICH INHALER?

Hi All, I suffer from anxiety issues and formoteral (Fostair, Symbicort) seems to make this worse, if you suffer from anxiety, which inhaler do you take for...

Hi All, I suffer from anxiety issues and formoteral (Fostair, Symbicort) seems t...

•4 years ago

Which steroid is best if you have anxiety?!

Hi All, I've been on the search for a decent steroid inhaler with minimal side effects and mainly not to mess with anxiety Etc! Latest one I've tried is...

Hi All, I've been on the search for a decent steroid inhaler with minimal side e...

•4 years ago

Symbicort 100/6 side effects or?

Hi All, Would just like your input/advice if possible. We all know that when taking steroid inhalers they all have side effects Andrew told to stop if get too...

Hi All, Would just like your input/advice if possible. We all know that when ta...

•4 years ago

Symbicort but 100/6 for COPD?

Hi All, been prescribed Symbicort as other steroids didn't agree with me... Been given the Symbicort Turbohaler at the dose of 100/6... However, I've looked at...

Hi All, been prescribed Symbicort as other steroids didn't agree with me... Been...

•4 years ago

Tight chest

Hiya. I just wanted to ask you if you start waking in the night hot and chest hurting and back is it a infection? I also noticed I getting breathless walking...

Hiya. I just wanted to ask you if you start waking in the night hot and chest hu...

•4 years ago

Am I progressing.

Hello..I am concerned that I am progressing with copd as I was fine in the mornings but I noticed I am not anymore. I seem to have a real heavy feeling inside...

Hello..I am concerned that I am progressing with copd as I was fine in the morni...

•4 years ago

Covid Jab? Confirmation?

Hi All, I've received a txt from NHS-No Reply (same place where all my texts from GP have come through) asking me to book for Covid jab, I have selected a...

Hi All, I've received a txt from NHS-No Reply (same place where all my texts fro...

•4 years ago

COPD.... Pulmicort/Symbicort for out of breath only?

Hi All, I think after trying a few different inhalers, I may try pulmicort or symbicort as this doesn't seem to cause people issues? If possible I'm fine with...

Hi All, I think after trying a few different inhalers, I may try pulmicort or sy...

•4 years ago

COPD... Symbicort or budesonide??

Hi All, I tried Spiriva and had fast heart beat, so had to come off it. I've tried a few steroids and not worked too well raised my anxiety etc or just felt...

Hi All, I tried Spiriva and had fast heart beat, so had to come off it. I've tr...

•4 years ago

Spiriva alternatives please... Something that doesn't affect heart rate as much!

Hi All, Can I please ask what you tried after Spiriva please?? And what's been successful? have been suffering from high heart rate and makes me so uneasy,...

Hi All, Can I please ask what you tried after Spiriva please?? And what's been s...

•4 years ago

SPIRIVA HANDIHALER 1St day... Increased heart rate when walking only... Is this normal?

Hi All, Did you have a fast heart rate for the first day? I've took my Spiriva and seemed ok, but as I've walked around heart rate has increased to 100? Is...

Hi All, Did you have a fast heart rate for the first day? I've took my Spiriva ...

•4 years ago

air phsyio

has any one on here tried the new air physio you blow in to it slowly after 5 to 10 minets it brings lots phlem up out your lungs that you cant cough up this...

has any one on here tried the new air physio you blow in to it slowly after 5 t...

•4 years ago

New here

Hi, I’m new here. I was diagnosed with COPD a decade ago. Also, had a stroke 3 years ago. I can still walk, talk and drive. I’m open to learning how to improve...

Hi, I’m new here. I was diagnosed with COPD a decade ago. Also, had a stroke 3 y...

•4 years ago

Oxygen retainer

I was initially diagnosed with COPD five years ago and have both emphysema and chronic bronchitis in addition to asthma, and both central and obstructive sleep...

I was initially diagnosed with COPD five years ago and have both emphysema and c...

•4 years ago

Have questions? Join us for a free online support group meeting March 31

During these difficult times, the team at Right2Breathe want you to know that you are not alone. It can be difficult enough during "normal" times in our...

During these difficult times, the team at Right2Breathe want you to know that yo...

Partner•5 years ago

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Ugh copd and now sleep apnea

Never smoked but somehow I have copd and now I was tested for sleep apnea and I have it I got my machine today and I’m scared to use it does it make oxygen is...

Never smoked but somehow I have copd and now I was tested for sleep apnea and I ...

•5 years ago

Right2Breathe Virtual Support Group- Anyone want to join us this Tuesday?

Hello all! Right2Breathe is in the early development of an online patient support group. We are "meeting" the first Tuesday of every month at 4:30 PM New York...

Hello all! Right2Breathe is in the early development of an online patient suppo...

Partner•5 years ago

Throat problems

First let me clarify that I am faithful to rinse and gargle after all treatments. I started to have throat problems after I had been taking the Flovent inhaler...

First let me clarify that I am faithful to rinse and gargle after all treatments...

•5 years ago

Nebulized meds - a little left in the cup after treatment

I recently switched from inhalers to nebulized meds. I try to go extra long on my treatments to make sure I get it all, but it seems there is a little left in...

I recently switched from inhalers to nebulized meds. I try to go extra long on m...

•5 years ago

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COPD / stem cell

I HAVE COPD for about the last year 1 1/2 and have looked into stem cell and am wondering if anyone out there has any thing to + or - to say about it ?....

I HAVE COPD for about the last year 1 1/2 and have looked into stem cell and am...

•5 years ago

GOOD NEWS RE MY EMPHYSEMA

I had my yearly test to see how my emphysema is doing. My last exam was in May of 2018. I was pleasantly surprised. The progress of my "Big E" has been stopped...

I had my yearly test to see how my emphysema is doing. My last exam was in May o...

•5 years ago

bronchodilater

I got given by the dr. some vials Duolin to put in my Nebuliser I just looked on google and it says that duolin can cause glaucoma Has any body more news...

I got given by the dr. some vials Duolin to put in my Nebuliser I just looked...

•5 years ago

BODE INDEX CALCULATOR

Predicting mortality. There are many other factors in predicting mortality with COPD. This test is not perfect. Someone with a very high score could live...

Predicting mortality. There are many other factors in predicting mortality wi...

•5 years ago

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