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B12 Injections
Hello, I have been feeling quite unwell with intense fatigue and a myriad of other issues since January 2023. I have sibo and gastritis. My b12 and folate were checked and my folate came back at 2.7 which is low. My b12 however looked ok at around 500. I began to supplement with folinic acid (800mcg
Hello, I have been feeling quite unwell with intense fatigue and a myriad of other issues since January 2023. I have sibo and gastritis. My b12 and folate were checked and my folate came back at 2.7 which is low. My b12 however looked ok at around 500. I began to supplement with folinic acid (800mcg
Gremmygrem
in
Pernicious Anaemia Society
27 days ago
Confused about folate
Having been doing quite well I have taken quite a sudden turn of dizziness and cognitive problems over the last 3 days. I am receiving 3 times a week B12 injections along with 5mg folic acid. I have also been taking Thorne Basic B complex. Levothyroxine 100/112.5 alternating. What are the issues and
Having been doing quite well I have taken quite a sudden turn of dizziness and cognitive problems over the last 3 days. I am receiving 3 times a week B12 injections along with 5mg folic acid. I have also been taking Thorne Basic B complex. Levothyroxine 100/112.5 alternating. What are the issues and
GW1000
in
Thyroid UK
5 months ago
Nervous tummy
I'm really getting very low in mood. My tummy heaves constantly. I have been quite proud of myself for about four months because I came off Sertraline. I put this down to my EOD inj of B12. It lifted me so much after nearly 50years on and off, mainly on, antidepressants. I have been worried about my
I'm really getting very low in mood. My tummy heaves constantly. I have been quite proud of myself for about four months because I came off Sertraline. I put this down to my EOD inj of B12. It lifted me so much after nearly 50years on and off, mainly on, antidepressants. I have been worried about my
3rdNettydoon
in
Pernicious Anaemia Society
10 months ago
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B Complex advice please
Hello lovely helpful people, I have a few questions if someone knowledgeable would be so kind to answer please? 1. I'm going to start SI hydroxycobalamin and understand I need a B complex as well as one of the forms of folate supplement. I am opting for folinic acid drops that I can titrate up and
Hello lovely helpful people, I have a few questions if someone knowledgeable would be so kind to answer please? 1. I'm going to start SI hydroxycobalamin and understand I need a B complex as well as one of the forms of folate supplement. I am opting for folinic acid drops that I can titrate up and
Bertiepuss
in
Pernicious Anaemia Society
10 months ago
Supplement schedule query - which should be taken apart from others?
Hello! I've been SI since late 2017, but have changed my co-factor (and other) supplement regime over time - including recently re-introducing folinic acid, having become folate deficient. I've always had low ferritin and months ago started Simply Heme iron supplements, which are supposed to be easier
Hello! I've been SI since late 2017, but have changed my co-factor (and other) supplement regime over time - including recently re-introducing folinic acid, having become folate deficient. I've always had low ferritin and months ago started Simply Heme iron supplements, which are supposed to be easier
ktwing
in
Pernicious Anaemia Society
1 year ago
Best way to address new folate deficiency?
Hello, I'm looking for some advice on folate levels. I've just got back a set of test results from Thriva, which were generally okay, except that I am now folate deficient (which I've never been before to my knowledge) (result was 6 nmol/L). The reason is obvious to me now, as I made a silly error
Hello, I'm looking for some advice on folate levels. I've just got back a set of test results from Thriva, which were generally okay, except that I am now folate deficient (which I've never been before to my knowledge) (result was 6 nmol/L). The reason is obvious to me now, as I made a silly error
ktwing
in
Pernicious Anaemia Society
1 year ago
B vitamin complex
hi, I just need to know if it’s ok for me to take my B vitamin complex an hour after T4/T3 with my breakfast. The reason I ask is on the box it states folate - as calcium folinate. I’m now worried if I should leave 4 hours after levo because it mentions calcium? Any help will be appreciated
hi, I just need to know if it’s ok for me to take my B vitamin complex an hour after T4/T3 with my breakfast. The reason I ask is on the box it states folate - as calcium folinate. I’m now worried if I should leave 4 hours after levo because it mentions calcium? Any help will be appreciated
Essexlil
in
Thyroid UK
1 year ago
folate (as calcium folinate)
hi, I take my T4/T3 at least an hour before my breakfast. I take my B12 supplement and Pink Tribe liposomal vitamin B complex liquid just after breakfast. I’ve been reading the ingredients and am worried in case I should be leaving 4 hours for the vitamin B complex due to the folate mentioning calcium
hi, I take my T4/T3 at least an hour before my breakfast. I take my B12 supplement and Pink Tribe liposomal vitamin B complex liquid just after breakfast. I’ve been reading the ingredients and am worried in case I should be leaving 4 hours for the vitamin B complex due to the folate mentioning calcium
Essexlil
in
Thyroid UK
1 year ago
B12 by 💉, . . . & synergistic nutrients to consider ! 😑
Hello ! 😊 The first step on the B12 💉 now taken - although seeing improvements, with a even twice-a-week frequency may take . . . weeks or months . . . in the case of a v long term medical condition ? So far, not feeling too different either way - & in all, the 1000ug was pretty much a cinch, n⛔
Hello ! 😊 The first step on the B12 💉 now taken - although seeing improvements, with a even twice-a-week frequency may take . . . weeks or months . . . in the case of a v long term medical condition ? So far, not feeling too different either way - & in all, the 1000ug was pretty much a cinch, n⛔
Sid_Arthur
in
Pernicious Anaemia Society
1 year ago
Struggling with CoFactors
Hi everyone, I have a dilemma. I’ve had 2 B12 jabs in the last 6 months. I tried them because I have been feeling awful and suspected that it may be a deficiency. I suffered from folate deficiency a while back which was treated with folic acid by GP but I felt terrible on it and had to stop. Luckily
Hi everyone, I have a dilemma. I’ve had 2 B12 jabs in the last 6 months. I tried them because I have been feeling awful and suspected that it may be a deficiency. I suffered from folate deficiency a while back which was treated with folic acid by GP but I felt terrible on it and had to stop. Luckily
browny52
in
Pernicious Anaemia Society
2 years ago
To much folate to bad effect??
Short version: TOO MUCH FOLATE. Taking 5mg folate a day as advised by another group has been making me ill. Has this happened to anyone else? Long version: I have B12D with neuro symptoms. Whether this is functional due to my coeliac disease or a missed PA diagnosis I don’t know. B12 injections
Short version: TOO MUCH FOLATE. Taking 5mg folate a day as advised by another group has been making me ill. Has this happened to anyone else? Long version: I have B12D with neuro symptoms. Whether this is functional due to my coeliac disease or a missed PA diagnosis I don’t know. B12 injections
MrsTuft
in
Pernicious Anaemia Society
2 years ago
Friend with rectal cancer. Did radiation/ostomy
They are now wanting him to do heavy hitting chemo for 6 months, Irinotecan, Fluorouracil and Calcium
Leucovorin
. I am in the Advanced Prostate Group and wondering what is the best place to get some information on this particular situation. Is it this group?
They are now wanting him to do heavy hitting chemo for 6 months, Irinotecan, Fluorouracil and Calcium
Leucovorin
. I am in the Advanced Prostate Group and wondering what is the best place to get some information on this particular situation. Is it this group?
Bluebird11
in
Living with a Stoma
4 years ago
Writing for a friend. He was diagnosed with moderately differentiated adenocarcinoma in the prostecic bed that is close to the rectal tumor
They said they want to hit it hard with Irinotecan, Flurouracil and Calcium
Leucovorin
. I see this used for bladder cancer. Can anyone give me some direction what to research and make any sense of this. His wife died, a very good friend 3 years ago.
They said they want to hit it hard with Irinotecan, Flurouracil and Calcium
Leucovorin
. I see this used for bladder cancer. Can anyone give me some direction what to research and make any sense of this. His wife died, a very good friend 3 years ago.
Bluebird11
in
Advanced Prostate Cancer
4 years ago
A Hidden Cause of Resistant Depression
Folinic acid is an advanced folate in the folate metabolism cycle and is used in mitochondrial respiration, making DNA, and making methylfolate, which is in turn used to make neurotransmitters and to help recycle folate and methyl groups. Folinic acid rather than methylfolate is preferred in these patients
Folinic acid is an advanced folate in the folate metabolism cycle and is used in mitochondrial respiration, making DNA, and making methylfolate, which is in turn used to make neurotransmitters and to help recycle folate and methyl groups. Folinic acid rather than methylfolate is preferred in these patients
Kia17
in
Cure Parkinson's
5 years ago
Agoraphobia after starting injections
I started cyanocobalamin injections on August 4 2018, almost right away I developed agoraphobia. I am doing the B12 protocol, daily injections, folic acid (5mg), potassium, magnesium glycinate, Bcomplex as well as D3, K2 and zinc. I have not been able to leave my house for nearly 1.5 years. I was in
I started cyanocobalamin injections on August 4 2018, almost right away I developed agoraphobia. I am doing the B12 protocol, daily injections, folic acid (5mg), potassium, magnesium glycinate, Bcomplex as well as D3, K2 and zinc. I have not been able to leave my house for nearly 1.5 years. I was in
Hidden
in
Pernicious Anaemia Society
5 years ago
PK protocol
Patricia Kane protocol Share The Patricia Kane protocol (PK protocol) is an experimental treatment for neurological disease involving intravenous infusion of phospholipids and methylation factors, along with dietary changes and supplements. It is based on the theory that in diseases Kane classes as
Patricia Kane protocol Share The Patricia Kane protocol (PK protocol) is an experimental treatment for neurological disease involving intravenous infusion of phospholipids and methylation factors, along with dietary changes and supplements. It is based on the theory that in diseases Kane classes as
akgirlsrock
in
Cure Parkinson's
5 years ago
Hydroxocobalamin injection frequency, and are patches a recommended/viable addition to my needs? Your recommendations, sources, experiences?
Hi all, I am B12 deficient (which was initially suspected in December 2018, following declining health), with prior 6 month history of worsening peripheral neuropathy, worsening exercise intolerance, syncope and frequent pre-syncope and long standing (at least until I started on B12 replacement in December
Hi all, I am B12 deficient (which was initially suspected in December 2018, following declining health), with prior 6 month history of worsening peripheral neuropathy, worsening exercise intolerance, syncope and frequent pre-syncope and long standing (at least until I started on B12 replacement in December
tomranson85
in
Pernicious Anaemia Society
5 years ago
Folinic acid?
What milligram of folinic acid should we be taking as a cofactor for B12? I have been taking a B complex pill but not sure if I should just be taking the folinic acid by itself or stick with the B complex.
What milligram of folinic acid should we be taking as a cofactor for B12? I have been taking a B complex pill but not sure if I should just be taking the folinic acid by itself or stick with the B complex.
shaylynn
in
Pernicious Anaemia Society
6 years ago
Folic acid vs. folinic acid
Hi all Was wondering if anyone with a chemistry bent could explain the difference between folic acid and folinic acid and whether folinic is better than folic for those of us with PA? I've just been to the doctor for my B12 injection and he said that not all of the folic acid is converted, whereas the
Hi all Was wondering if anyone with a chemistry bent could explain the difference between folic acid and folinic acid and whether folinic is better than folic for those of us with PA? I've just been to the doctor for my B12 injection and he said that not all of the folic acid is converted, whereas the
Suzibelle
in
Pernicious Anaemia Society
6 years ago
folinic acid
Hi just thought would start a post about this. Anyone take folinic acid? I've been struggling with tolerating both folic acid and methylfolate but definitely need a supplement of something. I am going to try out a lower dose of the folic first but just looking into other options. I don't know anything
Hi just thought would start a post about this. Anyone take folinic acid? I've been struggling with tolerating both folic acid and methylfolate but definitely need a supplement of something. I am going to try out a lower dose of the folic first but just looking into other options. I don't know anything
Littledancingtiger
in
Pernicious Anaemia Society
6 years ago
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