anyone any ideas??

I have severe pain all in my right back when my bladder is filling up and as it does it makes me "puffed out". I have a small cyst and all ct scans showed nothing else sinister. Sometimes I have trouble passing urine. Sometimes no problem. After eating on passing urine suddenly its like a pressure/pain all in my back and a squeezing in my chester sensation. I have had my gallbladder removed in April. I am told I have dumping syndrome now. When I eat I either pass out, or go very low whilst digesting and get a lot of pain in my liver riht back. I come round usually went I want to pee. I can pee all night and am so lethargic by morning. My nasal passages are dry, eyes, Ive dont want to eat because of pain, my eyes are dry. Ive noticed if I eat bread, fibre, drink coffee, I retain urine and can go all day, despite water and then pain is awful all through right back all in my back. If I eat rice puddings it takes ages to pee. I suffer from severe colon transit time and it feels as tho when I eat bread/fibre/cottage cheese/all my bowels soak up the liquid my water so I cant pee, unless I relax at night on the settee or pee all night. I suffer always with insomnia. I have had to come off antidepressants because I peed even less in the day, was breathing bad, and looked six months pregnant. In A & E noone was bothered as ecg fine etc. Stopping the anti depressants and I peed better. But now I have such pain worse in the evening depending on what I eat in the day. I did suffer from yellow fatty bulky stools, and the pain all through my body after passing was unbelievable..like someone had tipped acid all through me. Now my stools are brown/grey and very constipated. I tried another anti depressant. My stomach ballooned again and I got out of breath after passing a penny. I would get to a friends, sit down and suddenly soo tired..only to come round when I have water. The pattern is I eat and go very low whilst digesting it seems, then I start to get puffed out as urine takes ages to fill my bladder. My insomnia is bad always has been. I am 66. I even took Ranatadine for my hernia/reflux. Then next morning I felt wonderful but stomach swelled again and I peed less all day. Stopped it and peed better. If I havenot peed my abdomen is huge. I have had closcopy bladder urethas fine. Bloods say all fine (blood in urine years now since hysterectomy 1985 and 6 pints of blood transfusion - overies left but insomnia started then!!. Ive had upper gi barium follow through - ideopathic dumping a little, gallbladder removed and an adhesion from stomach to small intestine. Gut hormone profile. Tests for diabetis. CT scan showing only cyst and fatty liver. I dread peeing by the end of the day (worse if Ive eaten high fibre popcorn in the day)) and dread passing a motion. I dont know why my abdomen swells and I retain water on antidepressants and even on an antacid tablet. My nasal passages go completely dry, eyes, mouth eyes even blurry at times. My GP thinks Im nuts I think but I am fighting consultants still. Last night before bed I ate two wheat free hot x buns and immediately passed out for hours..until I woks and wanted to , pain all in my riht back as it built up and puffed out. I KNEW if I ate them I would not wake up so much in the night to pass urine. I was right but 3 times and felt awful still so lethargic. my blood sugars can be 4.5 which is not diabetic but for me I cant think talk concentrate until..I have water. I perk up. Have porridge and peed a tiny amount. No pain. I went to my sons and had 3 coffees. A tiny pee bit of right back pain. Nothing to eat. But then I ate 3 biscuits. OK walked the dog. Home. Then as usual standing from 3.00 to 4.00 I can feel urine trickling into my bladder. It takes an hour and Im getting pain in my right back/liver area. I start to go drowsy but pee a tiny amount and perk up. I eat tiny chicken, sweet potato, brocolli, cauli stewed apple and custard. My abdomen is swollen (Ive also drunk water today). I sit and go a bit drowsy. Then the crime of eating 6 ginger biscuits. Feel fine. No pee. If I dont eat fibre, bread, pots milk puds I seem to pee better. My bowels are now dark brown very constipated. The dietician has given me Fresubin milk drinks 2 a day because of weight loss. It feels as though when I do pee all night i am losing water weight. My arms are hanging and tops of legs so shrivelled from weight loss. II came off medications because of insomnia and high bp. I have gone out with my daughter and eaten a carvery and small apple crumble. Its always about one and a half hours later if I eat a big meal of veg pots in the day I am suddenly screaming in pain all in my liver area far right rib and all through back. Everything I read about the kidney diet i.e. no fibre, nuts, milk, banana, oranges potatoe..all make me pee less. If I eat fruit the pain can be soo bad maybe because of the dumping syndrome but I will pee even more all night. If I cant pee much in the night I still am awake and restless all over the bed because it feels as tho my urine wants to come out but wont and I am wide awake. Nothing in there. I walk the dog..suddenly I start to get puffed pain in right back because bladder is slowly filling up. GPs arent worried said kidney function fine but I am wondering if Im working on only one, or are they slowly packing up. Is it something gone wrong since my gallbladder op (also had a colonoscopy and that was fine but nothing but tonnes of yellow fatty diarrohea on taking the laxative for the procedure. Before that because of the antidepressant I was not peeing much and was breathing bad. Breathing got better and stomach went down stopping it. The colonoscopy procedure seemed to make it worse. I dont know if it is my bowels so constipated that when I drink water or have fibre,milk puddings, cottage cheese potatoes the water is being absorbed completely and not getting through to my bladder. I have no idea all I know is when I pee all night I have noo pain no shoetness of breath but soo thirsty. I am on clonazepam now 8 years for restless legs. My GP said if water brings your blood sugars up - which it does - its blood volume! I go drowsy on sitting down, my friends give me my water and 20 mins later I wake up. Is there anyone in this whole wide world who has ever experienced anything like this. There is a pattern on eating I can get pain about one half hours after eating. If I dont pee all day or pass a bowel motion and only have coffee and a couple of biscuits I can feel fine. But most days I feel dreadful by the end of the day in such pain on peeing all in right back spreading through my back and at night I usually have to lie flat for hours before bed to get my bladder to fill very slowly like in the night..all laying flat relaxing. If it wont pass through if I go to bed i am up 2 hours later and off peeing all night. I dont know if this is a kidney, such bad constipation, or with the pain in my right back/liver area a gallbladder op gone wrong. Either way I feel this is afdecting my kidney function, my liver pancreas is stressed and certainly my bowels. If there is anyone who has ever experienced anything similar..please tell me Im not nuts. I just cannot take medication.

8 Replies

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  • Please keep responses respectful of others, remember people are posting on here for support. Thank you.

  • That's exactly what I bear in mind as I am respectful of others.I came on here because of weird painful symptoms in the hopes someone may have experienced similar.I have had some over caring.polite.and helpful replies.

  • Basten this is a very confusing post which I see you have copied multiple times on multiple health forums, ie kidneys, gallbladder, cholesterol, liver etc. Seems it has your docs baffled - or possibly not able to make a diagnosis which is why you are asking Joe Public on these forums to make a diagnosis.

    I don't think you will get a "liver" answer on here as your post is too confusing and doesn't say what if any liver tests you have had. The pain or problem in your right back is nowhere near the liver or the gallbladder or the bladder.

    It sounds as though you connect your problems to what you eat or drink so perhaps that is what you should focus on.

  • Hi Basten, you asked for suggestions and one idea I have is that the origin of your problem MAY be as a result of your fatty liver.

    You said "CT scan showing only cyst and fatty liver. " Did the doctors give you any guidelines on what to do to improve the fatty liver as liver problems DO have an impact on digestion and the way you feel.

    I think you should stop worrying so much about your kidneys and wee but concentrate on your liver and digesive problems. Also there are things you need to avoid eating if you have no gall bladder.

    PLEASE go to the GP with your son or your daughter for support and ask to be referred to a gastro enterologist who has a special interest in the liver and hepatic system. They are the ones most likely to get to the root of your problem.

    Hope this helps and that you start to feel much better

  • Thank you for that and taking time to respond to my weird symptoms.i hope something will get resolved.no saw gastro consultant 5 months ago.not at all mentioned fatty liver.did promise to refer me for hernia op if antacids failed which he never did.keep going back to go this week cos something not right.thanks

  • Hi Basten, I am so sorry you are having to go through all this! Try not to worry too much because stress can make it worse. My grandfather and a friend of mine both went through very similar symptoms. They had dumping syndrome after stomach surgery. I agree with your doctors that it is dumping syndrome that is causing a lot or perhaps all of these symptoms.

    For both my grandfather and my friend got better. Much better. But it took several months and they did feel awful until their digestive systems adjusted. Now they can eat normal sized meals and most types of foods.

    I would recommend a few things that might help:

    1) Learn all you can about dumping syndrome. Here's a good article mayoclinic.org/diseases-con... There are also support groups online. My friend particiated in the online discussions, but my grandfather preferred to read what other people had to say.

    2) Revise your diet. Keep meals small and eat frequently throughout the day. Stay hydrated. Keep a list of safe foods and bad foods. You've done a good job so far of tracking how you feel after eating certain foods. Keep going with that. Avoid the foods that are difficult for you to digest.

    3) Keep following up with doctors. Show them the list of foods that give you trouble. Keep a simple list of your syptoms such as abdominal swelling, difficulty urinating, constipation, pain on the right side, etc. the doctors might have ideas to help.

    Good luck! You can get through this :)

  • Oh hello well what a lovely response andthankyou for taking time to read my weird symptoms!! My gastro UK consultant only briefly told me in a letter i had dumping syndrome (probably caused from recent removal in April of adhesion from stomach to small intestine found only severe gallbladder surgery removal.have seen UK dietician.he had no information i.e. leaflets to read etc or no one explained symptoms that can happen etc.all he said was like you little and often and low GI foods!! I will do as you say and follow article you have given me.thank you so much for that.I just know its not my imagination but rmdont think i was told enough about it!!

  • Thank you everyone for responding to such long weird symptoms.I've taken it all on board

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