Hillbill

[Hillbil]

My husband has liver cirrhosis his billyrubin has reached high the doc said that's OK is this right

[Robert1981]

What is high?

[Hillbil in reply to Robert1981]

His bilirubin

[Robert1981 in reply to Hillbil]

Sorry, as in what number?

[Hillbil in reply to Robert1981]

It's 44

[Hillbil]

It's 44

[Robert1981 in reply to Hillbil]

It’s higher than it should be, but if you’ll see other forum members who have been admitted with a far far higher number

[Hillbil in reply to Robert1981]

Ok thank you

[Ubwa in reply to Hillbil]

As an example, mine was 1.5 orders of magnitude higher for a year. If the docs are happy, try not to panic

[G0newiththealc0hol in reply to Hillbil]

Mine is 172 down from 250 almost 1 year ago.. Not going down enough for the hospitals liking unfortunately. 44 sounds managable with good diet and no alcohol.

[Hillbil in reply to G0newiththealc0hol]

Thank you hope you get yours down my husband don't drink but he changed his diet when he found out he had cirrhosis

[Hillbil]

I'm not sure what can you do to get the levels down

[Kerry008]

My liver issues started with high billirubin. The normal range is 5-12 mines was 45 feb 24. I was also told by my gp it was ok. They referred me to gastro team and after several tests i was told i have cirrohsis stage 1. I started to work on my diet. My billirubin was 32 in feb and jst had more bloods done yest to see if its came down again. This isnt to scare you but my billirubin is my only symptom and has been since i was 16yrs old. Im now 44. I was told for years i had guilberts disease. Now im dealing with so much more. Ask for more tests etc and to be referred.

[Hillbil in reply to Kerry008]

Thank you all other liver tests ok hope you are ok

[Kerry008 in reply to Hillbil]

Yeah so are mine yes im fine thanks. Hope ur husband is too

[Hillbil in reply to Kerry008]

Thank you yes husband ok but worries sick

[Dogfish123]

How do you reduce the bilirubin number apart from total alcohol abstinence and removal or reduction of other stress on the liver? I dont know that myself.

[Kerry008 in reply to Dogfish123]

My high billirubin wasnt alcohol related but i stopped drinking, lost weight, excercised daily. Im very early stages but im hoping my billirubin is now back to normal range.

[Ubwa in reply to Dogfish123]

It may stay elevated if you have cirrhosis as that may be the best your damaged liver can filter. Slightly elevated is not in itself dangerous it’s when it starts getting to jaundice causing levels it becomes a bigger problem.

I had Gilbert’s so my “normal” could be elevated, even before I did any damage.

[Hillbil in reply to Ubwa]

Thank you my husband has no other symptoms

[Hillbil]

Thank you i changed my diet I don't drink mine is fatty liver cirrhosis

[lonmallin50]

mine was 500 so 45 touch high but not that bad

[Hillbil in reply to lonmallin50]

Thank you

[Dogfish123]

Perhaps it's a case of if you aren't yellow then mellow!

[S010APB]

Hi there, my bilirubin number in hospital 8 months ago kept climbing, it peaked at 480!!!yes that right. 480!!!! Now 8 months later is 46 (2 months ago) it's another confusing thing but I have done loads of research. The 'normal' range in numbers like we get after a blood test should be between 0.5 and 20. However 15 years ago it was 'normal' between 1 and 32. If your husband likes coffee, drink really really strong coffee, I have 3 teaspoons of nescafe in a brew and drink 2 of them a day even though it's not v nice. This really helps biliruben to come down. I also have plenty of fibre from apples and grapes, no alcohol whatsoever and moderate excersise it will drop in no time 👍

[Hillbil in reply to S010APB]

Thank you my husband don't drink he drinks black coffee his diet is quiet good he does sometimes have a treat yours was really high so glad you have got yours down I think with my husband he thought 44 was high