Keratoconus and anxiety : So I've been to... - Anxiety Support

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Keratoconus and anxiety

Addison_Miller profile image
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So I've been to see an ophthalmologist on Friday and he diagnosed me with keratoconus (it's a progressive eye disease where the cornea bulge forming a cone like shape and this cone like shape deflects light as it enters on it's way to the retina)

There's a surgical treatment the Corneal Collagen crosslinking

I am so scared about this

Is there anyone who got this eye disease? And has done the crosslinking?

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Addison_Miller profile image
Addison_Miller
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introvertv profile image
introvertv

hey! I actually have this eye disease. I got crosslinking and Intacs in both my eyes. Crosslinkning isn't bad, it strengthens your cornea. It can be kinda scary because you won't be put under. There's this contraption that holds your eyelids open and that part is uncomfortable but they will be numbing you during the crosslinking process its pretty fast and pain-free. It can be painful later in the day or the day after. I hope I helped you a bit!

Addison_Miller profile image
Addison_Miller in reply to introvertv

Omgg thanks I couldn't stop thinking abt it

U did helped a lot I have to do mine December

So I guess you have photophobia???? After the Cross liking did it ease? (When I'm in bright light everything feels unreal and my whole body feels different) ever happened to u?

introvertv profile image
introvertv in reply to Addison_Miller

glad i did!

I’m not diagnosed but i do have light sensitivity sometimes. There are days where it’s really bad and days where it’s okay. Yeah, i know the feeling you’re talking about it feels weird. I can’t say if it eased because i also got the intacs in.

Still hope i helped a bit!

introvertv profile image
introvertv in reply to Addison_Miller

Also! Let me know how the cross-linking goes!

LauraJayne92 profile image
LauraJayne92 in reply to introvertv

Hi! How did you manage the pain after the cross linking procedure? My partner has had it in both eyes this morning and I am really triggering with trying to help him cope with the pain! Is there anything that you could reccomend?

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