24/7 lightheadedness: Hey everyone I am new... - Anxiety Support

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24/7 lightheadedness

Peaches_1987 profile image
15 Replies

Hey everyone I am new to this. I figured I'd give it a try because I have noone else to turn to and I feel alone. I am a 30 year old female and I have 4 children. Before all of this I was a completely normal, happy and healthy person. I lived life to the fullest no matter what. Here is my story.... this all started 8 years ago and it hit me out of the blue about 6 weeks after I had my third child in the year 2010. I was at work one day and all of a sudden my heart started pounding extremely fast, arms went numb, electric zap sensations throughout my body and extremely dizzy. Manager took me straight to the ER and they did every test they could do and found nothing wrong but that I was a little dehydrated and said for me to lay off the caffeine. Ok so i listened to their advice and it didn't help. From that day forward I've had nothing but the following symptoms...

Constant dizziness and I mean 24/7 that never goes away, detached from the body feeling, tingling in the arms,hands, face and neck, brain fog, pressure in the head, panic attacks, heart racing and at times a slow heartrate, feeling of throat closing, weakness tightness in my chest and extremely fatigued

Some days are better than others. Some days I dont have all of the symptoms above but the symptoms that are a constant is the dizziness, fatigue and weakness. This is a constant feeling that has never gone away. I've been to every doctor and noone can find anything wrong. I've had so many test done and still no answer to my problem. Everyone says its anxiety but I'm still is denial about that because I find it hard to believe that a person can have these constant feelings that never go away. Especially for 8 years. I've tried medications and again, nothing worked and now I've done gotten to the point I dont take anything except for a headache because I am terrified of the side affects of any medication. Oh and I take a vitamin every day. Whatever this is has completely ruined my life and me as a person. I try to not let my kids and husband see how bad this affects me but it's just so hard. Its debilitating. Its driving me crazy! I want my life back. I am most definitely not the person I used to be. I cant do much with my kids. Like go on trips and stuff because I am scared to drive or be away from the house but for so long😔. my husband always tells me to take medicine and we end up arguing over it because he just doesnt understand that its easier said than done. And he doesnt understand how bad I truly feel. Or I think he may be in denial about it. I really dont know. But I truly feel as though my life is slipping away and noone understands me or dont believe how I feel. So that's why I am reaching out to forum. If anyone else feels like this or have felt this way and have found a solution that has worked please let me know. Thank you in advance🙂

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Peaches_1987 profile image
Peaches_1987
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15 Replies
Jane1989 profile image
Jane1989

I developed anxiety shortly after giving birth to my first time due to complications with the birth and after!!!

I tried went to the doctor numerous times convinced something was really wrong with me and even the reassurance that I was perfectly healthy didn’t work. He prescribed me a lose dose anti anxiety and depression medication and like u I was terrified of the side effects so refused to take it..

I tried counselling which helped a small bit but I still felt I was caught in a vicious circle of all the horrible symptoms like u described thinking I had brain tumors/ heart attack etc all horrible health issues I was convinced I had.

One day I reached breaking point and thought I was going completely insane it was ruining my life and my time with my new baby and as I broke down my partner and family encouraged and practically forced me to take the tablets. I was terrified and afraid to be alone Incase something happened me while on the tablets. Eventually as the days and weeks passed I gained more confidence that the tablets wernt having any side effects and the anxiety was starting to fade..

A few weeks on the tablets and I feel strong enough to lower the dose and hopefully come off them soon.

Anxiety is horrible and makes u worry about every possible thing. Now I still get anxiety the odd time but not as bad as before and it goes quickly enough.

Learn some coping mechanisms and maybe try the meds as scary as they are.

Take one day at a time that’s all u can do.

Peaches_1987 profile image
Peaches_1987 in reply to Jane1989

Thank you for replying! I really appreciate it. I've tried medications before. Several of them. They constantly had me on something different and none of them worked. Some of them made me feel worst. And then coming off of them wasnt a good feeling either. Now, even thinking about taking them makes me panic. So I would rather just stay away.

Jane1989 profile image
Jane1989 in reply to Peaches_1987

Oh sorry I thought u said you didn’t want to take the meds!!!have u tried any form of therapy??that can also be a help..I found when I actually accepted the symptoms and just let them pass and accept them for what they are they passed quicker and faded quiet a bit..I still get the symptoms some days but just accept them and continue with my day..with 4 kids u must be kept busy I find keeping myself busy and in a rountine is also a help.

Like u I was afraid to leave the house and hated going places but forced myself to do it and now I don’t mind at all any more. Try live every day in the present and not worry about the future.

It can also be hard for people who have never experienced mental health issues to fully understand what you are going through.

Peaches_1987 profile image
Peaches_1987 in reply to Jane1989

I took medication like right after all of this started. For the first year after it all started is when I was trying different medicines. That was when I wasnt scared of meds. Since then I haven't taken anything. I went to therapy like counseling off and on for 2 years and that didn't help either. It's like noone believes that I really feel this way. I tell them these feelings are constant and they dont seem to believe me

Jane1989 profile image
Jane1989 in reply to Peaches_1987

Yeah the feelings used be constant for me too until I started to accept them...it is very hard to deal with but once u start to accept that they are anxiety u will eventually see that they will ease and won’t bother u as much any more

Peaches_1987 profile image
Peaches_1987 in reply to Jane1989

Thank you!

Mariapalmer profile image
Mariapalmer

Hi there totally get how you feel I’ve felt poorly light headed , nauseous etc for years and the headaches/head pressure is awful, have you had your ears checked and your blood pressure ? I have bad ears makes my head awful and I feel lightheaded a lot I eat small amounts often which help and drink plenty of water but it still never goes 100% I’m still in denial it’s all my anxiety too , I had a prescription today to take once a day at night for the headaches as that’s what bothers me most at the moment xx

Peaches_1987 profile image
Peaches_1987 in reply to Mariapalmer

Hey. Yes I've had all of the above checked. Everything is normal. I never really have head pain. But pressure like a band is squeezing my brain or something. Lol. I know it sounds crazy but it's the only way I can describe it. My husband wants me to try turmeric. Have you heard anything about it? It's supposed to be natural and supposed to help with all of this mess. I'm trying to get the nerve up to take it....

Mariapalmer profile image
Mariapalmer in reply to Peaches_1987

The only turmeric I’ve heard of is the stuff you find in tea or the kitchen cupboard ? Just go for it after so many years it’s got to be worth a try and it’s natural so doesn’t get any better !

Monty17 profile image
Monty17

Hi Peaches_1987, I know exactly how you feel. My anxiety seemed to come out of nowhere (although I now realise it was gradually building) and everyday I thought I was going to die. Your symptoms are the mirror image of mine when they are at their worst and I feel for you as I know how scary it is, it is hard to believe that anxiety can produce all those symptoms. Please believe that it is something you can get better from and learn how to manage if it doesn’t disappear altogether.

For me, taking just 1 x 20mg Citalopram for 6 months has given me back my confidence and being closely back to my old self again. I didn’t want to take any meds but although the first few weeks were tough as the anxiety did increase, all in all it has been brilliant for me as it’s taken the edge off the symptoms and therefore I’m not thinking about my anxiety and breaking that vicious circle. I am now in group therapy as ideally I want to learn further coping mechanisms and eventually come off the meds.

You are definitely not alone, keep positive - all your tests that you’ve had done have come back fine so keep remembering that and reassure yourself - it’s ok to be anxious, it’s natural - without it we wouldn’t have survived ☺️.

Distraction also helped for me, I would listen to music that evoked fond memories especially when driving as that was sometimes when the anxiety would be bad and this really helped as I would be singing along instead and not thinking about the symptoms and it would pass quickly xx

13rosa profile image
13rosa

unfortunately i don’t have an answer for you, but i am feeling the exact symptoms you’re describing. the constant dizziness, detached from body feeling, racing heart, extreme fatigue (so much so that i have to lean on things whilst standing), throat, chest, weakness - everything! i am seeing a psychologist in a few hours and i am going to bring these symptoms up to her, so i will let you know if she has any answers. don’t give up hope :-)

AllianceMike profile image
AllianceMike

Peaches,

I am so very sorry that you have suffered for such a long period of time. I have suffered for 15 years with many of the same symptoms and some different symptoms. I shake/tremble every day along with nausea, clammy sweats, foggy brain, lightheadedness, constant soreness in the muscles from mid-chest up, heart palpitations and digestive issues.

I totally get what you say about it being debilitating. It has completely changed my life (for the worse). I was an athlete who was always happy and enjoyed life. Now....I have pretty much stopped living. It's like I'm just waiting for something catastrophic to happen.

I have had many tests performed over the past couple of years including exercise stress test, MRI of my brain, abdominal ultrasound, upper GI endoscopy, colonoscopy, chest x-rays, EKG's, complete blood workup including in-depth thyroid panel. All have come back normal with the exception that I have Barret's Esophagus for which I take Rabeprazole.

My doctor tells me my symptoms are from severe anxiety/depression and panic disorder. It's not that I doubt his diagnosis, but it's so hard to believe there isn't something physically wrong with me with all of the physical symptoms that I experience each and every day. UGH!

I guess the anxiety/depression/panic disorder can wreak havoc on us in many ways. Hang in there and don't lose hope. I will pray for you. We can get through this and reclaim our lives!

Shfkcmd profile image
Shfkcmd

Ok this might sound completely crazy but have you been checked for lyme disease? About 3 months ago I started with a lot of the symptoms you listed. It was debilatating. Finally found a doctor who thought to test that. 2 weeks on doxycycline I feel like.myself again. I did start lexapro too because I was at a 10 every day for anxiety. Not too many side effects yet. Also, I did not have joint pain or the classic bulls eye rash. See if a doctor will run a lyme western blot test. Hope this helps. I know how hard it is too feel like that and have a family to take care. Good luck

Shfkcmd profile image
Shfkcmd

Also I was in the emergency room 4 times and the last doctor told me to see a psychiatrist! Never give up.

rachel913 profile image
rachel913

I too feel constantly dizzy, weak, and fatigued. I've had every test done and the only solution doctors have come up with is anxiety.. have you found anything to relieve yourself from this constant hell? :(

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