DVT/ PE Worries... ffs...: Most of this will... - Anxiety Support

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DVT/ PE Worries... ffs...

Cherry_mvff profile image
6 Replies

Most of this will sound utterly ridiculous, but bear with me! Also, buckle up as this will inevitably be a long'n! I'll go from the top.

This all started about 6/ 7 weeks ago... I think... I can't remember the exact point where I first noticed the pain but I'm pretty damn sure I got up from my computer desk to go a speak to my Mum about something. I'd had worries about DVT before but brushed them off quickly, however, this was in a different leg. It felt like a regular ol' cramp, but for some reason (well, a pretty obvious reason ;L), I became rather obsessed with it. I sat back down a few minutes later and the pain persisted, leading me to do the obvious Google thing, as I wasn't aware of any other DVT symptoms, and thought I'd find reassurance.

I sat there and read about the swelling, heat, tenderness, heaviness and discoloration that's commonly associated, none of which I had (besides the discolouration, but my legs are always and have always had a slightly strange colour) which took my mind off it a bit, despite the pain still not fully letting up. This reassurance, however, really didn't last.

I can't fully remember at what points other symptoms have come and gone over the last few weeks, as I've been rather busy, trying to go about my daily life and distract myself from it. I've been completely obsessed with my left leg throughout though, constantly comparing it to my right, looking in the mirror to spot any signs of swelling etc., poking and prodding to see if it feels any different to the other leg, stretching them both out to see if I could feel any pain and even using a tape measure to see if the circumference is greater than the other leg! I've had intermittent pain, ranging from a traditional cramp feeling to shooting pains and aches in my thigh, a "hard" area on the inner side of the calf that comes and goes pretty much randomly and what has felt like a kind of heavy/ tense feeling which has been the most persistent but not a constant symptom. UGH...

Anyway, skip to last night. After enduring all this sh*t for weeks and trying to avoid going to doctor's/ A&E (or ER), it all seemed to change. I was sat at my computer like I usually am late at night after a hard day of rearranging my room and cleaning. I got up to go get a drink and felt a new pain. This was a much sharper pain, very localised, right at the bottom of my calf on the inside. It worried me slightly but I carried on, trying to ignore it (despite it being a good 7/10 on the pain scale)! I came back to my room a few minutes later and sat cross-legged on my bed to check my phone when my brother walked in to have a quick chat. All of a sudden, I got a MASSIVE overwhelming sense of faintness, heat, panic and breathlessness, to which I "ran" into the bathroom to get away! I stood there looking in the mirror and felt that my heart was absolutely gunning it, probably around 160-180bpm. I composed myself and dunked my face in some cold water and sat down, managing to catch my breath (sort of), and my heart gradually began slowing. All of this only lasted about 2 minutes. Although this was most like a short but very intense anxiety attack from a stressful day, triggered by the "new pain" worry, I was finding it particularly hard to recover from, ESPECIALLY the "faint" feeling.

When I re-entered my room shaking like a leaf, feeling like I'd just been in a plane crash and developed the flu in the space of 3 minutes, my brother had gone, so I sat and sipped from a glass of water. This is where the real "fun" began. I noticed that the "new pain", along with the old pain AND persistent heavy/ tense feeling had vanished. Like COMPLETELY gone. This would usually be considered a good thing, however, my brain immediately jumped to the conclusion that "holy sh*t the clot has moved and what I'd just experienced was actually it entering my lung holy sh*t"...

I was so screwed from the "episode" a few minutes prior that I thought "f**k it" and got into bed. I would then spend the next 3 hours tossing and turning around, feeling lightheaded as hell (which I haven't had, particularly in bed, in MONTHS), sick, short of breath and like my heart was just going to stop. Skipped beats, indigestion, weird floating sensations, the real full monty for the first time in ages... Gutted...

Woke up this morning at around 8:30 feeling like I'd been sat on by an elephant all night, whilst being injected with every virus known to man. Just awful. Spent the whole day so far completely out of it, dizzy, physically ill, tight chested and still constantly checking to see it the feeling in my leg has come back (which funnily enough at this point is all I want)! It feels a bit off but still not like it has for the last month or so, and I just simply CAN NOT shake the idea that this clot that may or may not exist has moved and is going to just kill me at some point. Constantly breathing in deeply to check for pain etc. I don't usually get annoyed by anything, but I've felt so much better overall for so long that this huge set back is REALLY grinding my gears, which of course is making everything much worse!

Anyway, there's my story of my delightful ordeal over the last few weeks. All I want from this is reassurance, as I really want to avoid wasting paramedic's/ doctor's time. If ANYONE knows ANYTHING about, or has experience with DVT and PE, could you please let me know if ANY of this^ sound familiar, or if I'm being a complete Nancy over the whole thing.

Thank you to anyone who's read this! I shall eagerly await your responses 😎x

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Cherry_mvff profile image
Cherry_mvff
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6 Replies
Agora1 profile image
Agora1

Hi Cherry_mvff, I'm glad you wrote the forum. Even though we aren't doctors, it may help in getting our prospective of what has been going on for 6/7 weeks. If it were a clot, you would have been in the hospital without a choice. I think what is happening is that you are so obsessed with DVT that your anxious mind is playing into every pain & symptom you feel. It sounds like you may have had a muscle spasm in your calf that prompted more unusual uncomfortable feelings due to your already stressed mind.

When you turn your fears over to the anxiety bully (per se) he took it and ran with it, making you feeling you were on death's door. Do you see how this monster works? When you no longer felt the sensation in your leg, your immediate thought is that it traveled to your lungs. You need to turn your thoughts away from this fear. From what I've read in your post, I want to reassure you that at age 21, this doesn't seem like a life threatening event. Of course, we never take the place of your doctor's advice and care. We are here to support and understand what anxiety can and does do to the anxious mind. Take it easy...

Vbee profile image
Vbee in reply toAgora1

Yep you'd be in serious strife by now if it was DVT. Anxiety 100% - ALL the classic symptoms. Funny thing is that we "feel" a pain and leap immediately to the worst conclusion then prod and poke that spot and in fact bruise the soft tissue from all the prodding and end up with real pain that oh my god MUST be cancer, no wait....thrombosis or aneurisn or tumour or heart attack....or...the list goes on! Statistically these real conditions are not exactly commonplace so chances are you don't have them!!! But what you do have is an oversupply of adrenaline flooding your body which gives you fake symptoms!!! Welcome to the anxiety club - the ride that you can get off if you don't try to!!

Brumchick profile image
Brumchick

Hi i have had 2 dvt .In both cases the pain was felt as an overwhelming throb in the whole leg.The swelling increased my affected leg by making it 2 times bigger than the unaffected leg.I had a deep dusky blue leg with hubdreds of pin prick haemorhages all over the surface of the leg.I really dont think you have a clot.The pain in the leg was constant and because of the size of it i was obviously on bedrest with my leg being raised so that it was above the line of my hipbone.The swelling was really the first sign.I also had redness and heat at the site of the clot. I hope this reassures yu .

Best

Cherry_mvff profile image
Cherry_mvff

Agora1 Vbee and Brumchick , massive thanks for your responses! Sorry I'm so late replying but I've had a hell of a hectic week clearing the house for a valuation! I read all of your replies on Wednesday morning after another particularly unpleasant Tuesday night and the relief was almost instant. It's really awful as always to hear about other people's ailments but there's no denying the huge reassurance that comes with knowing that you're not "alone" in it all. I particularly like the "ride that you can get off if you don't try to" quote ;L

The past few days, my blood clot worries have pretty much diminished to a 0, and I cannot begin to explain the relief after so many weeks! I've had a couple of down moments (day after drinking rather excessively, and a BELTER of a panic attack about an hour ago thanks to a particularly stubborn bout of heartburn, which was OBVIOUSLY a heart attack ;) ), but the thought of DVT has barely crossed my mind, and the leg symptoms seem to have greatly reduced in frequency!

Honestly, I cannot thank you all enough. If you ever find yourselves in Cornwall, I owe you a beverage ;L x

Agora1 profile image
Agora1 in reply toCherry_mvff

Cherry_mvff, It's like magic isn't it when symptoms disappear through the comforting thought of reassurance. Now you can carry that "magic" with you. Never underestimate the power of the mind in healing. I'm happy for you. Enjoy your life and know that the forum is always here to support and understand. Cheers! :)

Daniellesparkles profile image
Daniellesparkles

I had all of what you wrote the pains got so bad I went to the hospital twice! They scanned my legs did ultrasound and they found absolutely nothing it was the anxiety ! Trust me I had your exact same fear my legs would shake and feel like jello

Eventually they got better and know I worry about other things

Anxiety is a nasty thing that takes away your peace

You are not alone :)

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