today was my fourth treatment and increased dose. I’m not well. I’m worst today. Physically going downhill too. My brain feels like it’s being squished in a wine press. I want to scream to everyone “you don’t really know how I’m feeling because you can’t see it!!!!!!!!). It’s easy to comfort a cancer patient or someone with a broken leg, WHAT ABOUT A BROKEN BRAIN!!!!!!!!! IM HURTING!!!!!!!!!! I DO WANT MY FAMILY TO UNDERSTAND!!!!!! THEY SAY THEY DO, BUT I STILL HAVE TO DO EVERYTHING.
I can’t anymore, I’m drained to the point I don’t want to do this anymore. None of it.
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LIFE72
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I totally get what you mean, I was thinking the exact same thing a couple of days ago, it's really hard when people talk bs and don't know anything and even worse if they're family members, sometimes they say and think they know how it is and how we feel when actually they're very wrong, but I guess that being firm and clear about that helps, at least for me it helped, to defend myself and what my reality is even if they don't have a clue and don't understand it doesn't matter, it matters how you try and try and try to get better and are honest about it and willing to try, even though it may be really hard and even though it might feel hopeless we know and should always remind ourselves that it's not hopeless and it won't always be like this, like now, things change and when you're down the only way is up I think, if you're on your lowest know that you'll feel better after it with time and compassion towards yourself, while you give yourself that everything will be okay even if it doesn't feel like it. <3
Thank you!!! and it seems like they pay attention but they not. I just worry because I realized I’m the one who’s always the one taking care of everything. Nobody will do anything me. Some people have someone who advocates for them. We seem to have nobody. I wish you health as well 🙏
Of course! I'm glad that my response helped you in any way, I understand it's hard, and yeah they might not heh but I hope that you can delegate those things that you noticed that only you do, only one person cannot and must not do everything as it's not good for our health, so try to do up until some things and leave the other ones to others o for another time if only you can do them but if you can get someone else to do something don't be manipulated or afraid or feel the need to do it yourself, try your best to fight for yourself, even though you might not have someone there for you think that there's another you like your younger version that you need to take care of and do it, for yourself and your health and well-being, don't be ashamed of doing anything like that and you'll feel better after that, you'll feel stronger even if people don't listen or whatever in the end what matters is what you do and you'll feel the difference in doing it even if it didn't work. I wish you the best as well and thank you
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