Keeping quiet for over a year

[Fefe09]

I have had health issues with my breathing for 10 years now it all started shortly after a hard fall and being put to sleep removing my gallbladder. I have been to maybe 4 or 5 local ents that do the basic in office routine of running camera through nose down throat and always say I don’t see anything .so 2 years ago I was put to sleep with local anesthesia for endoscopy and colonoscopy from severe stomach pain and throwing up for months. As soon as I woke from that I noticed my right nostril was on fire and my lip was burning and as the months went by I’ve had what feels like a hard boil in very back of throat . It’s excruciating pain in my throat ear and right nostril and right of head and I feel like I have fever but not running a fever. Ok I had to let you know this so I can get to this part that in have been silenced and afraid of retaliation and not being seen by anyone else. May I mention my insurance only allows me to go in my state or I would have left long time ago. I make appointment with a new ent for my nostril burning and ear and throat pain. He had over 4 stars and I got my sibling to take off work and drive me. He normally is over 2 1/2 hours away but on Wednesday he goes to another city which is hour closer. So I’m waiting in a room waiting to be seen by this man. I hear him through the walls talking to other patients about 2 or 3 and he tells all them everything looks good I’ll see you next time and comes and stands in front of my door recording everything about patient . So now it’s my turn he walks in ask how are you , I said good but not good. He opens my chart and asked why are you here? I said my right nostril, rt ear and I feel a hard lump in throat that is excruciating painful. He then starts in on me. He said I see you had a scan of your neck and waiting on results for a swollen lymph node on rt side. I said yes but I’m not here for that reason I’m here for sore in mouth and other. He said I’m not seeing you , I can’t believe you made appointment before your test results came back.starts to leave the room and says See you have a good day. I was almost in tears. I said I need you to look at my throat. My sister took off work and we drove 1 1/2 to get here and I’m in severe pain. He told me open my mouth, look with flashlight and said I don’t see anything all the while being real short and extremely rude acting. Was blowing me off again and he said ok I’m done. I said what am I suppose to do he said I don’t deal with pain you’ll have to go somewhere else. Being desperate I said I need you to look better with a camera begging him please I’m in pain. Look at my throat please there’s a lump I can feel it just can’t see it feels like a risen but worse. Then he gets more pissed off. And I told him inknownyiurnin a hurry but I need help. I told him I heard him giving the same speech to 3 other people and I could here every word he said out in hall with the other patients . He was in and out with the others 3’peole fast. I felt like Wednesday was his take a break day at this small hospital and I was interrupting his day. He then got right in my face almost nose to nose( his nurse just starring) He told me those people in there have cancer and you are wasting my time. He said I don’t need you I have numerous patients more than enough and I sure don’t need you. He kept talking down and hateful to me. I should have and normally would have got up and left . Oh how i wish I would have. I told him please I need you to look down my throat. He was beyond mad. His nurse laid out long black thing that would be inserted in my nose on a paper towel . She then came in with it looked like a small tank but old looking. She opened or I don’t know what she done flicked it or opened it and the stuff was spewing all over the floor. She gave me that to numb me and it was the worst taste like poison I’ve ever tasted . The tank looked like it had been there since the 90s idk. So now enters the doctor. He’s in hurry and pushes camera down left side and it’s not hooked up to a screen or nothing . He pushes really hard and it’s hurting really bad so he hurries and then does right nostril this time he is pushes with all his might and I start falling backwards out of my chair unable to scream . I moaning for him to stop and he’s yelling at me be still and set up. The more I try to set up the more he’s pushing with all his might to knock me out of chair almost. The pain was extremely painful. The whole time he was saying yeah yeah yeah like he was getting off on hurting me. After he did that he said that’s what I thought nothing a waste of my time. And left the room . I could hardly speak was spitting up stuff immediately . I said what about my ear pain. She rolled her eyes he’s already checked those I said no he didn’t. She went and got him and he came back and said now what? looked in both ears and said again yep that’s what I thought wasting my time. I left the office with all the staff looking at me in the hall way. I was in so much pain this time different pain not the sore I was feeling before but severe pain in my throat from him pushing me almost out of my seat . I left and immediately grabbed my throat balling . Spitting up stuff the whole way out of hospital. I hurried to a bench and sat down crying in pain spitting stuff out. I told my sister this man was a psychopath and physically hurt me on purpose. I was so mad I didn’t leave when he started being hateful from the beginning. Ever since I left his office I have been spitting up white foamy substance and my throat has felt infected for past 13 or 14 months now. I’m afraid to report him because first who would believe and old country girl verses a doctor. He needs to lose is licenses. He deliberately hurt me and now he’s done something to my throat and I’m still spitting up stuff since I left from there. I thought about calling someone but who would believe me over a doctor. I know he damaged way down in my throat and I feel helpless, angry and upset that didn’t leave before he could do that to me. I have seen many many doctors in my life . There are a lot I didnt care for and some I liked but I have never been to one like this. I wish it was on video. . Nobody would believe me that he intentionally hurt me. It would be my word against his and his nurse that just stood there watching him push me almost out of chair screaming for me to sit up. Anyway I had to tell whoever reads this . I’ve told my family and my dad says he should be in jail and has probably damaged something in my throat but I’m scarred to go anywhere to get looked at cause it hurting and I doubt anyone would believe me. Also sore is still in very back of throat and nostril and ear still hurting constantly and all I do is sit here and lay here in pain all day long .

[Agora1]

Fefe09 first of all, I believe you are in excruciating pain. I've read and re-read your

posts and find it cruel the way you have been treated. I feel that this is more than

anxiety ridden. The symptoms are not changing. You have been suffering constantly

for a long time. I feel something is being missed.

I am not a doctor but have always been interested in undiagnosed medical issues.

There use to be a show on tv that I became interested in regarding long time pain and

symptoms of patients going from doctor to doctor and not getting cured.

That show was "Monsters Inside Me" This is just a thought from my inquiring mind.

Since all this started after having your gallbladder removed (which was healthy) just

what if, something was left behind during surgery. It happens you know. It can cause

infections and unbelievable pain causing the patient to suffer needlessly for months and

sometimes years.

I know you stated you were not able to travel outside your state because of insurance issues,

because I would have recommended both Mayo Clinic as well as Cleveland Clinic. I'm going

to try and find a number you may be able to call to get referred to someone who may be able

to help you or at least direct you.

My heart goes out to you dear. I will get back to you shortly. xx

[Fefe09 in reply to Agora1]

You don’t know what this means to me. I haven’t slept in 2 years since my endoscopy and colonoscopy . I woke up with right nostril burning and I told the guy and girl that was walking around cause there were several patients laying on beds coming out of different surgeries I said my nostril is burning and they blew me off and I said the inside of my lip is hurting really bad. They didn’t look at it or help me so I went home and with 48 hours my health took a turn for the worst and hasn’t turned back since. . I believe sept 1 2022 . I was already hurting in my liver area and severe nausea before I was put to sleep. I sent an image of inside my lip to my cousin who is a nurse practitioner. She said I shouldn’t need antibiotics just put some ointment on it and I should be fine. Well it got worse. If you have read all my post I have a lot going on. I feel like I’m living in literal hell 24/7 and it doesn’t let up. I sleep maybe 15 min and I’m awake for hours crying in pain with my head eye and throat my lymph node on right side is swollen and now I can hardly eat cause of the pain in throat and nausea . I’ve had sickness in my life but always got through it. I’ve always been independent and now I’m bed ridden in chronic pain one min I’m praying for Jesus to take me away but I want to get better my daughter needs me and I love life. But I’m living in torment . My shortness of breath has taking a toll on me too. I’ve got my airway problems for 10 long years and now severe pain for 2 solid years that I haven’t been hardly anywhere. It takes all I have in me to drive 1 min down the road to get groceries. I can’t clean my house or even be around people I’m hurting. I feel like I have infection in my brain and right nostril. Eardrum is hurting and my throat . It’s not in my mind . All because I’ve been labeled by doctors in past having depression they blame everything on it. I’ve been on antidepressants for 35 years and haven’t ever felt like this. Covid and strep and migraine and earaches are nothing compared to what I’m feeling and I’ve had all of them at some point. My immune system is weak. When I first went to er few days after the colonoscopy they did scans of my stomach and blood work. I was literally on all fours in the bed with my head in the pillow and they asked if I needed mental help. I was and am so angry . I’ve been to oral surgeon he couldn’t look but in my mouth. I’ve had ct scan of my throat and they said I don’t see anything . I said well I can feel it if y’all would feel down my throat but they haven’t. I don’t know why I’m going through this . I feel like job in the Bible. I keep hoping for a miracle breakthrough but I feel hopeless most days. I don’t care about shopping or watching movies or it’s got to where it’s hard just to get a shower from the pain. I’ve been told maybe pain management will help. It’s probably something viral or idk I’m clueless. My family doesn’t come around me anymore they can’t deal with me moaning and seeing me this way . My child stays in her bedroom and she’s mad at me for not being there for her which I’ve tried but she doesn’t understand and I hope one day I’ll understand and everyone around me will. Please pray for me. I love prayer . I love the Lord so much and I’m not mad at him but I feel all alone trapped in a cage and can’t get out. I beg him everyday please help me. Anyway you are an angel and sorry for going on and on. I just need help and have hit a brick wall for so long.

[Agora1 in reply to Fefe09]

Fefe, you certainly have my prayers dear. But short of a miracle, you need answers.

I believe that there is a doctor who will be able to put all these pieces together and

come up with an answer and solution as to where this wide spread pain is coming from.

Please keep in touch with us so we can support you through this wait. xx

[Fefe09 in reply to Agora1]

I need comfort. I need help. I probably already told you I worked for postal service and all the lifting and turning I started having shoulder pain and neck pain complaining to my family and then I fell reloading my newspaper. I never reported the fall but I hit hard on concrete. Didn’t know if I would be able to finish my route . I waited and went to walk in clinic because that’s where they told me to go. Anyway my whole neck feels like all the ligaments and nerves have been ripped and my collar bone still hurts. My dizziness and nauseous could be from my neck injury and my sore throat idk why I’m having that. I feel like I’m never gonna get help and the er does absolutely nothing. The dizziness when I close my eyes is horrible and I just try and stay awake or the dizziness wakes me never felt like this in my entire life it’s horrible and my family says they don’t know how to help me. I wanted to just go be with the lord several times but I’ve had thoughts but I’ don’t believe God will forgive me if I do anything and I don’t want to burn in hell.

[Agora1]

Hi Fefe, it's me again, the non doctor lol

Looking for some answers I found "Undiagnosed Diseases Network".

I personally don't know anything about it except that these hospitals are

based throughout the U.S. They are equipped with the latest technology

as well as specialists to work together as a team to find answers.

There is a phone number as well as case studies on patients they have helped.

I will step back now because I don't want to get into trouble overstepping my

boundaries. I'm doing this because I care and want you to find some answers.

Keeping you in my thoughts and prayers. xx