Update on my daddy- 8 years stage four - Advanced Prostate...

Advanced Prostate Cancer

21,026 members26,210 posts

Update on my daddy- 8 years stage four

Lynsi13 profile image
13 Replies

Hello guys! I wanted to give a little update on my dad.

He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately (6 rounds of taxotere).

He stayed on Lupron and Casodex for five years until it failed and he had 2/3 rounds of provenge (covid interfered 🙄) and started on Xtandi.

He was on Xtandi for three years when his PSA started to rise. It went from .07 to 2.38.

Also in the fall of 21 dad had to have a quadruple bypass and five weeks later was diagnosed with lymphoma in his brain. He had brain surgery, chemo to his brain, covid, several bouts of AFib, and even a heart attack in one year.

Dad is now 82 and the effects of treatment are more evident than ever on him. 😞

Fast forward to the present, when seeing his PSA on the rise his oncologist considered Pluvicto. He ordered a PSMA scan and they discovered that his prostate cancer was limited to a 1.5 cm x 1.5 cm place in his prostate.

So now his oncologist has decided that the next best step is to do targeted radiation.

I'm unsure what kind of radiation the Cleveland clinic uses.. I have a lot of research to do. However, I feel like maybe this is a better option considering my dad's other health concerns?

I'd love to hear what you guys think. On a different note, he just got the results from his latest brain MRI and everything looks great. So I'm very encouraged there!

Written by
Lynsi13 profile image
Lynsi13
To view profiles and participate in discussions please or .
Read more about...
13 Replies
GoBucks profile image
GoBucks

I don't have an answer to your question. However I just wanted to say your Dad is one tough dude! Inspiring. Best to him and you.

Lynsi13 profile image
Lynsi13 in reply to GoBucks

Thank you! He really is.. it's been one heck of a journey, but he faces everything courageously and with faith! I'm certain he will face this next treatment the same way!

Tall_Allen profile image
Tall_Allen

Whole pelvic radiation sounds like a good idea. I think Rahul Tendulkar at Cleveland Clinic or Daniel Spratt at University Hospitals Seidman would be good choices.

NotDFL profile image
NotDFL in reply to Tall_Allen

Sorry, I don't get it. The oncologist recommended targeted radiation to the relatively small area that is cancerous.

Lynsi wrote:

Fast forward to the present, when seeing his PSA on the rise his oncologist considered Pluvicto. He ordered a PSMA scan and they discovered that his prostate cancer was limited to a 1.5 cm x 1.5 cm place in his prostate.

So now his oncologist has decided that the next best step is to do targeted radiation.

Tall_Allen profile image
Tall_Allen in reply to NotDFL

The cancer you can see is definitely not all the cancer there is.

Mcrpca profile image
Mcrpca

Nice Gibson!

Amadeus71 profile image
Amadeus71

Spratt at UH is my RO. Highly recommended.

EdBar profile image
EdBar

Sounds like SBRT to the affected area is likely. It’s an easy treatment after initial scan usually 3-5 sessions. It’s painless and maybe causes a little fatigue for a week or so afterwards.

Ed

NecessarilySo profile image
NecessarilySo

I'm not a doctor but I am surprised that he never had a prostatectomy or rad therapy to prostate. So targeted rt to prostate seems like something overdue, considering tumor size. Also the brain lymphoma in brain has me scratching my head because I don't think there are any lymph nodes in the brain. I had lymphoma behind left ear outside skull which I treated with very hot shower to eliminate. He might keep that in mind but if it were to recur I would think it would be inside skull after surgery to brain. Also the way the monster works is devious and needs to be constantly surveiled.

Sorry but I’ve never had Lupron or any ADT. Good luck!

j-o-h-n profile image
j-o-h-n

Tell your Dad he looks much younger that 82 years old. He also looks like a guy who has self confidence and of course with the women he always has his pick.

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 08/04/2023 3:06 PM DST

Nous profile image
Nous

hi Lynsi13 ... thanks for sharing this ... you and your Dad inspire me ! ... thanks for that ... Nous 😀

Cactus297 profile image
Cactus297

Thank you for sharing your Dad’s experience and update with all of us. You both make an awesome father/son team!

You may also like...

Stage four very aggressive prostate cancer

firmagon. His psa eventually went down to 60. But began rising slowly again a few months after...

2 years into Stage 4 Treatment

regarding my dad. 2 years ago he was diagnosed prostate adenocarcinoma Gleason 5+4 with PSA 146...

My 73 year old dads stage 4 mastitic prostate cancer

since then his lost weight and his struggling to walk etc due to his lower back pain. PSA has now...

**UPDATE** & Help Needed - Dad with PSA 1200 stage 4 Original post is linked below

https://healthunlocked.com/advanced-prostate-cancer/posts/private/148470247/54yr-old-dad-psa-1200-st

Castration resistant in just a year? Normal or not? Provenge in my future.

suggesting Provenge if my PSA continues to rise (recheck in November) and possibly palliative...