Advice : Hi I haven’t yet been diagnosed... - PCOS UK (Verity)

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Lifeofpurple profile image
6 Replies

Hi I haven’t yet been diagnosed but is suspected either PCOS of pituitary issue causing my issues. Very very long list of symptoms that are getting worse rapidly this as been going in side 15 and now 19.

These are latest bloods can anyone help read them properly.

FSH 5iu/l

LH 13iu/l

Prolactin 223miu/l

Testosterone 0.8nmol/l

Sex binding 33nmol/l

Androgen index free 2%

TSH 1miu/l

Free T4 17.3pmol/l

Free T3 5.6pmol/l

My pelvic US was normal awaiting MRI pituitary results.

Bloods fluctuate so much each time have done.

Also worried if PCOS as everyone talking about weight and getting pregnant and period but have no issues with that apart from long but regular cycle of 45 days.

Please help.

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Lifeofpurple profile image
Lifeofpurple
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6 Replies
MedStudentP profile image
MedStudentP

PCOS would require transvaginal ultrasound! (Maybe that’s what u meant by pelvic?)

Can I ask what sorts of symptoms you are getting?

I would say that your prolactin seems increased which is in line with a pituitary cause, MRI may give more clarity and these tests should be the most valuable in diagnosis

Lifeofpurple profile image
Lifeofpurple in reply to MedStudentP

No wasn’t allowed to have transnational as never had exam or sexually active.

But all was clear.

My MRI was clear but now double checking adrenals if they still ok for sure PCOS been told.

The list is endless with symptoms I have 3 A4 pages full. And they getting worse.

MedStudentP profile image
MedStudentP in reply to Lifeofpurple

So long as within your other symptoms you infrequent/lack of periods as well as signs of hyperandrogenism (hair, acne, high blood test) then you would meet the criteria officially!

Pelvic ultrasound will have no help

Lifeofpurple profile image
Lifeofpurple in reply to MedStudentP

No lack of periods long cycles but regular at that maybe few days here and there depending on stress/fitness etc. have rashes from sun sensitivity not really extra hair and I have a high LH to FSH ration apparently but LH higher. T4 free is high also. Along with other things but can’t remebe of top of head

MedStudentP profile image
MedStudentP in reply to Lifeofpurple

High LH is a very common feature within PCOS as well as prolonged cycles.

T4 is a thyroid hormone so not suggestive in direct PCOS diagnosis.

I suppose it depends on your doctor how they wish to approach it, but you can find the official PCOS criteria online under the Rotterdam Criteria 2004 if you wish to have a look and I would recommend as Adrenal Hyperplasia is also very similar and should be excluded in diagnosis of PCOS if your doctor suspects an adrenal problem

Lifeofpurple profile image
Lifeofpurple in reply to MedStudentP

Yeh have heard that. My thyroid ok apparently is fluctuating due to lack of things in body and mixed signals. But it ok had it checked. Yes 24hr urine sample and more bloods such as 17alpha etc to check for adrenal insufficiency. Thanks for your help

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