I'm new to the community but have been reading through some posts, it's relieving to hear other people's experiences.
I will try and keep my story as brief as possible. I'm 30 years old, always suffered with my periods being very heavy and irregular so had birth control for many years. Recently I have had the mirena, the first one worked great, so I had it replaced about 18 months ago. Unfortunately since then I haven't had a proper period, a few days spotting rarely, constant period like belly ache almost daily, pain before and after bowel movement, pain during sex, weight gain of almost 2 stone, up and down moods and bloating. (The coil is sitting correctly)
I went to see a doctor, it's not the first time but others I have seen just fob you off, this one was nice and she listened and understood. She referred me for a transvaginal pelvic US, and the report read 'left ovary just within normal limits at 9.5cm, right ovary has multiple follicles and swollen to 13.9cm indicating PCOS'. Next were the blood tests but everything says normal on the results, FSH 4.8, LH 6.2, testosterone 0.50nmol/l and Free androgen index is 0.80 % which is at the lower end of the range for my age bracket. I know I am no expert but could it be that those readings are abnormal themselves given the other symptoms, no periods and multiple follicles. From what I've read about hormone levels there are many variants with PCOS which makes the condition difficult to understand/diagnose.
Me and my partner aren't trying for a baby, I just needed to get an answer to all the problems I am having, getting close to answers made me feel like I wasn't going crazy! But now I think it's going to be a bit more of a journey. I have asked the doc to refer me to a gynaecologist, so let's see how long that takes.
Thanks for reading, sorry for the essay.