Idk what to do! Sorry it's long

Hi guys, I've recently joined this website to talk to others with pcos and get their advice and Today I need some advice! First I'll tell you my story.

When I was 9 I started my periods (no one was more surprised and scared than me). Starting my periods ruined my childhood and I hated being on, by the time I was 10/11 I started noticing facial hair, and this was no peach fuzz it was a beard. No imagine what that can do to a child who hasn't even started highschool. Obviously I got picked on but I tried not letting it get to me. Eventually when I turned 14 they diagnosed me with pcos from the physical symptoms (obese, hirsutism, acne etc) and the highly tertesterone (idk how to spell lol). In high school my periods were kind of regular but they were heavy and painful until 16 they started to come and go less. That's when the doctor gave me dianette for a year and a half there were no results so I gave up. Then she gave me the combined pill and estrogen pill that improved my acne but gave me horrible mood swings and really tender Breast. So 2 years ago I decided to lose weight and get my life back on track she put me on a pill which I forgot the name of and put me up for 3 months gym membership. I didn't see the results that I wanted so I gave up again. And recently now that I'm 22 I'm being harsh on myself and I want to lose weight and fix myself up I've got an appointment on Sunday and I'm actually so scared idk what to say to this doctor (someone I haven't seen before) this was an advance one I booked I've been ringing for a while. I'm just so scared that he/she will judge me I just want to give up before I even started. I haven't had my period in 3/4 months it's not just affecting me physically but also mentally I'm always having a strop with anyone I'm hardly happy which is sad because I used to be a really bubbly girl to family o try to be the same so they don't notice but some days I can't keep up. I just have no idea what to do or tell the new doctor. I'm so sorry that this post is so long. This is the first time I'm telling the whole story

5 Replies

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  • Write all your symptoms down and be totally honest - weight loss and pcos is very slow going and you do need to dig deep for motivation as we are not standard ladies at all. We do lose weight but it can be a slow process. What sort of diet are you having ? Generally low GI is what is recommended for pcos ladies so cut all white carbs out and as much sugar as poss, also no processed food at all.

    It may be worth trying a different combined pill - I take 2 months on the trot (try 3 months tho) as this reduces the pcos symptoms further, or you can consider the mirena coil as well.

    PCOS is pretty darn common nowadays so don't be embarrassed at all, mention the hair, the weight, mention it all, I would also ask to be referred to an endocrinologist as pcos is their area. You do mention that you have pain too, this is generally not a pcos symptom but is for endometriosis so I an endocrinologist can help on BOTH conditions. Can you take your mum with you or a friend or something so that the GP's do not fob you off.

    Also look at the NICE guidelines as it advises what you should expect so if you go and know what the procedure is then you can stand your ground a bit more. Sadly the NHS is so short of money that they may try to fob you off so you will have to stay focused and be forceful.

    Good luck and DON'T be embarrassed at all

  • I second what Hols969 has said.

    I have the marina coil due to both PCOS and another condition I have, and find this works for me.

    Also, have you thought of joining a group such as weight watchers? I joined last year and have already lost 3 1/2 stone. I also go to the gym once/twice a week, and am very active in that I walk a lot during the week. I also have a Fitbit as it gives you a target to reach every day!

    I know it can be stressful, but please don't give up. Unfortunately for us all it's a lot of trial and error until we find what works.

    Take care and let us know how you get on. There's always someone here ready to listen xx

  • Thank you both it really means a lot! I have joined weight watchers club and I lost 7kg I think which did help. I was thinking of asking on going on metformin but I need to do research on that. Have any of you'd been on metformin?

  • Weight watchers has been great for me. There is also a diet book you can get which is specifically tailored for people with PCOS.

    Metformin is normally prescribed for people who are diabetic. Do you have diabetes? Xx

  • I will look into finding the book.

    No I have nothing else apart from pcos and being big thank god. But I have heard some women on pics have been on metformin and it's been a life saver for them. I will ask my doctor tomorrow and I'll find out xx

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