If anyone could spare the time to have a little read of my blog and questions, advise and also look over some blood results I received today I would really appreciate it. I will try not to waffle. Thanks. I have so many questions but such little energy and such poor health but will write/speak (I have software not a PA!) what I can.
If it helps first I will provide a little bit of background…….
I am severley affected with ill health and currently housebound and capable of very little and very dependent on others. This has been the case since Oct 2010 when my GP signed me off work long term sick (I had during 2010 had shorter periods of sickness off work). For the last 5 years I have not been feeling myself but it was in 2010 when I started to become really ill. I was eventually diagnosed with M.E by the NHS in September 2011 after numerous blood tests came back as ‘normal’ (I now use that term very loosely) including limited thyroid tests and yet I was deteriorating fast as well as gaining an awful lot of weight despite extremely healthy eating. I also have PCOS and because of previous problems with my weight which started when I was a child (despite always leading a healthy and active lifestyle) I think the doctors were quick to point the finger at PCOS combined with stress as reasons for weight gain. I disagreed as I had previously after many years of not being able to control my weight in any way shape or form, went on to lose 15stone; 12 stone of which was in 2 years. I didn’t change anything diet wise other than I was placed on metformin for a few months (I’m not diabetic) which kick started the weight loss. I maintained this weight loss for 10 years until 2008. This is when I felt my body started to unbalance intself. I used to be an extremely active, full of life, confident individual with a good career and always doing for others. Then in 2008 I had a very traumatic year, literally from beginning to end.
Fast forward to 2012 with my health deteriorating even more despite following the ‘treatment’ (another word I use very loosely) plan of pacing for managing CFS/M.E, I refuse to accept to be placed in the bin and send an e mail to join the local M.E support group. Here I discover the work of Dr Petefield and then Thyroid UK.
I eventually got to see Dr P in Dec 2012 who diagnosed me as being hypothyroid with severe adrenal fatigue. He realised how ill I have become and felt I had probably had a thyroid problem since early on and that my adrenals have been similiarly damaged. He explained he thinks I am beyond nutri thyroid or natural dessicated as he feels I have a lot of T4 but very little T3 and what T3 I do have is not being used because of adrenal deficit. (I had previously paid for Genova Diagnostics test in Sept 2012 which also showed high RT3). He suggested bringing the adrenals in line with NAX and then to start T3 with one 25mcg tablet a day.
Long story short the NAX didn’t agree with me so I built up to 11 Nutri adrenals. I didn’t feel comfortable taking 25mcg of T3 straight away as know my body is so sensitive and vulnerable at present so checked with Dr P what I should do. Decided (3 weeks ago) on half a tablet which I reduced to a quarter on two days then one day a half but my reaction was not good and I stopped. I also stopped the 11 NA 2 weeks ago as felt I was becoming toxic. Spoke with Dr P on Fri who said although he wasn’t happy about this it looks like I was going to have to go down the hydrocortisone path to help my adrenals. I mentioned the CT3 method and he said I can either try hydrocortisone cream for 2 weeks and see how I feel (with a view to moving on to tabs) or could give the CT3 method a go for 10 – 14 days then report back to him.
Now I’m confused as I’m wondering as its 2 weeks since I took NA should I repeat the ASI test just to see what state they are actually in? (I last had ASI test at end of Aug 2012) Or should I just crack on and start taking T3 using CT3 method or buy some hydrocortisone cream? I know I need to be doing something as I have been left for so long. I am slightly apprehensive about starting the T3 again and wondered if anyone had been in a similar situation?
Then to add to it my GP was meant to be testing my U&E’s (previous hyponatremia), magnesium, calcium, Vit D, iron and ferritin after along battle of asking for iron and ferritin. I had had my Vit D tested in November and it was low but have been supplementing since end of Oct and I just wondered if there would be any change but she didn’t request it and said it won’t be tested for another 3 months
My results are as follows:
adj calcium 2. 18 mmol/L (2.2 – 2.60)
inorganic phosphate 1.34 mmol/L (0.80 – 1.50)
calcium 2.19 mmol/L (2.20 – 2.60)
albumin 45 g/L (35 – 50)
total prot 72g/L (60 – 80)
globulin 27 g/L (19 – 35)
alk phos’ase 76 U/L (30 – 130)
ferritin 245 ug/l (13 – 150)
Iron 11.6 umol/L (13 – 32)
transferrin 2.47 g/L (2.00 – 3.60)
TIBC 56 umol/l (45 – 70)
% saturation of iron 21 %
Magnesium 0.78 mmol/L (0 .70 – 1.00)
My doctor says my iron is just below ‘normal’ (I think its not in a good way) and said she would prefer me to try to increase my iron intake through diet first. She suggested eating broccoli and plenty of green leafy vegetables. She is aware of my diet and I don't think it possible for me to consume any more vegetables than I already do. I currently take Vit D, Vit C, Magnesium, a probiotic, EFA’s and milk thistle. I was taking a cytoplan multi vitamin but stopped recently.
Am going to post a copy of my results to Dr P but would appreciate any feedback from the ‘excellent font(s) of thyroid knowledge’ on this wonderful site Hopefully I have not provided useless information and have shared some useful information though given the huge amount of fogginess in my brain I would not be surprised!
To those still reading as I know I have gone on, thank you. Your time and precious energy is greatly appreciated.
A tired and wilting Pink Lily who is determined she will bloom once more x