blood test results

[Galaxywhirl]

hi all,

Just got my blood test results after being told last year I had high antibodies (366) but my result as that time was within range with tsh 3.8 and t4 13.8. This time my tsh is 8.9 and t4 is 13.8. They requested I have a routine appointment with the doctor to discuss this which isn’t until the end of February. Will they just tell me to keep an eye on it? Just feeling fobbed off everytime as been suffering alot with different symptoms for a while now!

This is the only results the receptionist could give me as they are not connected to the nhs app so couldn’t even find out reference ranges.

Thank you

[Jaydee1507 Administrator]

You can ask at GP reception to see your results on the NHS app.

Criteria for diagnosis & beginning treatment is 2x TSH results above range, 3 months apart on the NHS.

So you have now had 1 result above range and should retest in 3 months. Book 9am or earlier appointment, fast that morning and no biotin containing supplements for 4-7 days before.

Have you tested vitamin levels and now supplementing them to optimal?

[Galaxywhirl in reply to Jaydee1507]

Thank you for your reply, unfortunately they have changed over systems so can’t do that at the moment, it’s frustrating as I’ve been feeling rubbish for months now, is the doctor really asking me to go to an appointment to say they will re test in 3 months?

[Jaydee1507 Administrator in reply to Galaxywhirl]

I can't predict why you GP wants to see you. You might be lucky and once they have checked what symptoms you have they could start you on Levo, which should be at 50mcgs dose. Do lay it on thick how bad you are feeling.

Have you tested vitamin levels, if not then you could ask GP to do this at the appointment. Ferritin, folate, B12 & D3.

[SlowDragon Ambassador]

Previous post

healthunlocked.com/thyroidu...

What was actual vitamin D test result previously

ESSENTIAL to test folate, ferritin and B12 too

Exactly what vitamin supplements are you taking

Did you get coeliac blood test

Are you now on strictly gluten free diet

[Galaxywhirl in reply to SlowDragon]

They tested all these previously but I have never been given results, with there systems changing over they are not connected to nhs app and it has taken me half a day to get through to them on the phone. I am not taking anything at the moment and not on a gluten free diet, should I start this?

Thank you for your reply

[SlowDragon Ambassador in reply to Galaxywhirl]

Write/email in to surgery and request actual results and ranges

Or test full thyroid and vitamin levels and coeliac tests privately

[SlowDragon Ambassador in reply to Galaxywhirl]

4 months ago you said

All other results be said were normal although he said I would benefit from vit d.

So you needed to see exactly how low vitamin D was and start vitamin D supplement

Find out vitamin D result NOW by ringing receptionist

And folate, ferritin and B12 results if they were tested

Low vitamin D

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly when supplementing

Can test via NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

NHS Guidelines on dose vitamin D required

panmerseyapc.nhs.uk/media/2...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Recipe ideas

bbc.co.uk/food/articles/mag...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

[Galaxywhirl in reply to SlowDragon]

He did! I forgot about that, I will definitely get them to email me the full results.

Thankyou

[DippyDame]

High antibodies indicate Hashimoto's which fluctuates as the thyroid is attacked by the body's immune system. Antibodies come to the rescue and are raised as a result.....your high antibodies were raised during an attack and dropped back after the attack.

TSH of 8.9 is too high and suggests you need levo.

I'd suggest you speak to a doctor ( now or end of Feb!) and ask to be treated with levothyroxine as this is not your first abnormal test and you have multiple symptoms of hypothyroidism

Tick them off on this list and give it to the GP

Symptoms are a huge part of diagnosis but often overlooked in favour of a list of numbers

thyroiduk.org/signs-and-sym...

To quote or much missed advisor "diogenes"/ Dr Johm Midgley....

"For the moment mechanical thinking has traduced medical diagnosis."

It is madness, but many medics are poorly educated in matters thyroid, so we have to learn and self advocate I'm afraid

It's not easy, but don't let them fob you off....you have a genuine health condition and deserve to have it taken seriously by the people who are in place to care for you. Failure to do that is lazy doctoring!!

Before the appointment write a list of all you want to say and ask, insist that you have questions you wish to be answered, if they try to rush you out the door. And consider taking someone with you who can act as a witness, they don't need to say anything!.....a relative, a partner for example

Doctors are flawed human beings like the rest of us so don't be afraid to have your say......be firm but polite and calm and show you mean business

Educate them!!

[Galaxywhirl in reply to DippyDame]

Thank you so much, I will do this.