I am hypopit ( pituitary doesn’t work. Following surgery)
I am so exhausted all the time, in pain and really cold.
I have b12 injections, I take folatea d vitamin D.
I am
Taking 100 levothyroxine and t3 10 mg twice a day.
I didn’t take Levo from morning before but took second dose of T3 midday day before test at 9 am.
My TSH is always really low
0.01 (0.27-4.2)
T4
16.3 (11-25)
T3
5.9 (3.1-6.8)
what do you think any advice?
I have adrenal insufficiency and I am on prednisolone also
FT4: 16.3 pmol/l (Range 11 - 25) 37.86%
FT3: 5.9 pmol/l (Range 3.1 - 6.8) 75.68%
Your TSH is low because you are taking T3. Even if your pituitary was in full working order it would be low because that's what T3 does. It doesn't matter.
Your FT4 is low because you are taking T3. Whether or not that is a problem only you can tell. T4 needs are very personal things.
But, as you left too long a gap between your last dose of T3 and the blood draw - should only be 8 to 12 hours - your FT3 is showing a false 'low' result. Could be that your true level is over-range, even. So, that test doesn't really show you anything much that is useful, I'm afraid.
Exactly what vitamin supplements are you
Please add vitamin D, folate, ferritin and B12 results
Which brand Levo and which brand T3
Do you always get same brand at each prescription
Ft3 falsely low as last dose T3 was too long before test
Day before test split as 3 or 4 doses …..with last 5mcg 8-12 hours before test
Ft4 is rather low
Perhaps trial increase to 112.5mcg daily
Vitamin D 127
Folate 20 scale more than 3
B12 1000 just over range upto 900
Can’t see ferritin
Use Accord only t4
T3 cant remember as I have cut tablets in half and no longer have box
I am getting 20mg T3 and cutting in half can’t cut smaller to take smaller dose. Shall I ask for 5 mg tablets?
I should have taken it 12hrs before test? Not at midday?
If my T3 is too high could it suppress my T4 and make me feel unwell?
Also I am thinking it could be burning through my cortisol?
Thanks for your reply I really appreciate any advice
Many of us get 20mcg T3 tablets as they are MUCH cheaper
Current prices here
healthunlocked.com/thyroidu...
You can cut 20mcg tablets into 1/4’s with sharp craft scalpel
Personally I split T3 as 4 x 5mcg everyday
Many members split as 3 doses and lots find a small dose T3 at bedtime improves sleep
I should have taken it 12hrs before test? Not at midday?
Yes …..last dose T3 at 8-9pm assuming testing 8-9am following morning
the tablets I have currently are tiny and even hard to cut into halves I will ask for some 5 mg
Not sure whether I should reduce t3 back to 15 mg a day
I suspect that T3 tablets the NHS prescribe are tiny to reduce the chances that people will split them. It will be a money-making scheme by Big Pharma.
I use a scalpel to cut my T3. They can be bought with spare blades from Amazon and they aren't very expensive. If you don't want to buy from Amazon then hobby and craft shops might sell scalpels as well.
I've also tried several pill cutters of the type you can buy from pharmacists and from Amazon but I've found that the blades on those sometimes go rusty very quickly and the cutter has to be thrown away. Some of them go blunt very quickly even if they don't rust. But if you find a good pill cutter then make note of the maker so you can buy another one when needed.
If you have hypopituitarism your TSH will always be low. Was your pituitary removed? damaged via surgery?
TSH is one of the hormones produced by a healthy pituitary. There are several others.
The pituitary has two main lobes and they both produce hormones :
en.wikipedia.org/wiki/Anter...
en.wikipedia.org/wiki/Poste...
If you have no pituitary or a completely non-functioning pituitary it is possible that you have low levels of one or more of these hormones.
From the wikipedia page on the pituitary :
en.wikipedia.org/wiki/Pitui...
Quote :
Hormones secreted from the pituitary gland help to control growth, blood pressure, energy management, all functions of the sex organs, thyroid gland, metabolism, as well as some aspects of pregnancy, childbirth, breastfeeding, water/salt concentration at the kidneys, temperature regulation, and pain relief.
It is possible that you need to take more of the hormones from the pituitary than you are currently taking. Have you been given tests of all the hormones produced by the pituitary? As someone who is not a doctor it seems logical to me that all of the pituitary hormones should be tested regularly (e.g. yearly?) in someone with your hormone problems but I'd bet they aren't. I don't think doctors are very good at logic.
they are all being replaced
Mrst1982 What form of adrenal insufficiency do you have (primary/secondary/tertiary)?
What dose of prednisolone are you on? How do you split it across the day, or do you take it all as one dose?
Have you had a Day Curve done to check your dose/schedule?
If you have primary, are you also on fludrocortisone?
Have you had your DHEA-S level tested? If so, what was the result (with range)? Do you supplement DHEA?
I am secondary from pituitary failure I am on prednisolone. I am
On higher dose than I should be due to constant infections, I divide every 6 hours after trial and error.
I have had a day curve I should be on less I am aiming for 5 mg but due to infections I am on between 7.5-10 but I am trying so hard to lower unsuccessfully.
I am supplementing with DHEA, it was undetectable as was testosterone but has improved.
I don’t take FLUROCORTISONE as not primary.
I am pretty clued up on the adrenal insufficiency just need advice on the thyroid as still learning.
Many thanks
What do you think? 
Test results...What do you think
What do my results mean? 😔
What do you think of these results? 
