T3 availability online?: Morning thyroid friends... - Thyroid UK

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T3 availability online?

smilingjane profile image
12 Replies

Morning thyroid friends

I am taking Levothyroxine, (T3) 125 MLS daily. I have been on this dose for around 6 months.

My symptoms are several PEM, dry skin and hair loss.

A year ago before the current regime I was taking T4 -75 mls and T3 -10 ml. My blood tests showed up fine.

However this time last year. , because I have debilitating chronic fatigue, (5 years) I thought I would ask my Endo to change my script.

He wouldn't allow more of T3 and T4 as a daily dose so I thought I would try, (with his permission) an increase in T4 to 125 with no T3.

6 months or so later there was no noticable difference. So I went back to Endo in October to request a return to the 75 ml daily of T4 and an increased 20 ml of T3.

Endo refused because my TSH is 0.01. he said if anything I should reduce my 125 of Levo to 100.

So. I am wondering what to do next.

Do I look for a new endo? Accept that 0.01 is too low?

Maybe my PEM and chronic fatigue is nothing to do with my thyroid meds.

I also take a therapeutical, (tiny) dose of Buprenorphine for Restless Legs and am aware that may affect my HPA Axis and the effectiveness of my thyroid meds absorption.

The reality is though that I just don't know.

I haven't put my blood results down because I haven't the energy at the moment to sort them out.

The T4 and T3 however are in sinc' and around three quarters of the way along the range.

I am wondering whether to source my own T3 and 'go it alone'

I am aware of Tom Robinson's books and thought of trying T3 only however it looks too complicated for me to use his system.

So I thought if I could buy some T3 online I could try the T4 and T3 combo myself.

Unless anyone out there knows of a private endocrinologist that is prescribing T3.

Apologies for the long post.

Ps. I take high dose Vit D. Thorne B, B12, vits. SI B12 and Selenium. Along with Ubiquinone. Lions Mane and Ashwsanger. My Folate and iron levels are fine.

Jane 😊

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12 Replies
MEguylol profile image
MEguylol

Have you also been diagnosed with Chronic Fatigue Syndrome (CFS)? This has PEM and constant fatigue.

smilingjane profile image
smilingjane in reply toMEguylol

Yes. I was diagnosed with ME/CFS in 2020

tattybogle profile image
tattybogle

just in case your request attracts the attention of scammers ...please make sure you have read this post carefully : healthunlocked.com/thyroidu... purchasing-thyroid-and-other-medication-without-prescription-please-be-wary-repost

smilingjane profile image
smilingjane in reply totattybogle

Thanks Tatty will do.

greygoose profile image
greygoose

Difficult to suggest anything without seeing the actual numbers. But I would say that your ferritin is probably not fine if you have Restless Leg Syndrome, because that is often caused by low iron/ferritin. And if they are low, that will cause a lot of fatigue.

And your folate may be 'fine' but just taking B12 in isolation is not a good idea because the Bs all work together and need to be kept balanced. So a good methylated B complex would probably be a better idea.

Do you take magnesium and vit K2-MK7 with your vit D?

smilingjane profile image
smilingjane in reply togreygoose

Hi Grey goose

My b test results in February 2024 are as follows;

Ferritin 176 - (30 - 650)

Free T 3 6 (3.1 - 6)

T4. 14.9 (12 - 22)

TSH. 0.135 (0.27 - 4.2)

My latest tests. ) October 2024:

Ferritin 182 (30 - 332)

Free T3. 4.4 (3.31 - 6.8)

T 4. 17.4 (12 - 22)

TSH. 1.131 (0.27 - 4.2)

In the Feb' tests I was taking 75 MLS of T4 and 10mls of T3.

In the October tests 126 of T4.

Thank you for looking at these for me

🙏🏼

smilingjane profile image
smilingjane

Hi GG Yes I forgot to put mag' and D3 with K2 on the list. Also Solger and gentle iron every other day

I take Thorne methylated B complex.

Will hunt for my b.test results and pop them on.

😊

greygoose profile image
greygoose in reply tosmilingjane

Vit C with the iron?

Your ferritin could be a lot higher, given the range.

FT4: 12.2 pmol/l (Range 10 - 19.8) 22.45%

FT3: 4.4 pmol/l (Range 3.1 - 6.8) 35.14%

According to your latest test results you are very under-medicated! Not surprised you're tired. I would say you need an increase in dose, starting with the T3.

smilingjane profile image
smilingjane in reply togreygoose

Thank you GreygooseMy Endo said no though!

I am contemplating buying some.

greygoose profile image
greygoose in reply tosmilingjane

Endos shouldn't be allowed to treat hypo! They know nothing about it.

Before parting with your hard-earned cash, check with a member of admin. There are a lot of scams going on at the moment!

smilingjane profile image
smilingjane in reply togreygoose

Thanks GG. They have said I can check with Admin.

helvella profile image
helvellaAdministrator in reply tosmilingjane

By all means check with admins. Choose whoever you wish.

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