Advice after GP appointment: I had an NHS blood... - Thyroid UK

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Advice after GP appointment

MushroomRisotto profile image
8 Replies

I had an NHS blood test last week (full test from Medichecks earlier in the month, results in my profile). TSH was 4.64 (range 0.55 - 4.78). T4 not checked, presumably as TSH in range (just).

I'd had my Medichecks results added to my GP record and asked for an appointment to discuss, once they'd had my NHS result. All appointments are by telephone.

I asked for a levothyroxine increase from 50mcg to 75mcg. GP was very reluctant, saying she didn't want to "over-medicate" - I'm clearly under-medicated at the moment. Didn't want to hear about T3 level, which is very low, or about getting TSH down to below 2. Wasn't sure why I wanted to discuss B12 level, as it was "normal". Agreed that ferritin was "a bit low". With a bit of persuasion, agreed to give a trial of 75mcg (thanks to this board for suggesting that word - trial - as it seemed to help) with blood test again in 6 weeks, which will include B12 and iron.

I found her attitude dismissive and unhelpful. I was already feeling stressed and anxious (other health issues going on with a family member) and the idea of asking for other tests, such as coeliac or PA just went out of my head. I did ask her whether she thought it would be useful for me to supplement B12 and ferritin in the meantime, as I don't want to wait for another 6 weeks - she said she couldn't see why not and I should take an over the counter multivitamin with iron...

To try and keep my stress levels down, I feel I need to focus for the moment on what I can take control of myself. As far as I can see, that would be supplementing B12, adding a vitamin B complex, and supplementing iron, following the recommendations in replies to my earlier post, and getting a private test of TSH, T4 and T3 at roughly the same time as my next NHS test. But any further advice or comments would be welcome, either about supplementation or about how to have a more productive GP consultation. I can be quite assertive normally, but felt quite brow-beaten! I will try and get an appointment with a different GP next time, but my practice doesn't make it easy to choose.

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SlowDragon profile image
SlowDragonAdministrator

With a bit of persuasion, agreed to give a trial of 75mcg (thanks to this board for suggesting that word - trial - as it seemed to help) with blood test again in 6 weeks, which will include B12 and iron.

well done for sticking to your guns

As far as I can see, that would be supplementing B12, adding a vitamin B complex, and supplementing iron, following the recommendations in replies to my earlier post, and getting a private test of TSH, T4 and T3 at roughly the same time as my next NHS test.

Perfect plan

Medichecks test results October 2024

TSH 4.4 (range 0.27 - 4.2)

T4 16.3 (12 - 22)

T3 3.3 (3.1 - 6.8)

Thyroid peroxide antibodies 369 (range 0 - 34) - so definitely autoimmune

Which brand Levo are you currently taking for 50mcg

Folate 8.6 (7 - 35)

Vitamin B12 44.3 (37.5 - 187.5)

Vitamin D 148 (50 - 250) - have been supplementing 1000 IU for several years.

Ferritin 27.3 (range 30 - 332)

Yes, I am veggie and have been for many years, which would make it even more impractical to add enough dietary iron.

retest FULL iron panel 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 5-7 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

Look at increasing iron rich foods in diet

Eating iron rich foods eg pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

healthunlocked.com/thyroidu...

Posts discussing Three Arrows as very effective supplement - derived from meat….so you may not consider it suitable

Great replies from @FallingInReverse

re ferritin and Three arrows

healthunlocked.com/thyroidu......

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Great reply by @fallinginreverse

healthunlocked.com/thyroidu...

Ferrodyn supplement

healthunlocked.com/thyroidu...

MushroomRisotto profile image
MushroomRisotto in reply toSlowDragon

Thanks - lots to look at there on top of what you sent me before. And thanks for the positive words - the "perfect plan" is based completely on what I've read here

MushroomRisotto profile image
MushroomRisotto in reply toSlowDragon

Oh, and the Levo is currently Accord

Sleepman profile image
Sleepman

Bonkers to have trial when resultsxand symptoms show you need more. Well do though.Hopefully dose increae will make you feel better.

T3 levels may still swing about. It is only 1 result you have. Hopefully levo on its own is enough.

MushroomRisotto profile image
MushroomRisotto in reply toSleepman

Agreed! I used the word trial when it seemed she wasn't at all positive about increasing the dose - I'd seen suggestions on here about that using that wording when GP seemed reluctant. It worked anyway. I'm hoping that supplementing B12 and ferritin will help conversion to T3

SlowDragon profile image
SlowDragonAdministrator

Accord don’t make 25mcg

So either get extra 50mcg tablets and cut in half to get 25mcg

Or cautiously try different brand…….generally best to avoid Teva brand

Many people find Levothyroxine brands are not interchangeable.

Most easily available (and often most easily tolerated) are Mercury Pharma or Accord

Mercury Pharma make 25mcg, 50mcg and 100mcg tablets 

Mercury Pharma also boxed as Eltroxin. Both often listed by company name on pharmacy database - Advanz

Accord only make 50mcg and 100mcg tablets. Accord is also boxed as Almus via Boots, 

Wockhardt is very well tolerated, but only available in 25mcg tablets. Some people remain on Wockhardt, taking their daily dose as a number of tablets 

July 2024

Crescent levothyroxine. Dosages: 12.5, 25, 50, 75, 100

(Not yet known if all approved dosages are or will be available).

Excipients: lactose monohydrate, maize starch, croscarmellose sodium, gelatin and magnesium stearate.

Lactose free brands - currently Vencamil or Teva

Vencamil is lactose free and mannitol free. originally only available as 100mcg only, but 25mcg, 50mcg and 75mcg tablets became available Sept 2024

Prior to March 2023 Vencamil was called Aristo

How to get Vencamil stocked at your local pharmacy

healthunlocked.com/thyroidu...

Posts discussing Vencamil

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu....

Teva makes 12.5mcg 25mcg, 50mcg, 75mcg and 100mcg

Many patients do NOT get on well with Teva brand of Levothyroxine.

Teva is lactose free, but contains mannitol as a filler instead of lactose, which seems to be possible cause of problems. Mannitol seems to upset many people, it changes gut biome 

Helpful post about Teva

healthunlocked.com/thyroidu...

Posts that mention Teva

healthunlocked.com/search/p...

Teva poll

healthunlocked.com/thyroidu...

Hillcross brand

This is a box, rather than a brand. 50mcg and 100mcg are Accord brand….but beware 25mcg is Teva brand

Helpful post about different brands

healthunlocked.com/thyroidu...

MushroomRisotto profile image
MushroomRisotto in reply toSlowDragon

So far my pharmacy has supplied Accord/Almus, Mercury and Teva (the latter 2 when I was on 25mcg). I can't say I noticed any difference, although looking back at the dates on the boxes, it was while I was taking Teva that there was no difference in my T4 levels - correlation only, but I'll avoid it anyway, given your comment about gut biome. My new prescription is on the NHS app and GP has asked for a one off of 50mcg (84 tablets) and a separate repeat of 25mcg (28 tablets). No idea why the different quantities which don't make sense to me at all. I will discuss with the pharmacist and say that my preference ongoing would be to stick with Accord or Mercury and not change from now on. Not sure though how using Accord and splitting will work without coooperation from the GP as they'd need to write a different prescription and wondering how people manage that.

SlowDragon profile image
SlowDragonAdministrator in reply toMushroomRisotto

Not sure though how using Accord and splitting will work without coooperation from the GP as they'd need to write a different prescription and wondering how people manage that

See how you get on with 25mcg (just don’t accept Teva brand and this includes Hillcross- 25mcg is Teva )

Mercury Pharma or Wockhardt or Vencamil are all well tolerated by many people

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