Apologies if some of. the following information is duplicate from my previous other. posts.
Over the last 18 months my Thyroid blood tests have shown the following results . I’m not on any treatment and started with symptoms 2 years ago or so with weight loss, fatigue, temperature sensitivity and brain fog.
April 23
TSH O.01 (0.34 - 5.6)
T4 13.2 (7.5 - 21.1)
T3 4.2
Nov 23
TSH 4.73 - Hospital Test No range given
T4 8.8
T3 5.1
TPO antibodies 673
Feb 24
TSH 6.09 (0.34 - 5.6)
T4 10.5 (7.5 - 21.1)
April 24
TSH 4.89 (0.34 - 5.6)
T4 10.7 (7.5 - 21.1)
Dr confirmed I have a Thyroid nodule which after a number of ultrasounds has been confirmed as benign.
The issue is, I still don’t feel myself, at all, my energy levels are my main issue and temperature sensitivities. Prior to all of this starting I had more energy . I was a regular gym goer and every night after work would be out walking/running or the gym. I’m pushing to do a few classes, but it’s so difficult both in the class and then once home. Im completely burnt out. I have never struggled like this with fatigue prior to these physical changes.
Now that my TSH levels have returned to normal range. Do the high TPO antibodies indicate that I have an autoimmune condition or could the high TPO antibodies result been because of my low TSH.
I have seen an Endocrinologist once prior to all my tests being conducted.
His last letter mentioned I have gone from sub-clinical hyperthyroidism to sub-clinical hypothyroidism
Has anyone gone through anything similar please that can share their experiences.
I am now taking Vitamin D + K3 oral spray to pick up any vitamin deficiencies and I eat a reasonably healthy diet and I take plenty of exercise and do resistance training.
Just want to get back to my old self.
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CarolineCaroline
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This is absolutely typical of hypothyroid autoimmune disease. Extremely common to initially start with transient hyperthyroid type results (as thyroid cells break down under autoimmune attack releasing excess thyroid hormones)
This is not true hyperthyroidism.
Bloods then swing to be increasingly hypothyroid, which is where you are now
How low was vitamin D
How much vitamin D are you taking
ESSENTIAL to also test folate, B12 and ferritin, these are also likely low
Low thyroid hormone levels leads to LOW stomach acid and poor nutrient absorption, with low vitamin levels as direct result
ALWAYS test thyroid levels early morning, ideally before 9am, only drinking water between waking and test
This gives highest TSH
Important to maintain OPTIMAL vitamin levels
Starting levothyroxine - flow chart
Two tests with TSH over 5 and symptoms and high thyroid antibodies GP could/should start you on levothyroxine
Thank you. I am very grateful to you for taking the time to respond in detail to my post.
I have checked my Vitamin D levels
Vitamin D3 61 (60 - 150)
Vitamin D 74 (70 - 150) Nov 23
I have been taking D3000 + K2 the Better for you oral spray
These are the blood results over last 18 months for
Serum Folate level
20.0 (3.1 - 19.9) Feb 24
7.7 (3.1 - 19.9) March 23
Serum Vitamin B12
316 ( 110 -914) March 23
631 (110 - 914) Feb 24 after taking D3 supplement
Serum Ferritin Level
Result 52.0 (10.0 - 180)
Result 53.0 (10.0 - 180.0)
As I have currently only had one TSH test result over 5.0.
Does this mean it unlikely that I will be offered medication. If I stay in range then will it be a waiting game until another TSH result over 5.0.
I am going to approach my GP for a coeliac blood test and then I can start changing my diet to Gluten free. I just want to find some way of feeling my “normal” once again.
Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances.
Most common by far is gluten. Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
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