So I’ve just spoken to the gp and I have to say it went better than I thought.
Firstly I don’t have coeliac disease,there’s slight inflammation there,so she wants me to take omeprazole for a few months,it said in the report certain medication can cause this.
I have Gilbert’s syndrome,or so I’ve been told,my liver and kidney bilirubin always shows slightly high so she wants me to do a test to confirm this,first time anyones even suggested that!
Vitamin D and blood sugar tests aren’t back yet but I already have my private vitamin d test to know it’s fine.
The big one THYROID!
I’m on the list for the endocrinologist and have been since last March,I’ve to hand a copy of the private blood tests in and she’s gonna email them over to them,I’m in complete shock🤦♀️I said about my T3 being low and she said that they don’t really know all the ins and outs of that or liothyronine and that it’s better to wait and see what endocrinology come back with,I said to her,at least you’re honest!
I finally feel a bit more positive🙏
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PrincessAnnie
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Thank you for your knowledgeable reply again,I did stress I wasn’t keen to take them as I’d read up about stomach acid,this has just confirmed I won’t be taking them🙏
Levothyroxine gave me intense palpitations but many people find that it's fine for them. Not many who take levo and feel well will be searching the internet for help/advice.
Few GPs have knowledge of how best to diagnose/treat patients who've hypothyroidism. Even when my (before I was diagnosed) TSH was tested my GP phoned to tell me that I had no problems at all. He did not know what a TSH of 100 meant, i.e. that it was too high! I cried because I was so very unwell.
If these guidelines work in your favour push for 25mcg dose increase in levothyroxine (even if you only increase initially by 12.5mcg per day ….wait 6 weeks then retest )
guidelines on dose levothyroxine by weight
Even if we frequently don’t start on full replacement dose, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose
Consider starting levothyroxine at a dosage of 1.6 micrograms per kilogram of body weight per day (rounded to the nearest 25 micrograms) for adults under 65 with primary hypothyroidism and no history of cardiovascular disease.
Traditionally we have tended to start patients on a low dose of levothyroxine and titrate it up over a period of months. RCT evidence suggests that for the majority of patients this is not necessary and may waste resources.
For patients aged >60y or with ischaemic heart disease, start levothyroxine at 25–50μg daily and titrate up every 3 to 6 weeks as tolerated.
For ALL other patients start at full replacement dose. For most this will equate to 1.6 μg/kg/day (approximately 100μg for a 60kg woman and 125μg for a 75kg man).
Replacement therapy with levothyroxine should be initiated in all patients to achieve a TSH level of 0.5-2.0pmol/L.
NHS England Liothyronine guidelines July 2019 clearly state on page 13 that TSH should be between 0.4-1.5 when OPTIMALLY treated with just Levothyroxine
Note that it says test should be in morning BEFORE taking levothyroxine
I weigh 8 stone,no idea how much that is in kilo,oh don’t worry I’ve all that ready should they prove to be unhelpful,I had it all ready for the gp this morning🤣🤣
My blood sugar results weren’t back though,do you think if there’s diabetes it can have an affect,I know it’s one of the things to be ruled out on guidance for prescribing T3.
I’m not too sure which is why I’ve asked SlowDragon .I just know it’s one of the things that had to be ruled out on the nhs England guidelines before prescribing liothyronine.
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Update on “Must my NHS GP prescribe Levothyroxine?”
Update on my GP visit
How do you get your GP to do basic tests?UPDATE***** it worked! 
GP appointment update
