Constant fatigue

[mirsten]

Hi, so over the last year now i have been going back and fourth to the doctors (local GP 1 who i see regularly) with tiredness and increased sensitivity to cold. i have had most blood tests done now, things like my thyroid have been check diabetes all your normal sort of ones and they have all come back clear.

In December i was then having shaking episodes along side the fatigue which i take naps for and go to bed early as a 21 year old university student its not normal. However in December it was noted that my neutophil count had dropped so it was monitored, i was then passed on to hematology (hospital doctor) where further tests have been run still no clue and i am still being monitored.

In the interim some new symptoms emerged like excessive thirst resulting in lots of peeing i also had constant nausea which would come and go along with stomach pains but my ultra sound has come back saying my abdominal organs are all fine and hunky dory!

Recently i have been going gluten free this has relieved the symptom of feeling nausea's but i still have everything else going on.

When i was tested for celiac i was already on a gluten free diet, as the doctor (different local GP 2) i saw to get the test done said i didnt have to include gluten back into my diet i chose not to, i have since asked my doctor in hematology to find out if its worth having a retest but include gluten back into my diet this time?

My thyroid is going to be re-tested but other wise the only thing left re low neutophil count is to have a bone marrow test carried out which neither me or my doctor want to do if we can avoid.

In addition to this i have been told that i have PCOS despite not having any cysts but have blood work to account for it as well as irregular periods. I have been seen by endocrinology about thirst and frequent urination all the bloods came back clear there too.

My local GP 1 is thinking it could be chronic fatigue, or some other sort of IBS bowl problem as this is the only other route we haven't explored yet.

I eat very healthily have plenty of fruit and veg dairy meat I try and exercise regularly if i'm not tired then i will go to the gym for about an hour mix of cardio and light weights, if i'm tired then i will go for a gentle walk but more often than not ill have to have a nap at some point in the day and ill be tucked up in bed by 9:30 most nights.

If anyone has any ideas what else i could try or suggest having looked into it would be greatly appreciated as me and my family are starting to struggle with what we can try.

[TSH110]

Post your thyroid function results with ranges so members can comment. You are entitled to have copies of them from your GP Surgery say you want them for your own records if there is any resistance

[mirsten in reply to TSH110]

Shall do thankyou!

[shaws Administrator]

A lot of your symptoms seem hypothyroid but unless your TSH falls within a certain range you will be given a diagnosis other than a thyroid gland problem. Once upon a time the diagnosis was through the patients' clinical symptom.

Ask for a full Thyroid Function Test which should include TSH, T4, T3, FreeT4 and Free T3 plus antibodies test. Some labs wont do them all if the TSH is 'in range'. You may have to get these privately. At least you will know if you are deficient in the ones GP hasn't done. Also ask for a Vitamin B12, Vitamin D, iron, ferritin and folate as we are usually deficient and they can cause problems too.

Get a print-out of your blood tests results for your own records and post them for members to comment. You must put the ranges as well ad the results. You are obviously not taking medication yet, so if you were diagnosed as hypothyroid or hashimotos, when you are taking medication you don't take your medication before a blood test - take it afterwards and have the earliest possible appointment.

Female problems are rife with low thyroid as is PCOS and a young japanese woman who had multiple PCOS did not need an operation as all the cysts disappeared by taking a thyroid hormone replacement.

Regards

[gabkad]

Have they done antibody titres for viral infection? Epstein Barr, Cytomegalovirus.....etc. Some of these can stick around and make a person feel terrible for a long time.

[mirsten in reply to gabkad]

yup in january/february i had all the viral infections tested for along with stuff like ANNA all came back clear

[gabkad in reply to mirsten]

And you need to get those tests done that were suggested by shaws. The vitamins and minerals, because even if you eat well, there may be deficiencies in absorption. Are you regularly taking a multivitamin/mineral tablet? I don't know if you've got it in England, but something like Centrum Forte? This has minerals in it as well.

[sandi]

re bone marrow test

Not sure why your doctors are reluctant to do this as it really isn't so bad. I waited a few years with a low neutrophil count then eventually had the bone marrow test done. Yes it can be a tad painful but the doc who did mine was happy to give local anaesthetic. It might put your mind at rest on one symptom?

[halifaxlass]

Hi,

I have chronic tiredness & get very shaky along with lots of other symptoms such as muscle weakness, just been diagnosed & started treatment for growth hormone deficiency. I blamed all symptoms on thyroid but have been told by the hospital that GH will have failed before thyroid. If you check the Pituitary Foundation website there's some very good information,

Best wishes x