Hi, I have high HDL and normal LDL. Total levels over 6. Used to be very low cholesterol before half thyroidectomy over 15 years ago due to multi nodular goitre. Now on 75mg Levo. I am also type 2 diabetic for 30 years. Also low ferritin approx 30 despite taking iron daily.
Recently given a statin which immediately made me feel like I had been run over by a bus. GP agreed I should stop but meanwhile due to long waiting list times in this area suggested I pay to see an endo who will test T4 and T3. My TSH is in the lowish/normal range and of course T4 and T3 never tested now . I understand Hypothyroidism can cause high HDL but doc says TSH levels normal so can't be...
I think I need to invest as felt so dreadful on the statins.
Any recommendations would be great. Thank you
ps aware of Prof Russell Jones in Guildford
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debfinch
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debfinch, 'doc says TSH levels normal so can't be...'
Can you post your most recent thyroid test results so that we can see exactly what your doc thinks is normal?
'suggested I pay to see an endo who will test T4 and T3. '
You don't need to pay an endo to see what your T4 and T3 levels are. You can get those tested yourself, which will be cheaper. thyroiduk.org/testing/priva...
Before considering booking any consultation you need FULL thyroid and vitamin testing
Are you on Metformin, this can lower TSH
75mcg is low dose levothyroxine, unless extremely petite
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
Which brand of levothyroxine do you take
Do you always get same brand
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease or when under medicated
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Testing options and includes money off codes for private testing
As I understand it, I think the list is just a list of endo's (both private and NHS) where members have had good experiences but not necessarily recommended by Thyroid UK? Maybe SlowDragon would confirm?
I take 500mg x 4 daily metformin for about 25 years max dose for probably 15 years. Now two other meds as well, 100mg x 1 daily 5mg linagliptin and Dapaglilozin 10mg x1 daily.
75mg levo daily, various brands given but always refuse TEVA
Thanks for your help. I think I will seek private blood tests as suggested then think about a private endo appointment.
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Very sick, recommendations for graves endos please.
Endo in Shrop/West Midlands?
Flip flopping TSH and recommendations for private endo please
HAMPSHIRE THYROID PATIENTS - I HAVE A NEW, GOOD NHS ENDO
Endo Recommendation please?
