I have posted before on my daughter but wasn't sure if i had to post there or a new post. Apologies if i have it wrong. You were all helpful last time. Thanks again
After a high cortisol result from Blue Horizon we finally managed to get the doctor to do a 24 Hour urine cortisol test. I have spent a while googling but no wiser. I wondered if anyone here had any input they could give me. She is in range but are these results ok does anyone know? I will attach her previous blood results here too in case they are helpful
Serum cortisol level 230 nmol/L [140.0 - 700.0]
The Doctor generally puts no further action despite knowing that she feels rubbish still. She was diagnosed with unilateral PCOS at Christmas but has normal periods generally. She takes Myo-inositol already. Thinking we need to see someone private as don't seem to be getting anywhere GP wise and was told no referral as results seem ok. She cant sleep well, mood is low, she aches, eats very healthily and exercises four to five times a week but is still gaining weight, on top of other things.
Her HbA1c is 37 mmol/mol [20.0 - 41.0] A few months before this it was 39. GP says no issues, I am worried she is in the top of the range. They did do a fasting bloods this week to see but no results back yet for those. Should we be worried about this level?
Her Serum folate level is now 8.4 ug/L [4.0 - 27.0] after being at 2.2 and then put on prescribed supplementation. This still seems the lower end but maybe takes a while to get back up?
Nhs Results below were the same week (March)as Blue Horizon results attached above and have differences between TSH and B12 levels. Blue horizon ones seem higher on TSH but lower on B12, with ranges around the same.
Serum urea level 6.3 mmol/L [2.5 - 7.8]
Serum sodium level 140 mmol/L [133.0 - 146.0]
Serum potassium level 4.9 mmol/L [3.5 - 5.3]
Serum creatinine level 65 umol/L [45.0 - 84.0]
ACUTE KIDNEY INJURY 0; AKI Stage 0 -report without Alert (6)
Serum vitamin B12 level 441 ng/L [130.0 - 800.0]; Samples should not be taken from patients
receiving therapy with high biotin doses
Appreciate this is a lot of info and questions. Just trying to find my way through it all. My head is bursting with all the information i have tried to google.
Many thanks
Karen
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Joliplace
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Thank you for such a complete post. Sadly most of us start out not knowing how to protect our thyroid function. Here in the U.S.A. far too many doctors treat as though they know less than what you all do. Again thank you!
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and add a separate vitamin B Complex after a week
Then once serum B12 is over 500 (or Active B12 level has reached 70), she may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when she stops vitamin B complex, might want to consider taking a separate methyl folate supplement and continue separate B12
Come back with new post once got iron/ferritin results
Test early morning and fasting. Don’t eat steak or similar night before test
She has finished her 12 weeks of Folate from the GP. Her levels above of 8.4 are after this when we asked to check if levels had increased. They say now sufficient so no more prescribed doses.
They wont comment on Vitamin D levels. Every time she gets a telephone appointment its a different dr and they disagree and say nothing wrong, just lose weight when she has actively been tracking foods and exercising most days.
I commented on BH results previously regarding your daughters PCOS. This post states a 24 hour urine collection but I cannot see results, only serum cortisol which is a blood test.
Do you have further results? Urine is usually measured in mcg/24hrs.
This has confused me too! Which is why i posted again as i couldn't find out why it was like that. I've been back into her GP tests and she had a fasting glucose bloods done last week at the exact time of the printed cortisol result so I am wondering if its got mixed up and maybe the urine hasn't come back yet. It was dropped off last Monday. There is an email address on the results of the person that did the test. I am not sure if we are allowed to email to question this stuff but i may do as its such a hard thing to speak to the GP and then its always a different one each time.
Hi ,It appears that she is having a weak thyroid and that being compensated by the high cortisol and hence high weight , most of the iodine in body being shifted to healing of pcos and not thyroid .
Thyroid supplements like iron and may be meds will help but require further testing
Impressed about how extensive the lab work profile was. Wish I had been give that extensive a profile before I was misdiagnosed and presented a diagnosis that was wholly wrong and was made so very sick!
I guess we need to book a private appointment as the GP says everything has been checked and in ranges so no issues. Are there any other tests that may be worthwhile before we do that?
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Active T3 test and 24 hour urine test.
24 hour Adrenal test (saliva) - High cortisol
blood results back - feeling worse than ever
Help with results please. always tired and feel like s**t feel depressed and getting worst
Is it useful to determine thyroid hormones T3 and T4 in 24 hour urine?
