New Hashimoto’s diagnosis and autoimmune paleo ... - Thyroid UK

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New Hashimoto’s diagnosis and autoimmune paleo diet, any advice?

StellaTed profile image
3 Replies

The last few years I have experienced increasingly bad hypothyroid symptoms, then in July 2021 I went into thyrotoxicosis and became really unwell. I was signed off work and unable to do most things for myself. The last couple of months have been about rebuilding my stamina and phasing back into work, but I still experiencing the complete list of hypothyroid symptoms. Here are my latest blood test results via Thriva from October 2021:

TSH: 3.24mIU/L (0.37-4.2)

FT3: 4.8pmol/L (3.5-6.5)

FT4: 14.7pmol/L (11.5-22.7)

T4: 113nmol/L (66-181)

TPO AB: 39.4kIU/L (34<)

TgAB: 191.5kU/L (115<)

Vitamin D: 88nmol/L (50-200) (previously deficient at 24nmol/L in April and supplementing since)

Ferritin: 36ug/L (10-291) (recently started on liquid iron, rechecking levels shortly)

B12: 148pmol/L (37.5-150)

I have since seen a private doctor who specialises in thyroid treatment, and have been prescribed NDT 1/2 grain (30mg) daily which I will be starting soon. He has also asked me to follow the autoimmune paleo diet. Looking into it, it seems extremely limited and would be a huge overhaul to achieve. I have read conflicting evidence online over whether cutting out all these foods can actually help, and a lot of people trying to make money by “advising” you how to do it. It’s also extremely hard to tell which interventions are making a difference to how people feel, particularly if they are starting medication and a new diet alongside other lifestyle interventions at the same time as well.

I think what I’m after is to hear from anyone who has been in a similar situation, done this diet themselves, and whether they felt it helped them or not. There is so much conflicting information out there!

If I am confident it is the right decision, I will commit 100% to the diet, but I think I need some reassurance first!

Thanks in advance, I have learned alot reading everyone’s posts the last few weeks.

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StellaTed
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SlowDragon profile image
SlowDragonAdministrator

You also need folate tested

Many many members find strictly gluten free diet helps or is essential

Slightly lower number find strictly dairy free is beneficial, though often find this improves after year or two on strictly gluten free diet

StellaTed profile image
StellaTed in reply to SlowDragon

Thanks for your response! It’s encouraging to hear many people find going gluten free helps, I am keen to try this regardless, but still need to decide whether going full AIP diet is worth it.Folate result:

11.5nmol/L (8.83-45)

SlowDragon profile image
SlowDragonAdministrator in reply to StellaTed

What vitamin supplements are you currently taking

As you’re supplementing vitamin D, are you also taking magnesium and vitamin K2 mk7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

2 good videos on magnesium

healthunlocked.com/thyroidu...

Vitamin D and Covid

Notice how much vitamin D many of these medics are taking

vitamind4all.org/letter.pdf

Test vitamin D twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7 - one spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

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