Spoke with doctor . Told of symptoms, feel getting worse etc. He said I was in range 3 months ago... I said yes but feeling alot worse. Asked to be tested for all list suggested..
TSH
Ft4
Ft3
Thyroid antibodies
Vit d
B12
Folate
Ferrtin
. Said can not test for ft3 or antibodies as that was tested previously.
Got 940 on Saturday.
Well that's a good start - esp getting a vit D test. If your antibodies have ever previously been recorded as high, you don't need to re-test: it means you've got Hashi's - which doesn't go away and can't be cured but does mean that your antibodies go up and down as they please - so no point re-testing.
Awe so with hashis can you have good and bad days with it , if go up and down . Last time said the levothyroxine treats the hashi and under active thyroid so didnt need anything .
I've been taking high vit d still getting pains in legs and arms to the bone . Cos that's what they thought and my vit d was low last time tested
Hashi's is by far the biggest single cause of hypothyroidism - over 80%. The right dose of levo will treat your hypothyroidism - so that it's possible to feel properly well once the dose is right - but can't actually "cure " the Hashi's. Going (strictly) gluten-free may help (even if not coeliac) - and some find dairy-free helps too. SlowDragon and greygoose give great advice re Hashi's and may pop up in a bit
Pain in legs is always a sign to me that I'm under-medicated ...
Post the results and lab ranges when you get them and we'll know for sure 
Sleepyachy
I've been taking high vit d still getting pains in legs and arms to the bone
Are you also taking magnesium which is needed to convert D3 into it's usable form?
And Vit K2-MK7 to direct the extra uptake of calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems?
You can have good and bad days, of course, but they would have nothing to do with the antibodies. Antibodies don't cause symptoms or do any harm, they are just an indication that you have Hashi's.
With Hashi's, the immune system attacks the thyroid in the mistaken belief that it's the enemy. The dying cells dump their stock of hormone into the blood, causing the FT4/3 to rise sharply, and the TSH to drop. But, also, the fractured cells leak Thyroid Peroxidas and Thyroglobulin into the blood, where they shouldn't be. So, that's when the antibodies come along, to clean up the blood.
We call these sudden rises in hormone levels 'Hashi's 'Hyper' swings' - or some people call them Hashi's flares, which tends to get confusing.
. "so with hashis can you have good and bad days with it , if go up and down"
Hashimoto's will cause fT4 / fT3 and TSH to go up and down.
TPOab 's (the result of Hashimoto's) will also go up and down.
There is NO treatment for this part of the problem.
Hashimoto's eventually results in low fT4 and low fT3 levels (hypothyroidism) due to *gradual destruction of thyroid tissue. (* see below for explanation.)
The resulting ~Hypothyroidism is what is being treated by the Levo ( by replacing the missing T4)
. "Last time said the levothyroxine treats the hashi and under active thyroid so didnt need anything ".
So he means you didn't need anything to treat the Autoimmune cause (hashi's )... because there is no known treatment for that.
* the immune system (stupidly) attacks your thyroid and destroys a little bit of it.
As that bit is damaged it dumps all the hormone in it into the blood all at once.. fT4/3 go up...... you might notice and feel some symptoms rather like mild hyperthyroidism, (but not 'true' hyperthyroidism because in true hyperthyroidism the thyroid is pumping out too much T4 and T3 continuously.. But in hashi's it just dumps what that bit of thyroid had in the basket, and then once that gets used it stops)
The TSH will fall in response to the extra fT4/3 .
You will now have less functioning thyroid tissue , so you will now produce less T4 /3 than before. so fT4 /3 will go down to lower than before and TSH will rise.
his will be repeated and you will eventually get TSH over range.. this is called 'subclinical hypothyroid'
As more time goes by and more damage is done you may eventually end up with T4 under range too.... this is called 'overt hypothyroid'
Hashi's often starts with a period that looks like mild hyperthyroidism, in symptoms and bloods. then slowly over a year or so goes hypothyroid in symptoms and bloods. and we get diagnosed and treated with Levo.
But the damage can also continue happening even when we are on Levo.. and so we quite
often get blood result and symptoms that make no sense according to the dose we're taking.... it they hypothyroidism was from a different cause you would expect things to stay more stable than they do with hashimoto's.
They do not know what causes the immune system to attack the thyroid ,and they do not know how to stop it.
The TPOab antibodies are not attacking it ... they are simply the evidence that it has been attacked.... they are like 'clean this up' labels, left for the cleaner after a messy party... but they didn't make the mess.
Which brand of levothyroxine are you currently taking Do you always get same brand
What vitamin supplements are you currently taking apart from vitamin D?
Have you had coeliac blood test done. If not, request it’s included in next test
Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working, so common to need to supplement to maintain optimal vitamin levels
How much vitamin D are you currently taking?
Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
healthcheckshop.co.uk/store...?
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
drknews.com/changing-your-d...
restartmed.com/hashimotos-g...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
ncbi.nlm.nih.gov/pubmed/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
ncbi.nlm.nih.gov/pubmed/300...
The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
restartmed.com/hashimotos-g...
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Trying to book Private Test
Finally got blood results (kindof)
blue horizon blood tests
Just got my daughter tested
Hospital blood tests are limited
