as anyone got Pagets disease of the bone - Thyroid UK

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as anyone got Pagets disease of the bone

jojomac23 profile image
2 Replies

I have an underactive thyroid and for the last few years I have had high alkaline phosphatase in my blood. They always thought that was because I had low vitamin D

I was given vitamin D supplements but they never increased my vitamin d level,

I finally decided to take sublingual vit d plus vitamin k and my vitamin d levels finally became normal, but my alkaline phospahatase is still high

My liver blood test are normal so now they are thinking the raised levels of alkaline phosphatase might be caused by Pagets disease

I have also recently been dizzy and had spells of vertigo

Any advice would be appreciated

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jojomac23
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SlowDragon profile image
SlowDragonAdministrator

When were folate and B12 last tested

Often when we improve low vitamin D we need more B vitamins

jojomac23 profile image
jojomac23 in reply to SlowDragon

I take b12 . Levels are fine Do they test for folate in regular blood test as I have had loads of blood tests recently and all fine

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