Broken bone is there a connection with hasmito ... - Thyroid UK

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Broken bone is there a connection with hasmito disease

maddiepoopoo profile image
6 Replies

I was diagnosed with hasmito nearly two years ago, I need to know if you are suffering from a thyroid condition can it affect your bones , I have had spontaneous fractures , I broke my pelvis in three places, now I have a broken bone in my foot , so having to use a medical boot, my Gp is not helping or giving me any answers to why , just need help pls

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maddiepoopoo
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Cooper27 profile image
Cooper27

There is a link between auto-immune disease and osteoporosis, so yes, they can be linked.

Has your doctor ever sent you for a Dexa scan? I would think that was a sensible thing for someone with multiple spontaneous fractures.

SlowDragon profile image
SlowDragonAdministrator

Too Low or too high FT3 can cause osteoporosis

Frequently on Levothyroxine our FT3 is too low

thyroidpatients.ca/2018/07/...

Thyroid patients frequently have very low vitamin D and low magnesium. Both important for strong bones

What are your most recent Thyroid and vitamin results and ranges

Do you have Hashimoto's?

Low vitamin levels are especially common with Hashimoto's

do you have any actual blood test results? if not will need to get hold of copies. You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

For thyroid including antibodies and vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

SlowDragon profile image
SlowDragonAdministrator

Previous post shows you are only on 50mcg starter dose of Levothyroxine

healthunlocked.com/thyroidu...

The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many need TSH significantly under one) and most important is that FT4 is in top third of range and FT3 at least half way through range

NHS guidelines on Levothyroxine including that most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine.

nhs.uk/medicines/levothyrox...

Also what foods to avoid (eg recommended to avoid calcium rich foods at least four hours from taking Levo)

All four vitamins need to be regularly tested and frequently need supplementing to maintain optimal levels

Likely vitamin levels are low when under medicated left on low dose Levothyroxine far too long

Baobabs profile image
Baobabs

I would advise anyone post menopausal to have a Dexa Scan. Poor levels of bone building necessary vitamins and minerals are common in people with Hashis. I am surprised with the bone problems you indicate that your GP has not suggested blood testing and or a Dexa Scan?

SlowDragon profile image
SlowDragonAdministrator in reply toBaobabs

As her GP left her on 50mcg Levothyroxine...not surprised at all at lack of dexa scan

maddiepoopoo profile image
maddiepoopoo

I according to my medical records had a dexa scan 3 years ago , indicated low density then but no action needed according to the consultant. I have since been to see consultant in fracture clinic who referred me to have another dexa scan due to the spontaneous fractures, I was at least pleased but got a letter a week later from the RUH Bath cancelling the request, no reason given. I then contacted my doctor, feeling very upset that nothing was being done to get to the underlying cause, he has now referred me again for a dexa scan because on the scale I was an orange not sure what that meant, also he is referring to see an endocrinologist maybe he could reassure me about my levels and if I am the correct dosage of levothyroxine (75mg). Fingers crossed I get some answers .

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