Could anyone in the know please share a contact from which I can purchase T3?
My Mum's GP is ignoring her private blood tests we had done, as you'd expect. (attached).
I'd also be very grateful if anyone could give recommendations of dosages to give her, and what to look out for. Obviously doing this unsupervised isn't ideal, but she's been largely bed-bound for the last three years, and we we need to do something.
She currently takes 200mcg of Levothyroxine, I've also had her on 6000iu of Vitamin D since this test was done.
Many thanks
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kendrewaddams
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When did she take her last dose before the test (should be 24 hours)?
Did she do test early morning, before eating or drinking anything but water?
Does she take a B Complex or Biotin supplement and leave this off for 7 days before the test?
What time was the test done? Cortisol is high for whatever time it was. Hopefully Hidden will pop along and comment on that.
TSH is high for such a high FT4 and, of course, FT3 is extremely low. If mum takes a B Complex or Biotin this can cause false results, taking Levo before test will give false high FT4.
Raised antibodies confirm autoimmune disease, known to patients as Hashimoto's, did you know this?
Does mum take any supplements?
Vit D is way, way too low, should be 100-150nmol/L according to the Vit D Society and Grassroots Health.
B12 isn't too bad, it equates to 664pg/ml and it's recommended to be nearer 1000.
Folate is recommended to be at least half way through range so around 35 with that range.
My mum usually takes her levo first thing, I did the test early in the morning, before she took her dose, leaving 24 hours.
Before the test she took no B complex and nothing with Biotin in.
The test was done at around 9:15, shortly after she woke up.
We knew she had Hashimoto's yes. She was diagnosed around 13 years ago, has gotten progressively worse.
At the moment she's only on 6000iu Vitamin d, which I bought for her after the test results, taken as an oral spray, although she's done selenium in the past, among others.
OK, thanks. Well her results are a bit of a mystery then to have TSH that high with such a high FT4 and obviously there is no T4 to T3 conversion, or very little. Is her GP going to see these results? One would hope that they are such a puzzle to him/her that she might be referred to an endo.
I think the cortisol may have something to do with it but that's no my area of expertise so hopefully PaulineS will be able to help there.
Ferritin: 54.9 (13-150)
I forgot to mention the ferritin before but 54.9 is low, ferritin is recommended to be half way through range which is around 82 with that range. However, her GP will say it's fine because it's within range. One article I have read suggests that a level of 100-130 is good for females and some experts say the optimal ferritin level for thyroid function is between 90-110 ng/ml.
She can help raise her level by eating liver regularly, maximum 200g per week due to it's high Vit A content, also liver pate, black pudding, and including lots of iron rich foods in her diet
Don't consider taking an iron supplement unless she does an iron panel, if you already have a decent level of serum iron and a good saturation percentage then taking iron tablets can push your iron level even higher, too much iron is as bad as too little.
Vit D - the 6,000iu D3 daily should be fine for now, retest in 3 months. Aim for 100-150nmol/L and when this level has been reached she'll need a maintenance dose to keep it there, which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. She can do this with a private fingerprick blood spot test with an NHS lab which offers this test to the general public:
Doctors don't know, because they're not taught much about nutrients, but there are important cofactors needed when taking D3.
D3 aids absorption of calcium from food and Vit K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.
I like Vitabay or Vegavero brands for K2-MK7.
If she doesn't get on with the D3 spray then consider an oil based D3 softgel such as Doctor's Best.
D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking D3 as tablets/capsules/softgels, no necessity if using an oral spray.
Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.
Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking magnesium as tablets/capsules, no necessity if using topical forms of magnesium.
She should consider a good quality, bioavailable B Complex such as Thorne Basic B or Igennus Super B. She would benefit from 400mcg methylfolate to help raise her folate level. The Thorne has 400mcg methylfolate per 1 capsule plus 400mcg B12 which will be enough as her B12 level isn't too bad. The Igennus needs 2 tablets to give 400mcg methylfolate but that will also give 900mcg B12.
Don't start all supplements at once. Start with one, give it a week or two and if no adverse reaction then add the next one. Again, wait a week or two and if no adverse reaction add the next one. Continue like this. If you do have any adverse reaction then you will know what caused it.
As for the Hashi's, has she tried a gluten free diet, this has helped some Hashi's members although there is no guarantee.
Her CRP is possibly high because of the Hashi's.
It's advised to optimise nutrient levels before adding T3.
Thank you very much for all this. I bought some magnesium recently for this purpose and will work at introducing the others.
Do you think it's absolutely out of the question to consider T3 at a sooner date? As you can imagine this has been going on for quite some time, and she's very ill.
As I mentioned earlier, she is bed bound, would nutrient optimisation have a significant effect on this? Does it not seem as though the lack of T4-T3 conversion is the main issue?
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As an aside also, are there ever issues with people selling illegitimate T3 on here? I've had a couple of messages and just want to be safe.
Do you think it's absolutely out of the question to consider T3 at a sooner date? As you can imagine this has been going on for quite some time, and she's very ill.
I can't advise either way, obviously there is a problem with her cortisol which needs looking into. I would ask her GP to do further testing, I can't say which tests because it's not my area of expertise but if PaulineS pops along she will be able to say more. It might be worth trying for a referral to an endocrinologist or even asking members for a recommendation of a private one.
As I mentioned earlier, she is bed bound, would nutrient optimisation have a significant effect on this? Does it not seem as though the lack of T4-T3 conversion is the main issue?
Optimising nutrient levels will probably help and obviously her lack of conversion is a big issue, but I still think looking into her cortisol is possibly the first thing to do as . Have a look at these articles:
I would not buy T3 from anyone trying to sell it on this forum. Members who already buy from abroad will be happy to give you their contact to buy without prescription but they will NOT be selling it. Once you are given a place to buy, check with a member of the Admin team to make sure there have been no problems encountered with the supplier.It would be best to start a new post with the heading “where to buy T3 without prescription”
Just take on board the excellent advice you’ve already been given first, GPs are notoriously useless when it comes to thyroid disorders.
Hi Was the cortisol test done first thing? Although it's slightly outside of the reference range it probably wouldn't be seen as high unless she has other symptoms. So symptoms of high cortisol are weight gain around the tummy, round, flushed face, insomnia, loss of hair, but excess hair on her face, high BP & easily bruising. If she does then her GP needs to do an early morning serum cortisol (blood) & a 24 hour urine test, make sure you get copies of the results as GP's often don't understand them.
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