Hi all
Hope you are keeping safe and well in these strange times.
I have an Endo appointment tomorrow and would like your views on my results please.
Ranges are in brackets.
CRP HS 1.67 (>5)
Ferritin 73.6 (13-150)
Vit B12 133 ( >37.5)
Vit D 66 (50-175)
Folate 7.79 (>3.89)
TSH 0.056 (0.27-4.2)
Free T3 5.03 (3.1-6.8)
Free thyroxine 9.230 (12-22)
Thyroglobulin antibodies 10 (>115)
Thyroid peroxidase antibodies >9.0 (>34)
Many thanks for your help.
Crwbin1
TSH 0.056 (0.27-4.2)
Free T3 5.03 (3.1-6.8)
Free thyroxine 9.230 (12-22)
What thyroid meds are you taking? NDT or T3 or Levo plus T3?
How do you feel?
**
Ferritin 73.6 (13-150)
Not bad and not too far from the recommended level, which is half way through range (about 82 with that range).
**
Vit B12 133 ( >37.5)
Good result for Active B 12.
**
Vit D 66 (50-175)
The Vit D Council/Vit D Society recommend a level between 100-150nmol/L so this could do with improving. Do you currently supplement? If so what form of De (tablet, capsule, softgel, oral spray>), what dose, and do you take D3's important cofactors - magnesium and Vit K2-MK7?
**
Folate 7.79 (>3.89)
On the lowish side, double figures would be better.
**
CRP is fine.
Antibodies are low so no indication of autoimmune thyroid disease with those results.
Hi, thanks Seasidesusie for the reply.
I am on Armour (NDT). 1.5 grains.
Feeling pretty bad at the moment. Very painful muscles in legs, tired, feeling sick through the night. Feel like I am going to faint as feel light headed.
Mind you I am on a lot of different medications so it could be any of those causing it.
I was going to phone my breast cancer consultant as I am on hormone suppression therapy after my operation and radiotherapy for breast cancer and that medication apparently causes muscle problems.
Vitamin D I seem to have low results for that, I am on vit D medication as the letrozole (hormone suppression) depleats it, but it seems that even with supplements it’s not getting high enough.
Crwbin1
I am on Armour (NDT). 1.5 grains.
TSH 0.056 (0.27-4.2)
Free T3 5.03 (3.1-6.8)
Free thyroxine 9.230 (12-22)
Those results are what one would expect to see when someone takes NDT, i.e low (even suppressed) TSH, lowish FT4 and FT3 in range.
Even though FT4 would be low on NDT, it's usual to see it in range, and I'm wondering if having a below range FT4 is causing you symptoms. I take a Levo plus T3 and I need FT4 quite a good way through range, I can't function with it low in range and I am very unwell even if FT3 is good. However, we are all different and some people do well with a low FT4 when on combination hormone replacement.
There is plenty of room for you to increase your Armour dose, your FT3 is 52.16% through range so you could add another 1/4 grain and see how that goes, maybe even another 1/4 grain later on.
I am on vit D medication
OK, so as I asked before, how much and what form of D3 are you taking - tablets, capsules, oral spray, softgel? Tablets are poorly absorbed. If you take too little D3 then your level wont increase.
Do you take your D3 with the fattiest meal of the day - it needs fat to be absorbed.
D3 needs magnesium so that the body can convert the D3 into it's usable form, so you need a magnesium supplement.
Vit K2-MK7 is also needed because D3 aids absorption of calcium from food the K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems.
Obviously, you would have to check for any interactions with any medications that you take.
Hi Seaside Susie
The vit D is Evacal D3 1500mg/400 iu looking on the tube it contains 1500mg calcium carbonate which is equivalent to 600 mg of calcium and 4.0 cholecalciferol concentrate equivalent to 10 micograms of cholecalciferol = 400iu of vit D3. Take two tablets a day.
This was prescribed by doctor after consultation with breast clinic.
I usually take it mid day and at teatime as have to distance from other meds I am on too. But as per your comment I will endeavour to eat something fatty when I do take it
I have a magnesium spray (bought from Costco) a Better You which when having 10 sprays a day = 200 mg which I haven’t as yet started. Is this the right dose to take?
Vit K I have to really careful with it as on warfarin for blood clots and it makes my INR go loopy. So what would you suggest to use instead of that.
Thank you once again for your help.
Keep safe x
Hi Crwbin1
The vit D is Evacal D3 1500mg/400 iu looking on the tube it contains 1500mg calcium carbonate which is equivalent to 600 mg of calcium and 4.0 cholecalciferol concentrate equivalent to 10 micograms of cholecalciferol = 400iu of vit D3. Take two tablets a day.
As this is prescribed, was calcium tested and you've been given this particular supplement due to low calcium level?
The amount of D3 is minimal - 800iu daily - and is just about a maintenance dose for someone with a decent Vit D level already. It wont raise your level. For your current level of 66nmol/L, to reach the level recommended by the Vit D Council/Vit D Society (100-150nmol/L) the Vit D Council recommends a daily dose of 3,500iu.
I have a magnesium spray (bought from Costco) a Better You which when having 10 sprays a day = 200 mg which I haven’t as yet started. Is this the right dose to take?
An oral magnesium supplement would have a suggested dose of about 350mg. As yours is a topical spray, and I have no personal experience of them, I can't say what the recommended dose would be for magnesium in that form.
Vit K I have to really careful with it as on warfarin for blood clots and it makes my INR go loopy. So what would you suggest to use instead of that.
There are two main forms of vitamin K:
Vitamin K1 (phylloquinone): Found in plant foods like leafy greens.
This is the blood clotting form, the one they give newborn babies to prevent a now rare bleeding disorder called 'vitamin K deficiency bleeding' (or 'haemorrhagic disease of the newborn').
Vitamin K2 (menaquinone): Found in animal foods (high-fat dairy products from grass-fed cows, egg yolks, as well as liver and other organ meats) and fermented foods such as natto and sauerkraut.
This is the form that directs calcium to bones and teeth and away from soft tissues and arteries.
Some articles say that K2 is OK if on Warfarin, some articles say it's not, some say be careful. This is something you'll have to research yourself from reliable sources and make up your own mind.
I don't know if there is anything you could substitute for K2 to direct calcium to where it's needed.
The calcium D3 combo was given to me via GP after their discussion with the breast cancer clinic(bcc). Because I was having aches and pains and knew my vitamin D was on the low side.
Before that the bbc had prescribed calcichew 500mg tablet twice a day.
No calcium test was done.
It’s apparently “normal” to have calcichew when you are on letrozole for breast cancer as this drug leeches calcium from your body.
Crwbin1
OK, well I don't know anything about calcium being prescribed in those circumstances but you are taking a very small amount of Vit D - 800iu - and as I said the amount suggested to raise your current level of 66nmol/L to the recommended level of 100-150nmol/L is 3,500iu. Doctors wont know this, they have no concept of "optimal" levels, they just get Vit D into range and then some will give 800iu as a maintenance dose.
But what strikes me is that they are happy to prescribe a calcium supplement because you are taking letrozole but haven't bothered to check your calcium level at all, either before or during your treatment.
A brief look into this drug shows that it can reduce the amount of oestrogen in the body, which can reduce bone density, and looking at what can be done to prevent bone loss and avoid fractures tells us that getting enough calcium and Vit D is important. So I would have thought the first step would be to ensure that your calcium levels are not too low nor too high with the supplement and keeping Vit D level optimal. For some reason doctors tend to just focus on calcium and don't realise that Vit D aids absorption of calcium from food so keeping a good level of Vit D will help calcium levels.
In your position I would be asking for my calcium level to be checked and I would be ensuring I optimise my Vit D level myself.
Thanks, good tips.
Hi SeasideSusie, I just had a telephone consult with my Endo and he seems happy with the results. He think my muscle pains are not to do with NDT but more rheumatoid so he suggest waiting for rheumatology consultant to get back to me - I have already seen them once but waiting for some scans to be done. Next appointment is end of July!
Thanks again
Help with results please
Help with results please 
Help please with results
Help with results please
Help with test results please.
