I had a lot of great info on here and I took the advise, please can I ask for guidance.
I supplemented with a Iggenus b complex 2x a day , meythlfolate 400 mg , better than your vit d + k2 spray 3000iu magnesium. My endo prx hydrocortisone for my low cortisol test and I talked her in to trialing tiromel 3mcg.
I retested and here are my results
Tsh 1.71 (0.27-4.20)
Ft4 17.40 (12-22)
Ft3 4.4 (3.1-6.8)
TPA <4 <24
ATA <20 <115
Vitamin b12 1046 (197-771)
Previously 699
I have never supplemtns with just b12 only my b complex
Folate 25.74 (3.89-26.80)
Previously 7.3
Vitamin D 45nmol 25-50
This dropped no idea why?
Iron 15.3 (5.83-34.5)
UBIC 33.7 (24-70)
TIBC 49 (40-76)
Transferrin saturation 31.2 (15-45)
Ferritin 30.2 (13-150)
Ferrtin Previously 41
My b12 levels are too high, alrho my doctor says that can mena my body isn’t utilizing it, how I make the body use it?
How can I increase my ferritin levels, is my iron levels too low and how do I raise t4 and T3 endo will not prx Levo or armour I have asked, fought to trial it. Firm no on that. Many thanks
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Yennn
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Hey! How are you? Yeh the endo only trialled me on thy as I kept banging on that my ft3 was low. She is my four endo. All other endos say there is nothing wrong with my thyriod and adrenals alrho I failed 5sst. They argue borderline. I can not go through the stress and argument with finding any more endo. And now we are on lock down it will be many months.
Can you explain to me as I still don’t get the thryiod , why I need Levo? And where I can get it from if no doctor will prx me it? How much T3 should I be taking ?
Also do you have any idea on my ferrtin levels why they dropped so much? And what I can do about it? Many thanks
As soon as we take any dose of T3 the pituitary sees this and TSH reduces...turning your own thyroid hormone output down. In effect, becoming more hypothyroid.
Hence vitamin levels dropping
That why T3 is much more difficult to manage than levothyroxine. Same thing does happen with levothyroxine too, but not at such small doses, usually not till up near full replacement dose
Taking any replacement thyroid hormones, doesn’t “top up” your own thyroid output...it replaces it
Levothyroxine is easier to tolerate in early stages.
As you are on hydrocortisone you would need to be very careful starting on small dose levothyroxine and increasing very cautiously
Has endocrinologist established why you have such low cortisol
Sorry I should I have said these tests were down before endo prx t3.
One endo think my SST was down wrong then next endo said that some ppl just fall out within range my
Morning cortisol was 216 rise was 300odd I have argued till I’m blue in the face. Spent so much money on endos even saw one that was recommend from the pituarty foundation she can’t makes sense of my results either. Low SST results then next passed so when she got the pass she gave up on me. The last cortisol test I done results were
9am 418 rise 520 and she stopped my HC I spent about 5 months bedridden again and then I saw a functional doc who done a saliva cortisol and I was rock bottoms low and now I’m back on HC. Still no dx. It was secondary then it could have been pituarty then we isdi mri ruled that out. I asked for other testing all was refused.
What about armour thyriod ? Would that be a better one to tolerate if on cortisol if so could you pm me where I. Can get it from and dose to start off with? It has been beyond a nightmare with endos I really don’t ever want to see another again! Xx
No TPO. And I won’t get back of a doc office for a good few months now plus my GP has never done these always had to pay to see a private endo. & they sucked. Yeh strict gluten free now for almost 3 years haven’t noticed anything different in stil severely sick.
I can’t get my doc or endo to prx me levo. Could you pm where I CN get it from? Thank you 💛
Do you use a weekly pill organiser? If you don't you really should - they can be extremely helpful. I take some of my supplements just three times a week, others might be four times a week, some are every day, and I would never remember without the pill organiser what I need to take on any particular day. I save money with the pill organiser too because I reduce the risk of taking more than I need.
You don't need as much B Complex as you are taking, but I wouldn't suggest stopping it altogether. You could take your B Complex just four or five days a week. Another alternative is to cut down from 2 tablets to 1, on say, four days a week. There are lots of possibilities.
Finding the right maintenance dose for anything is a trial and error process that may take ages to get right. But it saves money when you do get it right.
Thank you yes I have a pill box and lovely rainbow one from amazon. Any ideas how to up vitamin d as I was supplementing that with k2 and mag cirate also my ferritin levels dropped too? Thank u
If you want to try iron supplements that's a big subject. They can be bought from pharmacies in the UK without prescription as long as the pharmacist agrees. I've only been refused once, and on that occasion I just went to another pharmacy from a different chain. Personally, I usually buy from Lloyds Pharmacies or Tesco Pharmacies.
Iron can be supplemented in several different ways. For info on the different types of supplements available :
Ferrous sulfate and ferrous fumarate contain roughly the same amount of iron per tablet. Ferrous gluconate contains roughly half the iron of ferrous fumarate.
When I was very iron deficient I took ferrous fumarate 210mcg :
Note there are 84 tablets per box of ferrous fumarate 210mg which is enough for 1 tablet, 3 times a day, for 28 days. Each tablet contains 69mg iron. So three per day totalled 207mg iron per day. That is the dose I took when I was very severely deficient, and is the maximum anyone should ever take. In practice people should avoid taking the maximum possible dose because most people won't need it and iron is poisonous in overdose.
I would suggest one tablet, twice a day would be ample in your case, and even one per day may be sufficient and is what I would suggest trying first. There has been some recent research suggesting that taking iron on alternate days helps improve absorption.
Take 1000mcg vitamin C per tablet to help absorption. If you get constipated you can increase the dose of vitamin C. All the iron supplements that the NHS prescribes can be rough on the gut. Some people tolerate iron, others don't. I can't tolerate ferrous sulfate, but I cope with ferrous fumarate. Everyone has to experiment for themselves to find what works for them.
In practice, the higher the dose of iron the fewer people will tolerate it. Always check the iron content of any iron supplement you take - it should be mentioned somewhere on the packaging.
To buy a particular iron product it is worth printing out a picture of it and taking the picture to your pharmacy, or just save the picture on your phone to show the person serving you.
If you start supplementing iron you must start testing your iron and ferritin regularly - about every 6 weeks or so. Iron is poisonous in overdose and the body can't get rid of any excess. People who end up with too much iron can only get rid of it by having blood taken. Iron settles in the organs - including the brain and the heart - if the patient has too much iron.
Please note I am not a doctor and have no medical training whatsoever.
As a rule, I've given up commenting on thyroid results, sorry. There are so many ways in which the thyroid can go kaput that I don't trust myself to answer sensibly and logically any more because I always forget lots of stuff that might be relevant.
Aw thank u for the help of vitamins and iron I found hay beet useful and was lovely of u to take the time to help me thank u and I wish u all the best stay safe xx
I think you might have misinterpreted the reference range for your vitamin D. The last time I got a vitamin D test done the reference range was given like this :
< 30 Deficiency
30 – 50 Insufficiency
51 – 75 Borderline deficient
76 – 250 Optimally replete
> 250 Possible toxicity
I have read that the NHS has now declared that deficiency occurs with a level of under 25, and insufficiency occurs with a level of 25 - 50, which is dreadful, and is clearly designed to save money rather than keep people healthy.
On this forum the optimal level of vitamin D is given as either 125 nmol/L or 100 - 150nmol/L.
To work out the dose you need to raise your vitamin D :
1) Convert your level from nmol/L to ng/mL using this link :
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