Hi, I feel a bit overwhelmed with what’s going on and just want to write it down to put it all into context really....if anyone has any advice it would be appreciated. 😊
Oct 2018
R Hemithyroidectomy for suspicious nodule which turned out to be benign but there was an incidental finding of a 3mm papillary carcinoma, no further treatment as they were confident it was fully removed.
Prior to surgery -
TSH 1.26 (0.38-5.33)
THYROID PEROXIDASE ANTIBODY < 50 iu/mL
(< 50.0)
Post surgery
Jan2019 TSH 3.85 (0.38-5.33)
July2019 TSH 3.24 (0.38-5.33)
So it seemed that my remaining half of thyroid was coping without Thyroxine meds and I was advised to have annual TSH checked.
Now -
TIA in Feb 2020
3 week course of Aspirin - completed
Clopidogrel 75mg daily
Atorvastatin 40mg daily
Continued to feel lightheaded and extremely anxious, GP has checked a range of bloods -
FBC and U&E’s =Normal
B12 = 174 ng/L [180.0 - 914.0]
Serum folate level 5.9 ug/L [3.1 - 19.9]
Serum ferritin level 99 ug/L [11.0 - 307.0]
Vit. D not checked
The lab have suggested possibility of pernicious anaemia, gastric parietal cell antibodies
request added to blood sample , report awaited.
Also received a letter yesterday informing me that when I was admitted to hospital with TIA my TFT’s were checked and now
TSH = 9.15 (0.38-5.33)
Free T4 =10 - no reference range available to me.
Consultant has suggested repeating in 2 months and has Referred to endocrinologist for opinion.
These were all NHS tests so T3 not checked.
in light of the fact that I’ve already had a TIA, My thoughts are that I need B12 injections and to commence Thyroxine.
I have appointment with GP next week to discuss.
Any thoughts from you guys would be welcomed.
Thanks
😊
Written by
pinklillie
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Just testing TSH after surgery in January and July was inadequate
TSH has risen, likely Ft4 and Ft3 were low
If test for pernicious anaemia is negative, then low B12 and folate likely due to being hypothyroid
Ask/insist on vitamin D testing
Strongly recommend getting full thyroid testing privately ASAP
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3 £29 (via NHS private service )
As your B12 is below range it could indicate raised Homocysteine - a protein in the blood and if raised can mean B12 is low in the cells where it is needed. Not routinely tested which is a shame as it is also implicated in heart events and TIA's. MMA is another helpful test.
Testing for PA can throw up false negatives so your GP should go by symptoms. Treatment for neurological conditions differ and injections should be every other day until symptoms improve. Your GP should have the Guidelines for Diagnosis and Treatment for Folate and Cobalamin Deficiency - sitting on his desk !
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Panic and agoraphobic feeling.
can anyone advise re test results? not sure what to think
In-between tests and feeling a bit confused re symptoms?
Feel rubbish, all blood results \"normal\"
Hi, new here and feeling completely overwhelmed. 
