Help with vitamins please: Please can somebody... - Thyroid UK

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Help with vitamins please

abbots profile image
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Please can somebody take a quick look at my vitamins and if needed please advise me of any supplements l need to take.

I am taking thyroxine 100 on five days and 50 on two days of the week.

Vit D 61 (no reference range just says N/A)

Folate 7.8 (3.9-26.8)

Ferritin 88 (25-300)

B12 294 (197-771)

TSH 1.54 (0.27-4.20)

T4 15.3 (12-22)

Thank you

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SeasideSusie profile image
SeasideSusieRemembering

abbots

TSH 1.54 (0.27-4.20)

T4 15.3 (12-22)

What thyroid hormone replacement are you on? It helps us to interpret the results when we know that.

Vit D 61 (no reference range just says N/A)

Does it give a unit of measurement? Is it nmol/L? If so then your Vit D level is low. If it's ng/ml then it's fine. If you can confirm unit of measurent and it's nmol/L I'll point you in the right direction of what supplements you need.

Ferritin 88 (25-300)

Ferritin is recommended to be half way through range. You can help raise your level by eating liver regularly, maximum 200g per week due to it's high Vit A content, also liver pate, black pudding, and including lots of iron rich foods in your diet

apjcn.nhri.org.tw/server/in...

B12 294 (197-771)

Is the unit of measurement pmol/L, pg/ml or ng/L?

If it's pg/ml or ng/L (they are the same) then the following applies:

According to an extract from the book, "Could it be B12?" by Sally M. Pacholok:

"We believe that the 'normal' serum B12 threshold needs to be raised from 200 pg/ml to at least 450 pg/ml because deficiencies begin to appear in the cerebrospinal fluid below 550".

"For brain and nervous system health and prevention of disease in older adults, serum B12 levels should be maintained near or above 1000 pg/ml."

Do you have any signs of B12 deficiency, some people with B12 level in the 300s have been found to need B12 injections - check for signs here:

b12deficiency.info/signs-an...

If you do have any signs then you should list them to discuss with your GP and ask for further testing for B12 deficiency/pernicious anaemia.

If you don't have any then you could self-supplement.

Folate 7.8 (3.9-26.8)

Folate is recommended to be at least half way through range.

You can help raise your folate level by eating folate rich foods and supplementing with a good B Complex such as Thorne Basic B or Igennus Super B. However, if you have signs of B12 deficiency and need further testing, then don't supplement with a B Complex because it will mask signs of B12 deficiency and skew results. You would start the B Complex after starting B12 injections or supplements.

abbots profile image
abbots in reply to SeasideSusie

Thank you seasideSusie

Vit D is 61.0 nmol/L

B12 is pg/mL

I was diagnosed hypo (hashi) in 2000 with a tsh of 32 l was put on thyroxine but did not do too well on it, terrible headaches.

I went to see the endo who put me armour which l took for 9 years but it was taken away from me, as they said it was black listed.

I ordered Thiroid and thyroid S from Thailand as l decided to try levothyroxine as it was easier to get.

I still have these in my cupboard (most probably out of date now) as l am not doing too bad on levothyroxine.

I am now on Actavis 100 5 days a week and 50 on 2 days.

My doctor let's me do my own dosing so l can put them up and down as l see fit.

SeasideSusie profile image
SeasideSusieRemembering in reply to abbots

abbots

Vit D is 61.0 nmol/L (this equals 24.4ng/ml)

OK, thank you.

The Vit D Council recommends a level of 125nmol/L (50ng/ml) and the Vit D Society recommends a level of 100-150nmol/L (40-60ng/ml).

To reach the recommended level from your current level, based on the Vit D Council's suggestions you could supplement with 3,700iu D3 daily (nearest is 4,000iu)

vitamindcouncil.org/i-teste...

Retest after 3 months.

Oil based D3 softgels (eg Doctor's Best) give excellent absorption. Some people use an oral spray, eg BetterYou, particularly if they have Hashi's as the spray is absorbed through the mucous membranes in the oral cavity and so bypasses the stomach. Some Hashi's patients do OK with the softgels.

When you've reached the recommended level then you'll need a maintenance dose to keep it there, which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with an NHS lab which offers this test to the general public:

vitamindtest.org.uk/

Doctors don't know, because they're not taught much about nutrients, but there are important cofactors needed when taking D3 as recommended by the Vit D Council

vitamindcouncil.org/about-v...

D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking tablets/capsules/softgels, no necessity if using an oral spray.

Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.

Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking tablets/capsules, no necessity if using topical forms of magnesium.

naturalnews.com/046401_magn...

drjockers.com/best-magnesiu...

afibbers.org/magnesium.html

Check out the other cofactors too (some of which can be obtained from food).

B12 is pg/mL

As the unit of measurement is pg/ml then the information given above applies, so check for signs of B12 deficiency as mentioned and maybe follow the suggestions for B12 and folate.

I am now on Actavis 100 5 days a week and 50 on 2 days.

TSH 1.54 (0.27-4.20)

T4 15.3 (12-22)

In that case your results suggest undermedication. If those were my results I'd take the same dose every day, don't lower the dose for those 2 days. I'd then retest in 6-8 weeks and I'd make sure I do TSH, FT4 and FT3, see where my levels lie. Pop new results on the forum for comment and you may still need to do some tweaking.

SlowDragon profile image
SlowDragonAdministrator

Suggest you get TSH, FT3 and FT4 tested privately

Your FT4 is low and suggests you're under treated

Low vitamins are often result of under treatment

FT4 is only 32% through range

Useful calculator for working out % through range

chorobytarczycy.eu/kalkulator

The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many need TSH significantly under one) and most important is that FT4 in top third of range and FT3 at least half way in range

NHS guidelines on Levothyroxine including that most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine.

nhs.uk/medicines/levothyrox...

Also what foods to avoid (eg recommended to avoid calcium rich foods at least four hours from taking Levo)

All four vitamins need to be regularly tested and frequently need supplementing to maintain optimal levels

As you have Hashimoto's are you on strictly gluten free diet?

Or tried it?

abbots profile image
abbots in reply to SlowDragon

Thank you seasidesusie and slowdragon your information is much appreciated.

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