I have very severe symptoms and gone down hill fast the past 3 years. Severe brain fog slurring of my words in the morning , (All the right side of my body-) spine, mid back, hip , shoulder and arm/hand, eye, head, even between my thumb and first finger all swollen and hurt and shooting nerve pains in them , the lower back pain shoots into appendix area and i am very tired every day and nauseous. MY vision is very blurry with black specs, My bowels do not work and its a daily battle with 2 x ducolax , 1 x phosphate enema and 2 x movicol daily , if i dont go daily my symptoms get worse . my tongue is swollen and painful. I have ear , bladder and skin infections recurrent . Despite 5 months on antibiotics i have had a staph scalp infection for 18 months. The right side of my face has dropped, eyelid and mouth . I am back and forward to GP and cannot hold down a job .
Tests show I have Hashimotos, TSH ranges between 8 and 15, TPO autoimmune 1300, my GP sent me to endocrinolgy and i saw them last Friday and the specialist i saw was not helpful and told me that my symptoms are not thyroid and anyway i am on the correct dose of Levythoxine . so its back to GP to try get another referral from him . im exhausted.
I follow a strict gluten free diet, if i dont i am bedridden . I also suppliment with selenium . I am on 1.25mg Levythoxine and im 12 stone.
Please, does anyone have any advice, my GP says I am the only Hashimotos patient in his surgery (he sees 45 patients daily) and he has no idea or experience in this condition.