Hi just looking for advice as i'm getting nowhere with the gp. I think I may have hashimoto's but currently my tsh and t 4 are within normal range. In may last year my tpo antibodies were >1000 not sure how high they are now. I suffer from extreme hot and cold intolerance amongst other symptoms. Is there any mediation around to treat the symptoms even though the tsh and t4 are within normal range? It's like fluctuating between hyper and hypo symptoms
Possible hashimoto's : Hi just looking for advice... - Thyroid UK
When I was diagnosed with Hashimotos back in 2005 all the TFT's were in range but anti-bodies were very high. My GP here in Crete - started treatment saying - my thyroid needed support whilst under attack. I knew nothing about the thyroid at the time so it made sense.
With Hashi's you can have Hypo/Hyper symptoms. Can you post your results with ranges ?
The last rest waa done on the 29th of October.
TSH 2.0 reference range is 0.20-4.50
Free t4 15 reference range 9-21
Tpo antibodies >1000 reference range <35
That's the only tests they do where i am.
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised, as yours are
All thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all primary hypothyroidism in Uk is due to Hashimoto's
Essential to test vitamin D, folate, ferritin and B12. Always get actual results and ranges. Post results when you have them, members can advise
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Ideally ask GP for coeliac blood test first
If you add your most recent blood test results and ranges for thyroid and vitamin levels, members can advise on next steps
Hi all the gp tests for at my Dr's is tsh and t4. I do have low vitamin d too.
How low is vitamin D?
What has GP prescribed?
Aiming to improve to at least 80nmol and around 100nmol may be better .
Vitamin D mouth spray by Better You is good as avoids poor gut function.
It's trial and error what dose each person needs.
Once you Improve level, very likely you will need on going maintenance dose to keep it there.
Retesting twice yearly via vitamindtest.org.uk
Local CCG guidelines
Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamin D
Do NOT supplement any vitamin K if you take any blood thinning medication
Vitamin C and bones
The importance of sunshine
Ask GP to test ferritin, B12 and folate
Hi my vitamin d level is 49. Which is classed as insufficient. All others are within range.
Where with in range?
B12 range is typically 180-800
Symptoms can start in some people if levels are under 500
Ferritin, under halfway in range can be too low
How much vitamin D are you supplementing? Looking to improve to at least 80nmol
Being in range is not a result. Please post the actual results. It is where you are in the range that is the key to wellness. How are you treating your LOW VitD ?
The actual results for which ones?
You said just now your VitD was 49 & all the others were in range - hence the question ... which other tests were in range ?
Vitamin b12 was 570
The only one that's low waa Alk phosphate.
Ranges are needed please. Your Ferritin is low - around 70 or mid-range ...
Vitamin b12 range is 180-2000
Ferratin range is 15-200
Iron range is 10-28
Alk phosphate range is 40-125 mine was 37.
Actually ferratin was 47 on October
So what are taking for your low VitD - I asked earlier 😊
I have bought vitamin d drinks. Not sure if they will be of any benefit.
Check the label - what are the ingredients ?
It's a vitamin d and calcium drink. Would send a picture but not sure how.
Not sure you need the calcium. How much VitD ? You need about 5000 iu's ...
So ferritin is low
Eating liver or liver pate once a week should help improve levels. Plus vitamin C can improve iron absorption
No folate test
B12 not brilliant.
My Dr said ferratin was a good level. It was 15 before that and they still said it was a good level. Will look for folate test.
If you have booked private testing of thyroid and vitamins then folate, ferritin, B12 and vitamin D are all included
Ferritin is still not high enough for good thyroid function, but many GP's are clueless about importance of good nutrients with Hashimoto's
Look at increasing iron rich foods
Read SeasideSusie many replies to people giving detailed vitamin information
Yes and I will post the results when I get them. I will look into that also.
Yes but SlowDragon has given you a link for Private Testing - did you read it ?
Hi I have ordered the full thyroid blood test from medichecks. So will post when I get the results. Think it's ultravit
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