Have just got my latest blood results back , before I post them in would like to quickly say there has been no significant change in my condition or the way im feeling , ie; still getting lumps and swellings on left side of neck , am struggling to even talk , and am still getting most symptoms of hypothyroidism ie; fatigue , hair brittle and breaking off , nails soft and flakey , controversial appetite , etc etc , all this plus the small fact of having a small stroke along with horner's syndrome in March this year , so got plenty still going on , anyway , now for the results , im going to put previous results first then the new results , the ranges for both are exactly the same .
With the first test I took in March 2019 I was only taking levothyroxine, 100mcg /75mcg alternate days . On the second test , I am presently taking 75mcg levothyroxine and 10mcg liothyronine sodium ( T3 ) .
Blood test from 12 / 3 / 19 =
CRP HS 1.97mg/L range= < 5
FERRITIN 117ug/L " 13 - 150
FOLATE 9.46ug/L " > 3.89
B12 ACTIVE 113pmol/L " 37.5 - 188
VIT D 81.1nmol/L " 50 - 175
TSH 0.034mlu/L " 0.27 - 4.2
FT3 3.82pmol/L " 3.1 - 6.8
FT4 26pmol/L " 12 - 22
TGA 13.9ku/L " < 115
TPA 10.4klu/L " < 34
Latest Test results from 16 / 7 / 19 =
CRP HS 4.1 mg/L
FERRITIN 117ug/L
FOLATE 13.68ug/L
B12 ACTIVE > 300 pmol/L
VIT D 72.2 nmol/L
TSH 0.008mlu/L
FT3 4.63pmol/L
FT4 19.8 pmol/L
TGA 12.8ku/L
TPA < 9 klu/L
Some advice would be deeply appreciated please , thank you for taking the time to read this post ☺
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Sweetpea1157
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Presumably you have been supplementing a vitamin B complex and perhaps B12 as well
You could cut back on B12 supplements as result is rather high
Vitamin D is dropping so perhaps increase vitamin D supplements to keep levels around 100nmol
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).
If/when also on T3, make sure to take last dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test
Hi Slowdragon, thanks for getting back to me , sorry taken so long to reply, but been at hospital appointment.
Blood test was done first thing in morning and fasting
I take the 10mcg T3 in the morning along with my 75mcg levothyroxine
I used to cut up T3 a few at a time , but as of late , have only been halving a tablet every 2 days , should I be splitting the dose ??
I take Dlux 3000 daily vit D oral spray almost every day , but have missed a few doses
Am also taking vit B12 5000mcg almost every day aswell , because I thought it might help with lumps and swellings in my neck ( which no one seems to know about , or when mentioned to health professionals , it's just shrugged off and ignored )
I have also been taking K2 ( MK7 ) 100mcg daily , until recently, but that's only because I am running out and need to order more online
Can you suggest where I can go to try and get some advice on what's going on with neck and voice , sorry to be a pain , but have asked this question a couple of times now on the forum , should I try the forum again ??
Hi Slowdragon, i take 10mcg T3 in one dose in morning along with 75mcg levothyroxine, am I better splitting dose ?? And at what times ?? I am taking at the moment around 7:30 am
Am going to stop B12 , will it be ok to take low dose Vit B6 ?? ☺
B vitamins best taken in the morning after breakfast
Recommended brands on here are Igennus Super B complex. (Often only need one tablet per day, not two. Certainly only start with one tablet per day after breakfast. Retesting levels in 6-8 weeks ).
Or Jarrow B-right is popular choice, but is large capsule
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results
Ok thanks for that good advice again SlowDragon especially about T3, will try splitting dose then retest after 6/8 weeks before making T3 increase . Take care and thankyou ☺
T3 is absorbed quickly into T3 receptor cells and one dose lasts between one to three days. You may find the following helpful. It was by one of Thyroiduk's advisers who died through an accident but he was an expert in T3 and thyroid hormone resistance.
Hi Shaws , thanks for getting back to me, yes , I also had problems with the link being removed , but it did give me another link to go to , but unfortunately we wasn't able to make head nor tail of it , as my partner and I am only just really starting to understand my condition a little more ( though I have suffered for many years ) a lot of information still goes right over our heads .
We have just received our thyroid UK pack and are slowly working our way through it , one of the sheets gives you book recommendations, we are thinking of buying the book
" The Thyroid Patients Manual " by Paul Robinson , to try and help us understand my condition a lot better , plus it's supposed to be easy to read , have you or anyone here heard of or read this book ?? And is it worth me buying ?? Also , while I am here , if you don't mind , as you are an administrator, can you suggest anyone I can talk to about lumps and swellings in left side of neck , i also at times struggle to even talk and sounds like I'm getting breathless the more I try to get words out , and of coarse the hoarseness . I have had different tests done medically , but they say they can't see anything , and when I do mention it to other health professionals, it's just ignored or shrugged off, to be honest no one seems to have a clue and it is worrying me and getting me down , the lumps and swelling are clearly visible to the naked eye , they have been remarked on by friends and family , even by people I only talk to or see now and again , the only people who say they can't see them are the health professionals.
Hope you're able to give me a little advice please , thankyou , take care ☺
I'm sorry you have 'lumps etc'. I think I'd ask to be referred to an Endocrinologist so that these can be looked at by a Professional. Unfortunately few doctors appear to know little these days except look at a blood test result, whereas in the past when no blood tests were available we were treated according to symptoms and dose increased (of NDT) until we felt well again. (NDT stands for 'natural thyroid hormones' made from animals' thyroid glands from 1892. It is not now prescribed by the NHS.
I'd suggest - re books etc - some of the following. Don't spend too much money. TUK have good selection.
Dr Barry Peatfield's book - definitely recommended as he did as he was taught as a young doctor, before blood tests became the priority, instead of clinical symptoms.
The above was by an Adviser to TUK. His name was Dr John Lowe was another doctor who resigned his Licence so that he could treat patients properly and not be restricted to prescribing what he thought would restore health.
It is a slow process when first diagnosed as everything is so strange and many doctors unhelpful (just because they don't seemed to have studied about one of the commonest of autoimmune conditions except to prescribe according to the TSH. The aim is a TSH of 1 or lower.
You cannot take in too much information at once, it is a slow and steady learning curve.
Your dose will be increased slow and steady and you will begin to feel better i.e. a blood test every six weeks with a 25mcg increase. The aim is a TSH of 1 or lower. Not somewhere in the range as many doctors think.
Levothyroxine is also called T4 - an inactive hormone - and it has to convert to T3 - the Active Thyroid Hormone and it is needed in our millions of T3 receptor cells but slow and steady is the way to go. Also taking note of your symptoms as they are relieved - that's the aim of thyroid hormone replacement to restore our good health and millions find levothyroxine suits them.
So, blood tests always at the very earliest, fasting (you can drink water) and allow a gap of 24 hours between last dose of levo and test and take it afterwards. This helps keep the TSH at its highest and prevents doctor reducing dose.
Hi Shaws , thankyou for getting back to me , concerning the neck problem , unfortunately , one of the health professionals that I have been stating was an Endocrinologist, i even seen ENT specialist , have had ultrasound scan , and the camera up the nose and down the throat , unfortunately again , a week later after the camera i had a small stroke caused by a carotid artery dissection, and horners syndrome , the same side as neck problem , am still waiting to see neurologist, but when I asked at the time of MRI that showed I had the carotid artery disection, if the neck problem was connected to that , I was told no , it is very unlikely , so realistically am at a loss as to where to turn next .
As for the books , I have tried the libraries local to me , they told me all the books I was looking for are lost , and they were not going to be replaced , am unable to remember the names of the books and their authors , but there were 4 of them , all recommended by the helpful people on this forum, but i will look into the books you have mentioned. I'm beginning to realise this is a very slow process , i have been suffering with a thyroid problem for over thirty years , in that time just relied on what the docs were saying as gospel , i started as hyperthyroid but ended up getting RAI treatment which in turn , made me hypothyroid , 11yrs later was told I had graves disease, then left to get on with it , which I did for quite a few years until around 18 months ago , when I became very ill with a flare up , it's only at that point I started to really look into my condition , so as to try and understand it a lot more , thats when I found this forum , the people here have been so helpful , but at the same time , the treatment I've been receiving from the medical profession has left a lot to be desired , especially since I've been questioning things about my symptoms . There are more issues , too many to mention right now , but like many people here on the forum , going by some of the stories I have read here , we've all been left frustrated and in limbo by the medical profession.
Thankyou once again for getting back to me , sorry post was a bit long winded , take care Shaws ☺
I'm sorry about your additional health problems and maybe you might find some books on Amazon. I'm also sorry you developed a small stroke. If you use this link TUK get a few pence which helps run their office. You must have been very shocked when you developed the stroke and I think we'd all be upset by this happening when we depend so much on the doctors sussing out possibilities before it actually happens.
Thanks again Shaws, i will try and get there , hopefully things will get better , usually i remain positive, but i think ( as you said ) the stroke has taken its toll , but with the help and support from all the good people on this forum , im sure I'll find my way for improvement.
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