latest blood results: Hi all here are my latest... - Thyroid UK

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latest blood results

foxyeyes profile image
12 Replies

Hi all here are my latest results I am on 100mgrs of levothyroxine (Almus) but still not well have got no energy very tired all the time losing hair and eyebrows nails splitting went on slimming world diet but have put weight on I am very down it has taken me a while to post this as just hadn't got the motivation to do it

CRP 18.46 5.0mg/L

Ferritin 152.00 13.150 ug/L

TSH 1.08 0.27 .4.20 mlu/L

T4 Total 119.0 66.181 nmol/L

Free T4 16.00 12.22 pmol/L

Free T3 4.47 3.1.6.8 pmol/L

Anti-Thyroidperoxidase abs 19.1 34 klu/L

Anti-Thyroglobulin 232 115 ku/L

Vit D (25oh) 58

Vit B12 294

Serum Folate 12.90 8.83 60.8 nmol/L

I know my CRP is high but have had problems with my arthritis and have just had B12 injection any help would be very much appreciated

Thanks in advance

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foxyeyes
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12 Replies
NWA6 profile image
NWA6

Hey foxeyes 🤗 Looks like you could do with another boost of Levo, your FT4 is only mid way through range so has loads of wiggle room. Hopefully this will raise your FT3 and help to lessen those awful symptoms.

I absolutely think that if you could be optimally treated that your arthritis would be more tolerable.

So move up to 125mcg Levo and retest I’m 6wks. Don’t be surprised if you need another raise after that. With such difficult symptoms you might need your FT4 to be right at the top of the range.

foxyeyes profile image
foxyeyes in reply toNWA6

Thanks Paula6 going to see GP and ask for increase I don't think there will be any problem as he is very understanding will let you know how I get on .

SlowDragon profile image
SlowDragonAdministrator

Folate is rather low. As you have B12 injections do you also supplement a daily good quality vitamin B complex?

one with folate in not folic acid may be beneficial.

chriskresser.com/folate-vs-...

B vitamins best taken in the morning after breakfast

Recommended brands on here are Igennus Super B complex. (Often only need one tablet per day, not two. Certainly only start with one tablet per day after breakfast. Retesting levels in 6-8 weeks ).

Or Jarrow B-right is popular choice, but is large capsule

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Vitamin D is too low. But a GP will only prescribe to bring vitamin D up to 50nmol. (Previously NHS use to prescribe if results were under 75nmol)

Aiming to improve vitamin D by self supplementing to at least 80nmol and around 100nmol may be better .

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Retesting twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is good as avoids poor gut function.

It's trial and error what dose each person needs.

As you have arthritis and hypothyroidism are you on strictly gluten free diet?

Gluten can be a trigger with arthritis

Extremely common to be gluten intolerant with Hashimoto's

arthritis.org/living-with-a...

If still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

foxyeyes profile image
foxyeyes in reply toSlowDragon

Hi SlowDragon have started Amy Myers Autoimmune diet GP said my Vit D was okay about 8 wks ago was taking Vit D then but ran out will get some more will get some B complex as well have looked at some of the links you have given me thanks a lot for your help will let you know what GP says.

SlowDragon profile image
SlowDragonAdministrator

Just seen previous posts that you are trying to be strictly gluten free

Plus on Levothyroxine under new endocrinologist after NDT

You need 25mcg dose increase in Levothyroxine

Make sure to get same brand of Levothyroxine at every prescription

Retesting bloods in 6-8 weeks

Consider DIO2 gene test too if FT3 remains low once Levothyroxine dose is increased high enough to take FT4 near top of range and once vitamin levels are optimal

thyroiduk.org.uk/tuk/testin...

foxyeyes profile image
foxyeyes in reply toSlowDragon

Thanks SlowDragon not seeing Endo just GP but he is very understanding I am going to see him tomorrow if I can and ask for increase see what he says will show him blood results from Blue Horizon as he knows I do private tests.

foxyeyes profile image
foxyeyes in reply toSlowDragon

Hi SlowDragon have just had a look and almus don't do 25mcg so might have to mix them.

SlowDragon profile image
SlowDragonAdministrator in reply tofoxyeyes

You can cut almus 50mcg in half using a sharp craft scalpel

foxyeyes profile image
foxyeyes in reply toSlowDragon

thanks SlowDragon

foxyeyes profile image
foxyeyes in reply tofoxyeyes

Hi SlowDragon have been to GP today he has said I have Fibromaralga and said my symtoms are due to that said I would be over medicated with extra thyroxine he was very understanding but said I can't blame my thyroid for everything was with him for about 30mins had a long talk with him but couldn't budge him on it so might self medicate I have been on myers autoimmune diet for a week and have found out I hate coconut and sweet potatoes

Marz profile image
Marz in reply tofoxyeyes

SlowDragon will not have seen your reply as you inadvertently replied to yourself 😥

SlowDragon profile image
SlowDragonAdministrator in reply tofoxyeyes

FT4 is only 40% through range

FT3 37% through range

Helpful calculator for working out % through range

chorobytarczycy.eu/kalkulator

So you are a good converter of FT4 to FT3....just not on high enough dose of Levothyroxine

Though conversion can decrease as TSH drops

Aiming for FT4 to be roughly 75-80% through range

Fibromyalgia is often linked to low FT3 (which you currently have)

Few links about fibromyalgia

healthrising.org/blog/2019/...

thyroiduk.org/tuk/research/...

thyroiduk.org.uk/tuk/relate...

stopthethyroidmadness.com/f...

prohealth.com/library/new-t...

chriskresser.com/low-t3-syn...

clinicaltrials.gov/ct2/show...

holtorfmed.com/download/chr...

healthrising.org/blog/2019/...

First step is to get all vitamins optimal and well established on strictly gluten free diet

Email Dionne at Thyroid Uk for list of recommended thyroid specialist endocrinologists. You may need to go over GP's head to get official dose increase in Levothyroxine

thyroiduk.org.uk/tuk/About_...

Getting full Thyroid and vitamin testing again in 6-8 weeks perhaps......

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance.

But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

please email Dionne at

tukadmin@thyroiduk.org

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