Thyroid problems was Lyme disease.: Hi all ,only... - Thyroid UK

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Thyroid problems was Lyme disease.

Darrenshere
Darrenshere
21 Replies

Hi all ,only wrote once before on this forum. I was diagnosed was hypo in 2017 ,my thyroid was totally flat . Also got a scan and my thyriod had shrinked .I was put on eltroxin and suffered for 9 months .with every symptom sore head ,neck ,feet, legs arms in all joints and muscles ,bowel bladder problems heart ,eyes ,tremors .cramps , Muscle twitches ,stomach .dizziness , not sleeping well or sleeping to much, fatigue the list goes on . Anyway I weaned myself of the eltroxin and most the symptoms stopped .all my results are good tsh t3 t4 free t3 free t4 vit vit b and all the rest to . All the symptoms were coming and going 1 at a time bouncing around my body by this time I'd seen 3 endo specialists .so about a year and a half after been diagnosed I done a Lyme test sent it to Germany and it came back positive the Lyme attacked and infected my thyroid and has very very similar symptoms as thyroid problems ..starting meds tomorrow along course of antibiotics for a year and hopefully get back on my feet .. just thought I'd tell yous my story and not to be stuck looking over and over you thyroid results. Thanks for reading this. Hope it might help someone . From Hopeful 39 year-old dad of 5.

21 Replies
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SeasideSusie
SeasideSusieAdministrator

Hopefully you've got to the bottom of your problem Darren. Good luck with your treatment, I hope it goes well. Do come back and update us from time to time :)

1 like
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Darrenshere

Thank you..

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MissGrace

Thanks for the info. Getting a proper diagnosis is so key to standing any chance of getting the right treatment and feeling better. Good luck with your recovery. 🤸🏿‍♀️

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Darrenshere

Thank you

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G2G2

Thank you for posting your experience. Lyme gets diagnosed far too infrequently. In the US, most labs are entirely unreliable with false-negs & false-positives. I question while Lyme is being tested, why other tick-borne diseases aren't also tested at the same time.

Hope you're feeling better soon!

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Darrenshere
Darrenshere
in reply to G2G2

Thank you..

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thyr01d

Thanks Darren and well done for working it out.

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dtate2016

Thanks so much for sharing what works. Question: What antibiotic was prescribed / effective? What led to Lyme discovery?

Thanks again for sharing.

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Darrenshere

Hello. I am currently on triple antibiotics and probiotics .8 types of supplements and vitamins immune booster and ldn (low dose netroxne) a lot of meds. How the Lyme was discovered. The doctors told me they had no idea what it was and at the start thought it was auto immune prob. My symptoms were severe for some one who's thyroid was working fine .I got x-rays ,scans lots of blood samples urine samples etc put nothing showed up.seen 3 endo specialists and 3 doctors . So I was talking to a fella in the local hardware store and he told me that he had the same problem a few years before and got diagnosed with Lyme .he suffered multiple organ failure and had no power in his left side . He had a long list of problems and tests and doctors could find nothing.He told me were to get my bloods done and that were I am now..hope this was of some help

Please contact me if I can help you in any way.

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abigailfrances

Did you get tested for this on the NHS? My doctor is so dismissive. Thank you

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Darrenshere

Hi.no I had to go private .. my doctors would not take me on here either. Got a private test done with armin labs Germany cost was (€580). Then I sent the results to a specialist in Dublin. It's got common around here now (donegal Ireland ) so the doctors are starting to tune in more.. please don't be afraid to contact me again if I can help in anyway.

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Hormone-hell

Hi, I hope you experience improvements in your health soon! Please msy I ask what test you had done? Was it the ELISA blood test?

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Darrenshere

No it was through armin labs ..they deal specifically in infectious diseases.

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Hormone-hell

Thank you

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dogtired

Thanks for posting this Darrenshere. I was bitten when I was 10 yrs and not long after had afever and paralysis of my legs. Recovery was slow but not 100%......this was in 1952 & there was no connection between tics & lyme infection so it was dx as a rheumaticy condition. I was bitten again last June and had a large EM rash plus a few nasty symptoms. I sent to armin labs in Germany and got the dx with advice to my gp on further testing which could be done here in the uk. The tests were never followed up & I was told that I was cured after 2 weeks of doxycycline. This seems to be the NHS gold standard treatment for lyme disease!

Symptoms return frequently .....I don't think they are thyroid related but I just don't know & I don't want to spend another £400+ on more tests........wish I could find an infomed doctor.

I hope you are improving.....good luck.

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Darrenshere

Hello .. doc Lambert in Dublin is the man you need to c. i am deff coming around slowly but surely . 2 weeks of antibiotics is a joke . I am on month 7 of a triple antibiotic course. Not to mention ldn and 8 types of herbs and 2 types of probiotic for stomach that Lambert also has me on . If there is any way I can help please feel free to contact me.. hope you find the result you need..

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Darrenshere

Also you can email your results from armin labs to dr Lambert and they will explain to you what they mean .. as they are so difficult to understand..

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dogtired

Thankyou Darrenshere.......will see where this leads!

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NWA6

😱 oh my! What a story! Thank you for posting! Great to hear from a fellow countryman!

dea-shláinte agus saol fada

(hope that’s right, I’m a bit of a fake Irish! From the North I’m afraid 😂)

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Darrenshere
Darrenshere
in reply to NWA6

He he .. I don't even speak Irish so your doing better than me 🤣

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NWA6
NWA6
in reply to Darrenshere

Me neither but I always thought it would be grand to learn but being being Irish it never was 😂

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