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Thyroid UK
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Thyroid problems was Lyme disease.

Hi all ,only wrote once before on this forum. I was diagnosed was hypo in 2017 ,my thyroid was totally flat . Also got a scan and my thyriod had shrinked .I was put on eltroxin and suffered for 9 months .with every symptom sore head ,neck ,feet, legs arms in all joints and muscles ,bowel bladder problems heart ,eyes ,tremors .cramps , Muscle twitches ,stomach .dizziness , not sleeping well or sleeping to much, fatigue the list goes on . Anyway I weaned myself of the eltroxin and most the symptoms stopped .all my results are good tsh t3 t4 free t3 free t4 vit vit b and all the rest to . All the symptoms were coming and going 1 at a time bouncing around my body by this time I'd seen 3 endo specialists .so about a year and a half after been diagnosed I done a Lyme test sent it to Germany and it came back positive the Lyme attacked and infected my thyroid and has very very similar symptoms as thyroid problems ..starting meds tomorrow along course of antibiotics for a year and hopefully get back on my feet .. just thought I'd tell yous my story and not to be stuck looking over and over you thyroid results. Thanks for reading this. Hope it might help someone . From Hopeful 39 year-old dad of 5.

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Hopefully you've got to the bottom of your problem Darren. Good luck with your treatment, I hope it goes well. Do come back and update us from time to time :)

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Thank you..

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Thanks for the info. Getting a proper diagnosis is so key to standing any chance of getting the right treatment and feeling better. Good luck with your recovery. 🤸🏿‍♀️

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Thank you

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Thank you for posting your experience. Lyme gets diagnosed far too infrequently. In the US, most labs are entirely unreliable with false-negs & false-positives. I question while Lyme is being tested, why other tick-borne diseases aren't also tested at the same time.

Hope you're feeling better soon!

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Thank you..

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Thanks Darren and well done for working it out.

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Thanks so much for sharing what works. Question: What antibiotic was prescribed / effective? What led to Lyme discovery?

Thanks again for sharing.

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Hello. I am currently on triple antibiotics and probiotics .8 types of supplements and vitamins immune booster and ldn (low dose netroxne) a lot of meds. How the Lyme was discovered. The doctors told me they had no idea what it was and at the start thought it was auto immune prob. My symptoms were severe for some one who's thyroid was working fine .I got x-rays ,scans lots of blood samples urine samples etc put nothing showed up.seen 3 endo specialists and 3 doctors . So I was talking to a fella in the local hardware store and he told me that he had the same problem a few years before and got diagnosed with Lyme .he suffered multiple organ failure and had no power in his left side . He had a long list of problems and tests and doctors could find nothing.He told me were to get my bloods done and that were I am now..hope this was of some help

Please contact me if I can help you in any way.

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Did you get tested for this on the NHS? My doctor is so dismissive. Thank you

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Hi.no I had to go private .. my doctors would not take me on here either. Got a private test done with armin labs Germany cost was (€580). Then I sent the results to a specialist in Dublin. It's got common around here now (donegal Ireland ) so the doctors are starting to tune in more.. please don't be afraid to contact me again if I can help in anyway.

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Hi, I hope you experience improvements in your health soon! Please msy I ask what test you had done? Was it the ELISA blood test?

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No it was through armin labs ..they deal specifically in infectious diseases.

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Thank you

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