Results help: Hi all Had TT aug 18 cancer Rai in... - Thyroid UK

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nothyroid2018 profile image
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Hi all

Had TT aug 18 cancer

Rai in Oct

Last bloods Nov TSH 5.03

Given dose increase 26th dec to 200mcg Levo

Had bloods by GP yesterday just see levels and no change in meds. Next test is feb

I did hydrate day before and took meds after bloods

TSH 0.48mu/l (0.38-5.33) am I still hypo?

Ft3 6.7pmol/l (3.8-6.2)

Ferritin 48ug/l (24 - 336)

Bought gentle iron 20mg 1 capsule per day

Folate 5.3ug/l (3.1 - 19.9)

Bought folic acid 400ug 1 tablet daily

Vit b12 377 ng/l (180-914)

Bought b12 500ug take twice a day

Vit d 60.2 nmnol/l

Bought d3 25ug 1 tablet per day

Does TSH still need to come down?

When should I take supplements?

Still tired

Muscle pain

Chills

Brain fog and forgetful

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nothyroid2018
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pennyannie profile image
pennyannie

Hello nothyroid2018

I'm without a thyroid from RAI ablation in 2005.

Just as a point of reference, a fully functioning working thyroid would give you daily approx. 100 T4 + 10 T3.

I think if anyone has any form of medical intervention and is left without a working thyroid it is only common sense to replace both the known and available hormones as a given, on the prescription pad.

With the option of both T3 and T4 you then have the facility to find the unique ratio between these two hormones that gives you back your wellbeing.

I know some people manage on monotherapy, but some people don't and surely this should be acknowledged and the option available if "T4 alone doesn't do it " for you.

I'm now self medicating with NDT having been refused a trial of T3 by my local hospital.

I feel a million times better, have stability, and but for the odd typo, my brain is back.

nothyroid2018 profile image
nothyroid2018 in reply to pennyannie

Thanks

As suggested by pennyannie, you will be most unlikely to get satisfactory health by taking levothyroxine alone if you have no thyroid gland. It took me 8 years to finally realise that after the last GP I saw in 2014 said to me "you need to go away and sort yourself out, I have other patients waiting".

Went onto Thai NDT and now stick with Thyroid-S after trying other brands which for me were totally inadequate.

I would not bother with Liothyronine as that is by all accounts not suitable if you don't have a thyroid gland.

Look into the subject of Individual Funding Requests if you don't get well and consider submitting one through your GP. You can find out about them on the website of your local Clinical Commissioning Group.

TSH and other thyroid blood tests mean nothing when your body is starved of the minor hormones that NDT contains but which the NHS considers to be totally unnecessary for the proper functioning of the human body,

I was ill on every dose of levo I ever received from 25 up to 200 per day, at which point as my TSH was presumably very low but I still felt ill.

One important fact you must always bear in mind is that synthetic T4/Levothyroxine and synthetic T3/Liothyronine are exactly what it says on the tin - SYNTHETIC, MAN-MADE CHEMICALS. The triiodothyronine (T3) and tetraiodothyronine (T4) contained within NDT are also exactly what is says on the tin - NATURAL PORCINE HORMONES.

The 2 pairs are NOT the same, they behave in different ways, they have a different chemical formula and they are presented to the body in a different manner. This also begs the question as to why so many medical "professionals" believe that the extra dose of natural T3 in NDT will give you an overdose (make you "hyperthyroid"???). You cannot predict how one chemical will work based on how a different chemical works! What hypocrites they all are when they refuse to licence NDT because it has not been subjected to sufficient trials even when it was the only product used to successfully treat Primary Hypothyroidism for many decades.

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