Vitamins help

[nothyroid2018]

Hi all

Thanks to shaw I see people who have had a TT

Should be taking b12 because our body’s don’t absorb it according to the thyroid UK

Why has my GP not told me this?

How long after taking Levo should you wait before taking vitamins?

Thanks

[greygoose]

Because GPs know nothing about it. They know little about thyroid, and even less about nutrition. You can't tell people what you don't know. But, the even greater danger is that, because they don't know, they tend to make it up as they go along, giving people bad advice. Far better they keep quite, as far as I'm concerned.

[Hennerton]

I have never spotted this info on a post from Shaws. Could you please direct me to it or enlarge on it, as I have had TT and do take B12 but not regularly. I had no idea we needed it so badly. Thank you!

[nothyroid2018 in reply to Hennerton]

thyroiduk.org.uk/tuk/treatm...

[Hennerton in reply to nothyroid2018]

Thank you so much for posting this. As I said, I do take it and also folate but I had no idea it was absolutely necessary with TT. Before I discovered Health Unlocked in 2013, I had been seven years without it. Why was I not suffering very badly, I wonder? And as you say, why did my consultant or the surgeon who did TT not warn me?

[nothyroid2018 in reply to Hennerton]

I am suffering badly at the mo. Had my TT in aug last year and rai in Oct. my last bloods in nov was a TSH of 5.03.

NHS is so bad at looking after use

GP is a waste of space too

Need to look after my self and demand what I need.

Hope to find out about my vitamins this Friday in my blood results

[Hennerton in reply to nothyroid2018]

So sorry you are suffering but I see SlowDragon has written to you with great advice. I hope things improve quickly. Your TSH is much too high but I am sure you realise that. You definitely need either more T4 or the addition of T3. You will find out if you do the blood tests suggested and post again here.

[Hidden in reply to Hennerton]

Why not have your B12 tested first that's why I did. Mine was in the upper range in 2017 and slightly lower in 2018. I don't take supplements because I have enough even without my thyroid.

[Hennerton in reply to Hidden]

Yes, I know I should do that. Thank you for reminding me. I am always reluctant to get blood tests as I have tiny veins and it is usually a struggle.

[Hidden in reply to Hennerton]

I only have one per year Medichecks Ultra. My veins are easy to use but I always order the nurse who comes to the house for an extra £39. To me it's worth the money. After the test I post the results with the ranges on here for answers.

[Hennerton in reply to Hidden]

Thank you! Will do.

[SlowDragon Administrator]

For full Thyroid evaluation you need TSH, FT4 and FT3 (plus both TPO and TG thyroid antibodies) tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if under medicated or autoimmune thyroid disease

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Getting vitamins optimal is essential and thyroid dose often needs fine tuning

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

[e-mail]

Professor Toft recent article saying, T3 may be necessary for many otherwise we need high FT4 and suppressed TSH in order to have high enough FT3. Note especially his comments on current inadequate treatment following thyroidectomy or RAI

rcpe.ac.uk/sites/default/fi...

Many people need small dose of T3 added after thyroidectomy or RAi