My blood results private from blue horizon - Thyroid UK

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My blood results private from blue horizon

Gary19610 profile image
13 Replies

Why would my T4 keep going up when I take more Levo it was 21 the last blood test and TSH 9 .So from 125mg Levo I went to 100mg and T4 went to 18.I have Hashmotos I am gluten free my antibodies have come down by 1000 taken 2 years been gluten free just other 2 years .

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Gary19610 profile image
Gary19610
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13 Replies
Greybeard profile image
Greybeard

It's the hashi's Gary. When the antibodies attack your thyroid, thyroid hormones are released into your system which plays havoc with your blood hormone levels.

Gary19610 profile image
Gary19610 in reply to Greybeard

Yes been gluten free about 2 years antibodies come down by a 1000.

Greybeard profile image
Greybeard in reply to Gary19610

Yes spotted that on a second read. They are still over range, so more damage is likely still happening. Your tsh is still too high, people feel best when it is below 1, and your vit d is too low.

Gary19610 profile image
Gary19610 in reply to Greybeard

Yes but my T4 will go very high or do,s that not matter if it go,s high.will I go hyper with a high T4. And think my B12 is low to

Greybeard profile image
Greybeard in reply to Gary19610

As long as ft4 doesn't go over range you are ok, your body converts t4 into t3, low ft3 is what causes us problems, yours is 4.32 so not very high, people often feel best when it is over 5, again you don't want it going over range.

Gary19610 profile image
Gary19610 in reply to Greybeard

The endo told my Doctor to watch my t4 has it was getting high

ShootingStars profile image
ShootingStars

Hi Gary 19610. I am not sure I understand your question. The more T4 (Levo) you take, the higher your FT4 will be. You took 125 and your FT4 was 21. You reduced the dosage from 125 down to 100 and your FT4 went down to 18. What is interesting is that at the higher dose of 125 your TSH was higher (9) than at the lower dosage (5). Normally as your FT4 is increased by taking a higher dose of T4 your TSH will go down, not up. Hashimoto's can do strange things.

Did you have your vitamin D tested previously when you received the 21 FT4 result? I'm wondering if your D level was lower and if that could have possibly influenced your TSH?

Gary19610 profile image
Gary19610 in reply to ShootingStars

No this is the first time I have hat vitinmin D done.so what I am saying is to get my TSH to 1 my T4 is going to go very high because 125mg of Levo get my TSH 9

ShootingStars profile image
ShootingStars in reply to Gary19610

Yes, you would not want to do that. 21 FT4 is too high in the range anyway and causes symptoms. Do your other blood results from while you were on all of the lower doses of levo show the same pattern? If so, and there is a consistent pattern like this, then something else must be going on. This is very strange. Thyroid medication should raise FT4 and usually FT3 level (unless there’s a conversion problem), which results is lower TSH, not increase it.You definitely do not want to raise you FT4 much higher than it is. You would have other symptoms and problems.

Raising FT3 lowers TSH. Since your FT3 is much too low at 4.32, and is not even half range 4.95, you might be a good candidate to try adding some T3 to try to lower TSH. Adding more T4 will raise your FT4 too high and if you have consistently increased TSH when FT4 is high, that would not be good either.

What are your symptoms?

Gary19610 profile image
Gary19610 in reply to ShootingStars

Weak muscle headaches bit of brain fog and tired by the afternoon.But could that because of B13 and vitamin D been low

ShootingStars profile image
ShootingStars in reply to Gary19610

Autoimmune and thyroid symptoms. Low B12 and low D aren't helping. How are you addressing both of these low vitamins?

Gary19610 profile image
Gary19610 in reply to ShootingStars

Just waiting for my order to arrive for b12 and D

greygoose profile image
greygoose

Gary, you have a conversion problem. That is to say, you cannot convert T4 to T3 very well. It's very often the case with people who have Hashi's. And, the only solution is to reduce your dose of levo, and add in some T3.

However, that is fraught with problems because very few endos with prescribe T3 these days, and people have to source their own.

As to the Hashi's, you may reduce your antibodies, but there's no guarantee that that is happening, because antibodies fluctuate all the time. And, even if you managed to get rid of all the antibodies, that would not mean that you had got rid of the Hashi's, because the antibodies are not the disease. They are the result of the disease. The Hashi's will still be there, even without the antibodies.

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