In my last post about my latest results greygoose pointed out that my TSH / FT4 / FT3 results suggested that I wasn't converting very well now and that I needed to introduce T3.
I was going to go along the self-treating route but I'll be honest I can't stand any potential confrontation with my GP explaining my results further down the line, so have been burying my head in the sand of late hoping this whole damn thing would just go away (which I know it won't)
Now, in the past 24hrs I have been texted and rung out of the blue by my surgery telling me that I must have a medication review and blood tests, with their 'Clinical Pharmacist' in the next 2 weeks or they will stop my medication, which is only Levo'.
Previously I have sent them all copies of my private blood test results each time (because they refuse to test FT3) with a letter explaining that I have been working alongside the support network at TUK (reminding them of the link from NHS Choices) and that my results, despite the suppressed TSH, have been moving in the right direction (pointing out Dr Toft's BMA article too). I have explained that I have a fresh batch of private blood test results which I will give them, to save the NHS money testing again but they are still insisting on testing my blood pressure for some reason and talking to me about my prescription.
A reminder of my past 3 results...
May 2017 (Blue Horizon)
TSH 0.23 (0.27 - 4.2)
FT4 16.55 (12 - 22)
FT3 4.29 (3.1 - 6.8)
Total T4 106.7 (64.5 - 142)
December 2017 (Medichecks)
TSH 0.044 (0.27 - 4.2)
FT4 16.9 (12 - 22)
FT3 4.6 (3.1 - 6.8)
Total T4 101 (59 - 154)
April 2018 (Medichecks)
TSH 0.048 (0.27 - 4.2)
FT4 19.4 (12 - 22)
FT3 4.19 (3.1 - 6.8)
Total T4 106 (59 - 154)
TPO over the past 2.5yrs has gone down from 1115 - 199. I have been GF for 18 months, get selenium from Brazil nuts (labelled with selenium). Vit D, Ferritin, CRP and B12 are perfect and I have reintroduced Thorne Basic B Complex to address current low Folate.
My questions are...
1. I take my 125mg Levo at bedtime & do my bloodtests at about 7.30am, plus stop taking my B Complex a week before. Because there is a longer gap than 24hrs between last Levo & blood test, could this have this reflected in my FT3 result? Eg. Bloodtest Tuesday morning means last Levo is taken Sunday night.
2. If you still think I am not converting well and need T3 too, how do you all deal with self treating and informing / not informing your GP, bearing in mind annual reviews?
3. Again, if you think I do need T3, what can they do if I just give them my latest results and tell them that I'm going to source my own T3 based on the advice given here? I hate secrets, hate confrontation...but I hate the GPs at my practise even more.
I have been referred in the past to an Endo when all this started, but he dismissed me as my TSH was 0.12 (0.35 - 5.5) & FT4 17.2 (10 - 19.8). Nothing else mattered, so referring me for T3 seems like a no-go.
Just want to be alone to get on with it with TUK.
Thanks everyone xx