My results ? Lots of abnormals !

[Pearl1981]

Hypo symptoms are back

In the last two months these symptoms have come back:

Joint pain joint redness with swelling and stiffness

Dry skin

Crushing tiredness (not sleepiness)

Constipation

Sweating

Hair loss (have bald patches will soon need to wear wigs again)

Hair brittle

Nails brittle

Thyroid pain on and off having it ATM as typing this (used to have severe agonising bouts of thyroid pain as a teen)

Swollen fingers face

Brain fog so bad

Concentration so so bad

Mood is ok because I take herbs

Severe heavy periods

I think my iron drops because I'm mostly a vegeterian with endometriosis so periods are so heavy they are flooding basisally.

And some other results are off too but don't understand them

Free t4 0.97 (ref 0.70 - 1.48)

Free t3 2.50 (ref 1.71 - 3.71)

Ferritin has dropped again from 98 to 30

Vitamin b12 681(ref: 187 - 883)

& d3 67 (ref: 30 - 100)

Abnormal LDH 118 (ref 150-220) apparently my vitamin c intake effected it and made it low

Abnormal WBC 11.26 (ref up to 10.10)

Abnormal NEU# 7.28 (ref up to 6.96)

Abnormal LYM # 3.28 (ref up to 2.99)

Abnormal eos# 0.00

Abnormal eos % 0.00

Abnormal MCV 79.1 (ref 89.0 and above)

Abnormal MCH 26 (ref 27.0 and above to 31.2)

I am awaiting reverse t3

Do you think I'm under medicated or I'm making too much reverse t3?

[Pearl1981]

Converted into pmol/l

My Free T4 is 12.48

My Free T3 is 3.84

[greygoose]

What are you taking, and how much? And how long have you been on that dose?

You're under-medicated, both your Frees are under mid-range.

If your rT3 comes back high, it will probably be from your low ferritin, because your FT4 isn't high enough to convert to excess rT3.

[Pearl1981 in reply to greygoose]

Hello grey goose thanks so much for your fast response!

I'm on 4 grains of thiroyd by greater labs Thailand , natural desicated thyroid

I'm shocked that after 4 grains...I'm still hypo.

Mum is awfully hypo and doing badly on levo but afraid to change and nan was hypo too. Think it's genetic.

I have worked my way up to 4 grains in 2 years.

[greygoose in reply to Pearl1981]

That is surprising. But, how do you take your hormone? Do you take it on an empty stomach and wait at least one hour before eating or drinking? Do you take any other medication or supplement at the same time?

[Hidden in reply to greygoose]

I've seen some opinions about only having to wait 1/2-1 hour after taking thyroid meds before eating. When I've been in the hospital I have been brought thyroid med 1/2 hour before breakfast trays arrive. They get upset because I've brought my own meds from home and have already taken them.If the nurse fusses I ask to speak to the doctor. I explain to him that as I'm usually only hospitalized for2 maybe 3 days, it doesn't make sense to change my med schedule because staff is running late. The doctor usually understands. Sometimes they want me to let them send my meds to the pharmacy to be verified. I don't allow this either. And don't allow them out of my possession. Being told my way of doing things is not allowed holds no water with me. I am the customer and they can be annoyed but I will do things my way if it means better care, At home I set my phone alarm for 5a or 6a depending on if I have to leave early. My meds and water are on my nightstand and as soon as I take the meds (only thyroid by itself) I go right back to sleep at least 2 hours. This gives my thyroid meds every chance to be absorbed. I'm 74 and I believe as we get older and slow down in general, it makes sense that perhaps my meds are not absorbed as quickly now. This seems a good plan for me, in my opinion. Iknow this can be hard to do but worth a try. I'm a retired nurse and not easily intimidated by the healthcare system. Most of the hospital rules are for staff convenience anyway. Been there done that!

[greygoose in reply to Hidden]

One French hospital I was in - thankfully for only three days - the thyroid meds were served with breakfast. And breakfast was a large bowl of milky coffee! When I commented on this, the nurse's aid went back to the nurse and said something, and I could hear the nurse screaming from the other end of the corridor "she'll get her meds when I decide to give them to her!!!" Wow! Such an educated approach!

[Hidden in reply to greygoose]

More common than patients can imagine.

[Pearl1981 in reply to greygoose]

hello I had my blood tested and this is my result that's just come back for reverse t3

Reverse T3 16 ng/dl

Reference range (10-24 ng/dl)

Free t4 0.97 (ref 0.70 - 1.48)

Free t3 2.50 (ref 1.71 - 3.71)

btw I'm back on my usual brand now and feeling good again.

[greygoose in reply to Pearl1981]

Well, that's great then. Result!

[Pearl1981 in reply to greygoose]

Grey goose do you think it's ok the reverse ? As you said I won't be making too much as my t3 is not high enough. I also got low iron

[greygoose in reply to Pearl1981]

It's got nothing to do with your T3, it's high FT4 that causes high rT3. And your FT4 is not high enough to cause it. So, yes, your rT3 is fine.

[Pearl1981 in reply to greygoose]

Thanks! I've been reading for two years and I still am learning /forgetting 😂The low iron - bad memory doesn't help I guess

[greygoose in reply to Pearl1981]

It's a continuel struggle! We have to learn like little kids : repetition, repetition, repetition! lol

[Pearl1981]

The story goes

I used to take these tablets under my tongue but after falling asleep with no talking chewing swallowing I woke up with the whole amount of tablets dissolved but non absorbed so I guessed it wasn't a good way to take them.

Fast forward swallowing with food made me feel like death

Then in this month been taking it when I wake up then waiting one hour to eat . Symptoms are still bad but slightly better than taking with food. And the best way seemed sublingually?

[greygoose in reply to Pearl1981]

All thyroid hormone replacements are designed to be dissolved in the stomach. The molecules are too large to be absorbed under the tongue.

[Pearl1981]

I don't take any other pills for atleast 3 hrs after that. I wake up at 6:30 on empty stomach then take the pills and wait one hr to eat breakfast

[Pearl1981]

Also I usually take my tablet at 6:30am and got the test done around 4pm the next day so I hadn't taken my thyroid meds for over 24hrs

I hope this wasn't an issue

My finger joints are hurting as I type this 🙄😂🤕

[greygoose in reply to Pearl1981]

Your TSH would have been at its lowest around that time.

[lb003]

Hi. Have a look at my recent post on Thiroyd. I've received a duff batch and so has another member of this forum. I've gone rapidly downhill on the latest batch, even though I've been ok on Thiroyd for some years.

If you pm me I'll tell you where I bought mine and the batch number so that you can check yours.

[Pearl1981 in reply to lb003]

Omg thank you! I've also recently started a new pack! Come to think of it I've felt bad since starting this new pack.

[Hele1 in reply to Pearl1981]

Hello I’ve recently gone downhill on Thiroid and my bloods are now below range whereas they were top 1/3 before. My batch number is 1500053. I emailed my supplier who said he hasn’t had any othe complaints and to just take more. I have been wondering if they are fakes :/

[Pearl1981 in reply to Hele1]

I think you have the same batch number as me let me check

[Pearl1981 in reply to Pearl1981]

Yes it's the same if only we can post pics of it

[Pearl1981 in reply to Pearl1981]

I wanted to ask where u purchased it because it maybe not be the batch but the seller

[Reeserone3717 in reply to Hele1]

Big Pharma makes money by selling fake meds and the government order from the lowest bidder. Each time i get my meds the pills are a different color and manufacture.

[Hidden in reply to Hele1]

I take thyroid s which I order from Thailand, and feel that this batch hasn't had any effect on me at all, I contacted the supplier last week and still have had no reply 😕 Honestly think they are fakes I have been taking.

[Pearl1981 in reply to Hidden]

Stop taking them if you feel like they are not helping you. I've started a different (old) batch and I feel much better. I've lost 1kg already in swelling. My cycle is messed up this month from these dudd pills I have had a period every 23 days and bleeding in between. It's effected everything. Even my eyebrows have fallen out in places. I'd urge you to bin them. Your health is more important than a refund. Which I doubt any of us will get. Can you PM your supplier and batch number pls? Just interested if it's the same as my fake ones

[Hidden in reply to Pearl1981]

Thanks for your reply, I could actually cry reading it because it is like it's written by me, I have all those symptoms again after being on this batch for a few months. I was actually getting my life in order again after starting on ndt initially, my body felt as if it was my own again but it's slowly falling apart again. Well not so slowly tbh. I wasn't hoping for a refund, just wanted to know wether it was actually a faulty batch or my body. Have got an app with my docs and I know I will have to go back on Levo again 😩 I'll message you the batch number and supplier x

[Pearl1981 in reply to Hidden]

It seems to be a different batch make and supplier to mine, the supplier is actually an approved supplier on TPAUK, I'm getting nervous that even the approved suppliers pills are no good. Have you had any blood tests to see where your levels were at?

[Hidden in reply to Pearl1981]

I'm was due back at my gp for bloods next week but will need to see him this week now. He wasn't keen on me trying ndt and said I would be safer sticking to levo as it was what was advised by the NHS, but said he would still have my bloods done as if I was on levo to check levels. He's never had a patient on ndt before (I stay in a tiny village) and I felt as if he didn't really know much about it tbh, I actually felt more informed than him! I can see the appointment far enough, think it will be a case if I told you so. And even after this it's not put me off but I don't know anywhere else to source ndt. Such a frustrating situation x

[Pearl1981 in reply to Hidden]

Does he know your TSH will be nearly 0 on the NDT this will most likely make him panic

[Pearl1981 in reply to Hidden]

Were you on an NDT that suited you before these ones ?

[Hidden in reply to Pearl1981]

I was on thyroid s and it was great. But Iv not been able to get it from that same place again. Iv made an app for doctors for Thursday. I'm wondering how much damage Iv done to myself if Iv been on these tablets for 10 weeks and they are not genuine. Iv been feeling gradually worse over last few weeks and now realise this is what it's been.

[Reeserone3717 in reply to lb003]

I to am having chronic burning joint pain, nausea, very brittle thin hair, dry skin and Depression. My T4 did convert to T3, Hypothyroid level dropped to 0.43 severely low, Vit D level abnormal taking 1,000 IU of Vit D3 bc my stomach is not properly absorbing Vit D. Nothing helps pain & pain wakes me up. Plz help!! Thanks God Bless

[Pearl1981 in reply to Reeserone3717]

If you don't get any answers here start a new thread and people will help you. Everyone's been very helpful to me here

[SlowDragon Administrator]

Presumably you have Hashimoto's also called autoimmune thyroid disease diagnosed by high thyroid antibodies

If so are you on strictly gluten free diet?

Your vitamin D is too low. Are you supplementing vitamin D? If so how much.

And ferritin too low. Not sure about iron results. Others are much more expert on iron

There's no folate result

[Pearl1981 in reply to SlowDragon]

Thanks slow dragon. Do you have any idea why ferritin drops all the time? Is it hypo Thyroidism plus my diet (very low in meat) combined with very bad heavy periods?

[SlowDragon Administrator in reply to Pearl1981]

You probably need to assume it's Hashimoto's until proved otherwise

Definitely stick on strictly gluten free diet

Low ferritin likely due to combination of heavy periods (classic hypothyroid symptom), gut malabsorption due to mix of being hypo and possibly gluten intolerant and levels of Thyroid hormones still low

Eating liver once a week should help improve. You can hide it in dishes or make home made liver pate

[Pearl1981]

I don't know if I am auto immune i wasn't told I was just told I was hypo thyroid my TSH was 17 at the time

My folate is 16.3 (3.1 - 20.3)

[greygoose in reply to Pearl1981]

Well, you certainly were hypo, but the question is : did they test your antibodies? It's important to know.

[Pearl1981 in reply to greygoose]

I had a tpo test recently it was 0.8 I'm guessing negative ref 0-9

[greygoose in reply to Pearl1981]

No, you can't guess at ranges, you have to know. That looks very low, but who knows.

[Pearl1981 in reply to greygoose]

Now that I have found my old pack of NDT from a trusted supplier I have started taking 4 grains

How long do I wait to do new blood tests?

Thanks

[greygoose in reply to Pearl1981]

I would leave it at least six weeks. Because it takes that much time for the T4 to be completely absorbed and converted.

[Pearl1981 in reply to greygoose]

And I will wait24 hrs between dosing and blood tests. I've found an excellent clinic that tests cheaply and the phlebotomist is a gem he doesn't hurt me at all.

[greygoose in reply to Pearl1981]

I've never had a phlebotomist hurt me. My problem is they often can't get any blood!

Remember that the earlier you have the test, the higher your TSH.

[Pearl1981 in reply to greygoose]

Grey goose do you think that the inability to easily draw blood is a thyroid issue? I used to have this problem so I would be pricked 5-10 times hence the phobea to needles now. However now on the NDT the blood draws are fine. I am in Cyprus though so it may be the medical staff here are better.

I wanted to ask ....now on the other pack of NDT which was part of my original order two years ago (the ones that were good for me) I'm feeling intense hunger constantly. Hyper hunger . I ate 5 meals yesterday through out the day. The joint pain has gone now however there is still some stiffness there and my skin is supple it doesn't feel like a dry piece of dehydrated leather !!!

[greygoose in reply to Pearl1981]

So, you're thinking you're over-medicated? I don't know what hyper hunger is. When I had Hashi's flares, I couldn't eat much at all.

I don't know if the inability to draw blood is a hypo symptom. Lots of hypos complain of it, but I really shouldn't be hypo anymore. Where I live, there's a community nurse that could get blood out of a stone! He said it has nothing to do with being hypo or dehydrated, it's all down to the skill of the person taking the blood. I don't know if he's right or wrong, I just know that he never has a problem with me, whilst other nurses, phlebotomists, etc. do. So, perhaps he is right.

[Pearl1981 in reply to greygoose]

I don't feel hyper in any other way just very hungry but maybe that's my metabolism being woken up 😃

[greygoose in reply to Pearl1981]

Maybe it is!

[Pearl1981]

I'm not on strictly gluten free slow dragon I know I should be and I'm trying, but I live in cyprus at the moment it's difficult to get stuff and I'm trying to be veg due to endometriosis . I feel overwhelmed

[Sv_cy in reply to Pearl1981]

I am also living in Cyprus. It is not difficult tp be gluten free here. There are a lot of fruits, vegetables all year around, meat, fish...In AlfaMega supermarket there are different gluten free products.

Just you have to tell yourself that you don`t like bread and cakes any more

[Pearl1981 in reply to Sv_cy]

I been making my own flour with chickpea . Guessing that is gluten free. The heat is coming hey!!

[greygoose in reply to Pearl1981]

Processed gluten-free food isn't good, anyway. You need to cook your own food from scratch, and if you want cakes and bread, use gluten-free flour, or a substitute like coconut or almond flour. You can buy those on Amazon.

[Pearl1981]

Also a steady weight gain of 15lbs since the hypo symptoms have returned

[lb003 in reply to Pearl1981]

Yep me too. Steady weight gain, carpal tunnel is back, joints are very painful, insomnia is back and terrible brain fog and confusion.

[greygoose in reply to Pearl1981]

Because you're under-medicated.

[SickLeo17]

Your Iron levels are causing the hair loss.

You can get a supplement over the counter at pharmacy that doesn’t cause constipation. I’m using it and it works well.

The b12 is a concern that needs further investigation as you might have pernicious anaemia.

[mrneduc in reply to SickLeo17]

Can you tell me the supplement name. I get stomach pains with all the irons I’ve tried. The exception is flora...... which I like but not sure how effective is with ferritin of 35

[Pearl1981 in reply to mrneduc]

Hello it's called blood builder from amazon USA I couldn't find it from the U.K.

My ferritin was 4 and it raised it to 98

[Pearl1981 in reply to Pearl1981]

I took four per day with extra vitamin c.

I was in a rush to get my iron up as I was going to give birth and usually lose a lot of blood so was afraid I'd need a transfusion

[mrneduc in reply to Pearl1981]

Thanks. I’ll look for it. I’ve been told something called heme iron is good as well.

[Sv_cy in reply to mrneduc]

heme iron you can order on iHerb also. I ordered it but I made test and my iron went up a lot. Now I need to be a little careful and try to reduce it a little.

[Pearl1981 in reply to Sv_cy]

Sounds very good

[SeasideSusie Remembering in reply to mrneduc]

Here you are mrneduc I take some occasionally

amazon.co.uk/MegaFood-Daily...

[mrneduc in reply to SeasideSusie]

Started today on blood builder thanks for the tip

[SeasideSusie Remembering in reply to mrneduc]

mrneduc

I'd be interested to know how you do with it, could you update sometime please?

I haven't had a prolonged period of taking it like I did with liver. I've got a bit lazy with liver lately and have popped a few BB tablets. My latest iron panel with a combination of some liver and some BB tablets is good. I don't need any more serum iron but I would like to push ferritin up a bit more (77 at the moment so it's OK but I'd like it nearer 100) and it's probably liver not the BB tablets I really need.

[mrneduc in reply to SeasideSusie]

Ive also started making organic chicken liver pate- the only way I can stomach the stuff. I’m not anaemic as such but my ferritin is stubbornly low. Hope the B.B. helps- will update

[Pearl1981 in reply to SeasideSusie]

I'm also on it two-four per day as my ferritin low anyway plus my periods are coming with a very short space in between due to the dudd pills cycles gone awry

[Sv_cy in reply to mrneduc]

I was taking Lactoferrin from iHerb. Also you have to eat liver and beef every week.

[Pearl1981 in reply to SickLeo17]

I always have low mcv for some reason ever since I had hypo thyroid symptoms (since early teens) also im taking 2000mg metformin for pcos and insulin resistance and I hear his causes low b12. I do feel that all of my hormonal problems (endometriosis pcos insulin resistance chronic fatigue) is down to having an untreated hypothyroid for 20 years.

[Pearl1981]

Thank you sick Leo . I have had this iron problem for years and I've taken all types of iron supplements the worst being ferosanol duodenal 1000mg per day in pregnancy and 4 months before conception (13 months and no gains) and the best being this organic one made from food and it managed to raise my ferritin from 16 to 93 in 5 months. I will go back on the organic whole foods one. Woke up aching again I must get to the bottom of this issue as I was doing so well up until a few months back. A new pack of NDT and taking it non sublingually seems to have done something to me. Also blood tests show levels r falling

[Pearl1981]

I've come to the conclusion it's the new pack of tablets that I started over one month ago Although Brain isn't working right I can't even remember if it's one or two months ago I started however this co incides with feeling bad

[Pearl1981]

I have found an old opened pack of thiroyd in the cupboard which is from the original supplier not the new one that's causing problems. I have few months left on it before expiry . I will report back if I feel better on the tablets

[SCJGL]

I also have an underactive thyroid & nodules on my thyroid. If you are having pain, you need an ultrasound. My doctor's have always told me that the thyroid does not correct itself. Ask for an ultrasound & maybe look into functional medicine. A lack of certain vitamins can also affect the thyroid. I hope you are seeing an endocrinologist. Good Luck. I was in bed for a year because of my thyroid.

[Pearl1981 in reply to SCJGL]

Thank you I have never had an ultrasound after all these years of pain

Also my first marriage broke upbecause of my under active thyroid

I was exhausted depressed and overweight moody and just slept all the time