That is surprising. But, how do you take your hormone? Do you take it on an empty stomach and wait at least one hour before eating or drinking? Do you take any other medication or supplement at the same time?
I've seen some opinions about only having to wait 1/2-1 hour after taking thyroid meds before eating. When I've been in the hospital I have been brought thyroid med 1/2 hour before breakfast trays arrive. They get upset because I've brought my own meds from home and have already taken them.If the nurse fusses I ask to speak to the doctor. I explain to him that as I'm usually only hospitalized for2 maybe 3 days, it doesn't make sense to change my med schedule because staff is running late. The doctor usually understands. Sometimes they want me to let them send my meds to the pharmacy to be verified. I don't allow this either. And don't allow them out of my possession. Being told my way of doing things is not allowed holds no water with me. I am the customer and they can be annoyed but I will do things my way if it means better care, At home I set my phone alarm for 5a or 6a depending on if I have to leave early. My meds and water are on my nightstand and as soon as I take the meds (only thyroid by itself) I go right back to sleep at least 2 hours. This gives my thyroid meds every chance to be absorbed. I'm 74 and I believe as we get older and slow down in general, it makes sense that perhaps my meds are not absorbed as quickly now. This seems a good plan for me, in my opinion. Iknow this can be hard to do but worth a try. I'm a retired nurse and not easily intimidated by the healthcare system. Most of the hospital rules are for staff convenience anyway. Been there done that!
One French hospital I was in - thankfully for only three days - the thyroid meds were served with breakfast. And breakfast was a large bowl of milky coffee! When I commented on this, the nurse's aid went back to the nurse and said something, and I could hear the nurse screaming from the other end of the corridor "she'll get her meds when I decide to give them to her!!!" Wow! Such an educated approach!
I used to take these tablets under my tongue but after falling asleep with no talking chewing swallowing I woke up with the whole amount of tablets dissolved but non absorbed so I guessed it wasn't a good way to take them.
Fast forward swallowing with food made me feel like death
Then in this month been taking it when I wake up then waiting one hour to eat . Symptoms are still bad but slightly better than taking with food. And the best way seemed sublingually?
Hi. Have a look at my recent post on Thiroyd. I've received a duff batch and so has another member of this forum. I've gone rapidly downhill on the latest batch, even though I've been ok on Thiroyd for some years.
If you pm me I'll tell you where I bought mine and the batch number so that you can check yours.
Hello I’ve recently gone downhill on Thiroid and my bloods are now below range whereas they were top 1/3 before. My batch number is 1500053. I emailed my supplier who said he hasn’t had any othe complaints and to just take more. I have been wondering if they are fakes :/
Big Pharma makes money by selling fake meds and the government order from the lowest bidder. Each time i get my meds the pills are a different color and manufacture.
I take thyroid s which I order from Thailand, and feel that this batch hasn't had any effect on me at all, I contacted the supplier last week and still have had no reply 😕 Honestly think they are fakes I have been taking.
Stop taking them if you feel like they are not helping you. I've started a different (old) batch and I feel much better. I've lost 1kg already in swelling. My cycle is messed up this month from these dudd pills I have had a period every 23 days and bleeding in between. It's effected everything. Even my eyebrows have fallen out in places. I'd urge you to bin them. Your health is more important than a refund. Which I doubt any of us will get. Can you PM your supplier and batch number pls? Just interested if it's the same as my fake ones
Thanks for your reply, I could actually cry reading it because it is like it's written by me, I have all those symptoms again after being on this batch for a few months. I was actually getting my life in order again after starting on ndt initially, my body felt as if it was my own again but it's slowly falling apart again. Well not so slowly tbh. I wasn't hoping for a refund, just wanted to know wether it was actually a faulty batch or my body. Have got an app with my docs and I know I will have to go back on Levo again 😩 I'll message you the batch number and supplier x
It seems to be a different batch make and supplier to mine, the supplier is actually an approved supplier on TPAUK, I'm getting nervous that even the approved suppliers pills are no good. Have you had any blood tests to see where your levels were at?
I'm was due back at my gp for bloods next week but will need to see him this week now. He wasn't keen on me trying ndt and said I would be safer sticking to levo as it was what was advised by the NHS, but said he would still have my bloods done as if I was on levo to check levels. He's never had a patient on ndt before (I stay in a tiny village) and I felt as if he didn't really know much about it tbh, I actually felt more informed than him! I can see the appointment far enough, think it will be a case if I told you so. And even after this it's not put me off but I don't know anywhere else to source ndt. Such a frustrating situation x
I was on thyroid s and it was great. But Iv not been able to get it from that same place again. Iv made an app for doctors for Thursday. I'm wondering how much damage Iv done to myself if Iv been on these tablets for 10 weeks and they are not genuine. Iv been feeling gradually worse over last few weeks and now realise this is what it's been.
I to am having chronic burning joint pain, nausea, very brittle thin hair, dry skin and Depression. My T4 did convert to T3, Hypothyroid level dropped to 0.43 severely low, Vit D level abnormal taking 1,000 IU of Vit D3 bc my stomach is not properly absorbing Vit D. Nothing helps pain & pain wakes me up. Plz help!! Thanks God Bless
Thanks slow dragon. Do you have any idea why ferritin drops all the time? Is it hypo Thyroidism plus my diet (very low in meat) combined with very bad heavy periods?
You probably need to assume it's Hashimoto's until proved otherwise
Definitely stick on strictly gluten free diet
Low ferritin likely due to combination of heavy periods (classic hypothyroid symptom), gut malabsorption due to mix of being hypo and possibly gluten intolerant and levels of Thyroid hormones still low
Eating liver once a week should help improve. You can hide it in dishes or make home made liver pate
And I will wait24 hrs between dosing and blood tests. I've found an excellent clinic that tests cheaply and the phlebotomist is a gem he doesn't hurt me at all.
Grey goose do you think that the inability to easily draw blood is a thyroid issue? I used to have this problem so I would be pricked 5-10 times hence the phobea to needles now. However now on the NDT the blood draws are fine. I am in Cyprus though so it may be the medical staff here are better.
I wanted to ask ....now on the other pack of NDT which was part of my original order two years ago (the ones that were good for me) I'm feeling intense hunger constantly. Hyper hunger . I ate 5 meals yesterday through out the day. The joint pain has gone now however there is still some stiffness there and my skin is supple it doesn't feel like a dry piece of dehydrated leather !!!
So, you're thinking you're over-medicated? I don't know what hyper hunger is. When I had Hashi's flares, I couldn't eat much at all.
I don't know if the inability to draw blood is a hypo symptom. Lots of hypos complain of it, but I really shouldn't be hypo anymore. Where I live, there's a community nurse that could get blood out of a stone! He said it has nothing to do with being hypo or dehydrated, it's all down to the skill of the person taking the blood. I don't know if he's right or wrong, I just know that he never has a problem with me, whilst other nurses, phlebotomists, etc. do. So, perhaps he is right.
I'm not on strictly gluten free slow dragon I know I should be and I'm trying, but I live in cyprus at the moment it's difficult to get stuff and I'm trying to be veg due to endometriosis . I feel overwhelmed
I am also living in Cyprus. It is not difficult tp be gluten free here. There are a lot of fruits, vegetables all year around, meat, fish...In AlfaMega supermarket there are different gluten free products.
Just you have to tell yourself that you don`t like bread and cakes any more
Processed gluten-free food isn't good, anyway. You need to cook your own food from scratch, and if you want cakes and bread, use gluten-free flour, or a substitute like coconut or almond flour. You can buy those on Amazon.
Can you tell me the supplement name. I get stomach pains with all the irons I’ve tried. The exception is flora...... which I like but not sure how effective is with ferritin of 35
heme iron you can order on iHerb also. I ordered it but I made test and my iron went up a lot. Now I need to be a little careful and try to reduce it a little.
I'd be interested to know how you do with it, could you update sometime please?
I haven't had a prolonged period of taking it like I did with liver. I've got a bit lazy with liver lately and have popped a few BB tablets. My latest iron panel with a combination of some liver and some BB tablets is good. I don't need any more serum iron but I would like to push ferritin up a bit more (77 at the moment so it's OK but I'd like it nearer 100) and it's probably liver not the BB tablets I really need.
Ive also started making organic chicken liver pate- the only way I can stomach the stuff. I’m not anaemic as such but my ferritin is stubbornly low. Hope the B.B. helps- will update
I'm also on it two-four per day as my ferritin low anyway plus my periods are coming with a very short space in between due to the dudd pills cycles gone awry
I always have low mcv for some reason ever since I had hypo thyroid symptoms (since early teens) also im taking 2000mg metformin for pcos and insulin resistance and I hear his causes low b12. I do feel that all of my hormonal problems (endometriosis pcos insulin resistance chronic fatigue) is down to having an untreated hypothyroid for 20 years.
Thank you sick Leo . I have had this iron problem for years and I've taken all types of iron supplements the worst being ferosanol duodenal 1000mg per day in pregnancy and 4 months before conception (13 months and no gains) and the best being this organic one made from food and it managed to raise my ferritin from 16 to 93 in 5 months. I will go back on the organic whole foods one. Woke up aching again I must get to the bottom of this issue as I was doing so well up until a few months back. A new pack of NDT and taking it non sublingually seems to have done something to me. Also blood tests show levels r falling
I've come to the conclusion it's the new pack of tablets that I started over one month ago Although Brain isn't working right I can't even remember if it's one or two months ago I started however this co incides with feeling bad
I have found an old opened pack of thiroyd in the cupboard which is from the original supplier not the new one that's causing problems. I have few months left on it before expiry . I will report back if I feel better on the tablets
I also have an underactive thyroid & nodules on my thyroid. If you are having pain, you need an ultrasound. My doctor's have always told me that the thyroid does not correct itself. Ask for an ultrasound & maybe look into functional medicine. A lack of certain vitamins can also affect the thyroid. I hope you are seeing an endocrinologist. Good Luck. I was in bed for a year because of my thyroid.
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