I posted a while back that I am considering using T3 as I don’t convert very well. I’ve seen my Gp who will consider referring me back to endocrinologist but said wait time is very long in my area and there is no guarantee he would prescribe T3 anyway. So I will go the self medication route. Latest results
TSH 0.79 (0.27-4.20)
Free thyroxine 19.7 (12.00 - 22.00)
Free T3 3.87 (3.10 - 6.80 )
Thyroglobulin antibody *135.00 (0.00. -115.00)
Thyroid peroxidase antibodies *433 (0.00 - 34.00)
I take 100/125 alternate days of levothyroxine and daily selenium, magnesium, zinc and went gluten free 3 wks ago, despite this I still feel as grotty and have the same symptoms as I did when diagnosed.
Please could somebody private message me with a a safe reliable source for buying T3 on line
Thank you all
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Shazamm
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Ferritin - minimum 70, preferably half way through range
Are you addressing the Hashi's by being strictly gluten free and supplementing with selenium l-selenomethionine 200mcg daily to help reduce the antibodies?
All these things need to be in place before adding T3. They are the building blocks for thyroid hormone to work.
Yes , I am on 200mcg selenium, B12 was over range in Oct, 256 .0 ( 25.10 - 165.00 ) dr told me to stop it. Vit D was 149.3 (50.00 - 200.00). Folate 24.8 (2.91 - 50.00) and ferritin was over at 179 (13.00 - 150.00) gp also told me to stop
You shouldn't stop, eventually your levels will plummet. You should lower your dose to a maintenance dose. I've never understood doctors' thinking over this!
When did you stop supplementing and when were those tests done? Are you strictly gluten free?
Tests were done at the beginning of Feb , I have only stopped B12 and iron tablets as per Gp instructions , he wants me to have blood test again in another 4 wks everything else I still take.
Only went gluten free 3 wks ago and have kept strictly to it so far.
"My level is between 40-50 ng/ml" and "My level is between 50-60 ng/ml"
Because those measurements are in ng/ml so you have to multiply by 2.5 to get nmol/L which gives
40ng/ml = 100nmol
50ng/ml = 125nmol/L
60ng/ml = 150nmol/L
Your GP is saying 50nmol/L is OK because it is outside the "Insufficient" category but it is not optimal. GPs only go by something being within range, they aren't taught nutrition so don't know about optimal levels.
Thank you, I doubt my GP would take any notice as the Vit D Council is a US based organisation and he got his value from Nice.... perhaps I should just increase my Vit D intake anyway. Taking 800iu so could increase to 1200iu see if I feel any better.
They just want you out of the "deficiency" bracket and their job is done. With your level of 66nmol/L, you should be looking at a minimum of 2000iu D3 daily, maybe even more to raise it to the recommended level, then once you achieve that you will need a maintenance dose. I keep my level around 150 nmol and to achieve that I need 4000iu five days a week in winter and 2000iu five days a week the rest of the year.
D3 aids absorption of calcium from food and K2-mk7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissue where it can be deposited and cause problems. Magnesium helps the body use D3.
Thanks again, I’ll increase my Vit D intake. I don’t think I’ve ever had my calcium level checked although I am taking Tamoxifen which, I think, affects your calcium. This is very confusing!
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
All thyroid tests should ideally be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all hypothyroidism in Uk is due to Hashimoto's
Thank you that’s really helpful, I’ve got Hashimoto’s I had high antibodies when first diagnosed, since then I have my TSH and T4 checked but nothing else. The last time GP only checked TSH. No one ever talked to me about thyroid disease I was just told about the antibodies over the phone and left a prescription! Although last winter when I was having difficulty getting up the stairs my GP checked my Vit D which was 22nmol/l so have been taking supplements ever since. This forum is going to be very helpful 😊
Hopefully your GP gave you loading dose to improve very low vitamin D.
Are you now only on 800iu daily?
Have you had level retested? With Hashimoto's standard 800iu maintenance dose is often inadequate
About 90% of all primary hypothyroidism in Uk is due to Hashimoto's
Essential to also test folate, ferritin and B12. Always get actual results and ranges. Post results when you have them, members can advise
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's gut connection is very poorly understood
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
I had some really high doses for a bit, this is all so much more complicated than I realised. I’m lactose intolerant, hope I’m not coeliac as well! I was pleased they reformulated the levothyroxine so it’s now lactose free. Before I took the vitamin D I was on 125mcg levothyroxine but now I’m taking 100mcg because my TSH was practically non existent. GP said it didn’t matter but I think he was wrong. So annoying when GPs just say anything to pacify you! Had Vit D checked a couple of weeks ago and it was 66nm/l which is apparently okay. Still taking 800iu daily though. I’ve never had folate, ferritin or B12 checked. I guess I’ll have to have it done privately.
Thanks for the links, I’ll have a look through them later.
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