Results help and starting NDT

[Jenna5]

Hi,

I’m currently on 150 levo, although about 2 weeks ago I was on 125 levo and was ‘underactive’, now I am overactive! I can’t win, I have now received my NDT to start and neee assistance with my results and starting NDT

Thyroid Peroxidase Auto-Abs - 0.2 (0.00-10.00)

Free T3 6.3 (4.20-6.70)

T4 17.5 (6.5-17.00)

TSH 0.18 (0.34-5.60)

Serum Iron 21.6(5.00-30.40)

Serum TIBC 59.6 (44-80)

Iron saturation 36% (14-51%)

Ferritin 36 (11-307)

B12 225 - (intermediate 145-180)

Vit D - 55.6 (insufficient 50-75)

Thanks

Jenna

[SlowDragon Administrator]

Your not over medicated. Both FT4 and FT3 are within range. Ignore TSH

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

[e-mail]

Professor Toft recent article saying, T3 may be necessary for many otherwise we need high FT4 and suppressed TSH in order to have high enough FT3

rcpe.ac.uk/sites/default/fi...

B12 is much too low as is vitamin D and ferritin.

You need folate tested too

You need to correct these low vitamins first

Detailed supplements advice from SeasideSusie

healthunlocked.com/thyroidu...

[Jenna5 in reply to SlowDragon]

I’ve got my Dr Best Vitamins and ready to start. Dr wants to speak to me re B12

[SeasideSusie Remembering]

If you were underactive 2 weeks ago you presumably had thyroid tests done. You increased your Levo and have retested again - after 2 weeks??? I don't understand why when we should wait 6 weeks after a dose change. And, as SlowDragon has said, you're not overactive.

Those test results you've posted show excellent conversion looking at your FT3. Why are you changing to NDT as the T3 contained in it will most likely push your FT3 even higher and may end up over range.

[Jenna5 in reply to SeasideSusie]

Hi,

I went to see my Endo two weeks ago and he said I was underactive, I’d been feeling like crap and want to go on to NDT so I was told to have my vits etc tested so thought I would get my thyroid tests done at the same time. My Endo changes my levo every 6-8 weeks and it’s been going on for 18months now and I’m just yo-yoing. I’ll happily stay on Levo but In a few weeks I know he will put my dose back down again cause he’ll say I’m ‘overactive’. I’m just getting really sick of it.

[SeasideSusie Remembering in reply to Jenna5]

I haven't read any more of your past posts, but do you have raised antibodies ie Hashimoto's?

It sounds as though your endo doesn't have a clue, most likely a diabetes specialist, most of them are.

[Jenna5 in reply to SeasideSusie]

He said I have Graves, cause I have the dreaded ‘bulging eyes. Yes he is a diabetes specialist, he recommended I got my thyroid removed, which I did in Nov 2016, and I wish I never did cause at least I felt better when I was on Carbimozle

[Daffers123]

But how do you FEEL ? I only need to adjust my Levo by a very small amount and I will feel hyper or hypo in a couple of days. DO you FEEL hyper - have any symptoms ?

[Jenna5]

I’m a little tired but better than usual, my skin is really dry, a lot drier than usual and, I feel fatter than ever before but that never seems to change since levo came into my life

[SlowDragon Administrator]

If you had Graves, even though you have had thyroidectomy, you may still find strictly gluten free diet helps. The autoimmune issue can still be on going

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

Endo should NOT keep changing dose depended on TSH

Suggest you see a new endo

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

[e-mail]

Plus list of recommended thyroid specialists

Professor Toft recent article saying, T3 may be necessary for many

rcpe.ac.uk/sites/default/fi...

[Jenna5 in reply to SlowDragon]

Hi,

Unfortunately, I live on the Isle of Man and there is only one Endo here :(. I will look over the links you have sent

Thanks

Jenna

[SlowDragon Administrator in reply to Jenna5]

But at least it’s possible to try gluten free diet anyway