Hi I am new and I apologise in advance for my first post being very long.
I am a 30 yr old female, diagnosed with hypothyroidism in 2013. The diagnosis came as a very big shock since no one else in my family had it at the time. I was immediately started on thyroid hormone replacement.
The years went by and I was consistently being tested for thyroid every 6-8 weeks because my levels have never ever been right and I was always symptomatic. With each blood test result came a new dose change, being moved up, down etc etc.
In August 2013 I was diagnosed with iron anaemia and my level for this has never been right either. I had an iron infusion arranged by haematology in May 2016 which boosted my ferritin to 187 (15 - 150) in July 2016 and over the past year my ferritin is once again becoming depleted and is currently 64 (15 - 150) as of December 2017. I take iron once a day, GP says this level is still very good. I am monitored every 3 months.
My haematologist in February 2017 also said I would benefit from B12 injections every 3 months since my B12 is below 500 and I have neurological symptoms. I had my first injection in September 2017 and have had my second one in January 2018.
I was diagnosed folate deficient in November 2016 with a level of 2.3 (2.5 - 19.5) and I take folic acid 5mg a day. I am yet to receive my folate result for December 2017.
I was diagnosed vitamin D deficient in 2013 with a level of 43.2 (25 - 50 deficiency supplementation is indicated) and given 800iu once a day. My level as of December 2017 is 62.3 (50 - 75 suboptimal advise on safe sun exposure and diet)
I feel crazy for writing all of this feeling the way I do but I have the capacity to write all this because I feel so badly let down by the GPs and endos I have had and the one good endo I saw has moved to London. I have told my partner I have considered seeing her there but he is very much against this, saying I shouldn't have to travel so far to see her.
My symptoms are having a considerable impact on my quality of life - I look pale, like I haven't slept, eyes watering the second I step outside most mornings, fingers and toes going cold, heavy periods, getting allergies and infections out of nowhere, flaky skin, bloating, puffy and dark eyes, weight gain though I am not obese, rib pain, back pain, losing my hair, constipation, tiredness, memory loss.
I am going to see my GP on Monday because I feel so let down and deserted by my current endo who only offers me phone appointments and has offered me an open clinic appointment I can book 10 months from now. When I have queries about my medication or symptoms or results he only calls me. And I think to myself what is the point of having an open appointment if he doesn't want to let me see him? Am I a bad person? Is this what I deserve?
So if anyone could offer me support, anything, to let me know I'm not alone I would appreciate it. I have been shunned by managers with my hypothyroidism, partner and family keeping out of anything health related...I just hate how this illness isolates me even though I don't show it at times.
Dec 2017 (175mcg levothyroxine - endo aware I take it correctly and is adamant he will not increase dose)
TSH 4.86 mIU/L (0.27 - 4.20)
FT4 14.8 pmol/L (12.0 - 22.0)
FT3 3.7 pmol/L (3.10 - 6.80)
Thyroid peroxidase antibody 708.3 IU/mL (<34)
Thyroglobulin antibody 375.5 IU/mL (<115)