In the past few months we have seen so many posts regarding people with dreadful test results that are being ignored:
● B12 well below bottom of range.
● Folate less than half bottom of range.
● Ferritin that is approaching zero.
● Vitamin D that is well below the severe deficiency level.
Along with FT4 near or below range, FT3 (if by some miracle it has been done) near or below bottom of range, TSH near or above top of range. And who knows what other out of range results would be identified if further testing were done?
Despite this list of very obvious reasons for someone feeling awful, they are not getting taken seriously. The context has often included reduction of thyroid hormone dose (or refusal to increase). And something like “too thin to be hypo” has often been thrown into the report.
Obviously, as a forum, we cannot take up individual cases with the involved doctors (whether GPs or endocrinologists).
Obviously, many of the individuals would find following formal complaint procedures overwhelming. (I certainly wouldn’t like to have to go down that route.)
What can we do to grab the attention of the medical system? What can we do to ensure doctors involved have their shortcomings addressed? (Yes – I realise that might sound like a weak demand. Demanding their scalps is unlikely to be successful. Demanding retraining seems more realistic.) What can we do to encourage other doctors who are aware, or become aware, to report their colleagues?
Strikes me that an anonymous reporting system might have some mileage. Perhaps doctors who aren’t too sure, but think there might be malpractice, should be able to put in their suspicions? Any doctor who receives more than a certain number of criticisms could then be investigated.
As I see it, the anonymity might make it much easier for doctors to shop their colleagues. If their suspicions are not backed up by other reports, they have not created an impossible situation for themselves such as even a quiet discussion with other colleagues could create. At the same time, the need for multiple reports would help prevent malicious reporting under cover of anonymity.
Not for us to design and implement these ideas, just a thought.
If you have any practical suggestions for action, please respond.