Thyroid results back in. Easier to post photos. The TSH is almost out of bottom of range & FT4 has increased, but JUST into range. I feel like shit. My thyroid has bend painful again, and GP was worrying I might be going back to hyper (where it started with thyroiditis in Feb). Concerned he’ll take me off thyroxine (he put me on as a trial 2.5 months ago - still at 50mcg).
Now also - it has been mentioned that I could have central / secondary hypothyroidism. But obvs GPS won’t look for this (think horses, not zebras). I’ve read up on it a bit but I don’t know enough.
The other thing is - with pituitary disorder, usually tumour involved. I recently had brain mri & none. BUT the did find an “arachnoid cyst” but it didn’t say it was on/near my thyroid & said it was on no clinical importance. I guess I’m just so confused & maybe grasping at straws.
I’m honestly considering saving up to see a private endo - but I’m not working!
GP is going to call this afternoon & then he’s going away. I just don’t want to be left feeling this shit. Am I going hyper? In which case should I stop thyroxine? Any suggestions really welcomed. Sat here in tears!
TSH result below. I’ll post FT4 as comment. X
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KayS68
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GP just called - I mentioned central hypothyroidism & FT4 optimal in upper 1/3 of range. As I’m still getting hypo symptoms, he’s increased thyroxine to 100mcgs. Checking up in a month. Hope this helps!
Oh forgot to mention - I spoke to him about those tests too - but I asked if I should wait as I did begin taking iron, b vits & folate & D3 - I’m going to get them tested after I next speak to him.
Ah ok. I’ve had a thyroid scan - multinodular & a couple were suspicious, but different scan they said they’re fine & didn’t need FNA. It wasn’t atrophied, it was a bit swollen
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Bloods should be retested 6-8 weeks after each dose increase
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
Your TSH was on the high side....ideally 1 or below
Your FT4 is not "slightly low" it is far too low at -6.00% through the ref range
Your FT3 is just within range that is not "normal" it is only29.73% through the ref range
Both Frees should be close to 75% through their respective reference ranges
Normal is what makes you feel well not a number in a ref range!
You are hypothyroid and need appropriate medication
Your doctor appears to be struggling to find answers......most of them are poorly educated in things thyroid that is why over 100,000 people have arrived here desperate for help.
If you are hypo you cannot become hyper...
You certainly need that increase from 50mcg though I 'm surprised he didn't add just 25mcg to begin with test again and add another 25mcg. This would give the body time to adjust to a smaller increase first. Suggest you add just 25mcg for the first 2 weeks .
You must not stop the thyroxine it is a replacement hormone which the body needs to function properly when you get the correct dose your symptoms will ease.
Feeling anxious and depressed is a symptom of undermedication
But, be patient, it doesn't happen overnight it will take time but take some solace in the fact you should now slowly start to improve
I, and many others here, have been where you are now....feeling dreadful, barely able to function and with medics who were clueless. With help from experienced members that is under control now
Don't waste your money on a private endo......the experts are here!
Post any concerns you have and members will offer help.
Thank you. I really appreciate all the insight you guys here are giving me. I can’t bear feeling so shit & not understanding it with this mess of a brain is getting to me too (my son who’s 22 thinks it’s funny that I can’t remember words for things - I’m finding it terrifying).
I think the “hyper” mix up might be mine because this initially started with me being in thyrotoxicosis with acute thyroiditis - then the endocrine surgeon said that may well happen again. So i was never “hyper”, just similar symptoms & bloods / if that’s the right way to explain it. Lol.
I tried calling GP back but he’s away now for 3 weeks - should I just split the pills for now?
I also really appreciate you saying not to waste my money on a private endo - £300 for the one who would be my nhs endo if I was referred and I hugely appreciate all the advice & support
I really feel that my other medical issues are used to mask this too - so them thinking how much of this is my peri menopause or my intractable depression. It’s only been 7 months but it’s really taken it’s toll on me. And I feel so bloody dramatic saying that.
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Thyroiditis of unknown origin
Gp has agreed to treat me.
Is it possible to be hyper with an FT3 of 4.3 (3.1 -6.8)? I need some help before I see my GP next week please....
Confused. Do I really need Levo?
TPO antibodies 
