Taking 100mcg levo diagnosed 2011.
TSH 5.7 mIU/L (0.2 - 4.2)
Free T4 13.8 pmol/L (12 - 22)
Free T3 3.3 pmol/L (3.1 - 6.8)
TPO antibody 473 IU/mL (<34)
TG antibody 255.3 IU/mL (<115)
So, how are you feeling?
Symptoms list -
Hair on face and body identified as polycystic ovaries
Cold hands and feet
Pins and needles
Weakness in arms and legs
Whooshing in ears and head
Loss of concentration
Some of your symptoms such as eyebrow loss, weight gain, fatigue, puffy eyes, cold hands and feet could be attributed to hypothyroidism as your TSH is too high so you need to increase your dose of levothyroxine and retest in 6 weeks. Repeat dose increase and restest in 6 weeks until you reach TSH of around 1 which is where most people feel well.
Pins and needles, weakness in arms and legs could be due to B12 deficiency.
Joint pain, depression can be due to vitamin D deficiency.
Have you had your vitamin levels tested?
FERRITIN 17 ng/L (15 - 150)
FOLATE 1.5 ng/L (2.5 - 19.5)
TOTAL 25 OH VITAMIN D 33.5 nmol/L
(<25 SEVERE DEFICIENCY
25 - 50 DEFICIENCY
50 - 75 SUBOPTIMAL
VITAMIN B12 202 pg/L (180 - 900)
Well, all are low. What have you been advised to do about them?
Taking 5mg folic acid and 800iu vitamin D
Both totally inadequate
800iu of vitamin D is unlikely to raise your levels sufficiently as your results are VITAMIN D 33.5 nmol/L your GP is unlikely to offer more than 800iu of vitamin D3 so you will probably have to buy your own additonal D3 vitamins. Ask your GP to check your level in 3 months time after increasing vitamin D3 supplements. It's important not to go over range as they are fat soluble and stored in your body so can increase to toxic levels. Around 100 or mid-range is fine for vitamin D
You need to take magnesium and K2-MK7 with vitamin D3 in order to absorb the vitamin D3 effectively. Magnesium citrate is ok but there are other choices for magnesium.
Your vitamin B12 levels are low. Taking folic acid may mask a B12 deficiency. You need to be investigated for B12 deficiency and possible pernicious anaemia. Have you got symptoms of B12 deficiency because if so, I advise you to post your B12 and folate results along with an outline of your thyroid condition and symptoms, low ferritin etc on the HealthUnlocked Pernicious Anaemia forum healthunlocked.com/pasoc and ask their advice about what your GP should be doing.
B12 symptoms of deficiency
B12 The Guidelines Doctors follow
You need ferritin to be at least 70 or mid-range for your own thyroid or levothyroxine to function properly. ASk your GP why your levels are not being maintained and ask for a maintenance dose or be referred back to the haematologist.
Iron deficiency anaemia NICE guidelines
You are very under medicated. TSH should be around one and FT4 towards top of range
All thyroid tests should be done as early as possible in morning and fasting and if taking Levo don't take it in the 24 hours prior to test, delay and take straight after. This gives highest TSH and most consistent results
Your vitamin levels are dire and not being correctly managed
800iu vitamin D is far too little, but your GP only allowed to prescribe this. With Hashimoto's you will probably find vitamin D mouth spray by Better you good as it avoids gut. Suggest you buy 3000iu strength. Try just 3000iu once day for couple of weeks, increase to two sprays after this and retest after 2-3 months
Vitamindtest.org.uk £28 postal kit.
Aiming for around 100nmol level. You will likely always need maintenance level supplement. Trial and error working out what you need. May vary summer to winter. Test twice yearly
B12 needs full testing for Pernicious Anaemia before starting supplementing
Ferritin needs further investigation for iron Anaemia and possible iron infusion
See SeasideSusie detailed vitamin advice here
Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease). About 90% of all hypothyroidism in Uk is due to Hashimoto's
With Hashimoto's, until it's under control, our gut can be badly affected. Low stomach acid can lead to poor absorption of vitamins. Low vitamin levels stop thyroid hormones working.
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Maybe post your own question rather than piggybacking on someone else's? Just a thought...
By piggybacking your question onto someone else's thread, it may not be seen and you're unlikely to get answers. Also it can get confusing or even mean the original poster's thread is taken off track and she won't get all the information she needs if members answer your question rather than hers. Much better to start your own thread, you can just copy and paste your post into a new thread and delete it from this one.
Thank you for that.
Have you discussed cleaning up your diet with anyone? You need to make sure you don't have problems with environmental pollutants, and unsafe foods to which you are reacting. Unsafe foods can mess up your gut, resulting in 'leaky gut' that promotes autoimmunity (such as your TPO and TGB antibodies). The top 5 unsafe foods are: gluten dairy soy corn eggs. But there are others.
currently diagnosed or taking medication thank you for any advice. *TSH 48.5 mIU/L (0.27 - 4.20 mIU/L) *FREE...
appreciated. Thank you. Debbie THYROID STIMULATING HORMONE 1.02 mIU/L 0.27 - 4.20 FREE THYROXINE
THYROID STIMULATING HORMONE 4.15 mIU/L (0.27 - 4.20) FREE THYROXINE 14.7 pmol/L (12.00 - 22.00) TOTAL THYROXINE(T4)...
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