Thyroid UK
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New to this - NEED a T3 Supplier

Hi everyone,

Quick bit about me...

Had Throat Cancer in 2012 for which I had Radio and Chemotherapy. Cancer spread into Lymph nodes. Good news is the treatments worked. Alas, anyone having this aggressive treatment does not get away unscathed. I now have many problems, including having Heart surgery two days ago. (Ablation for Atrial Flutter - awaiting Ablation for Atrial Fib) Anyway, the treatment also made my Thyroid FAIL. Currently on 125mg Levothyroxine. But still suffer from fatigue. Deep fatigue if i'm not working but reasonable OKish if I am working and up and about all day.

T4 blood levels at the high end and T3 is low. (All checked out by NHS Consultant yesterday - he's aware of the heart issues) He said go online and order LIOTHYONINE 20-25mg take 1/2 a table 3/day. (Reduce Levothyroxine accordingly - he wrote it all down for me)

Where can I get T3 from? - seems all sites are closed or dodgy... Tried to order from two sites today but no payment options...

I'm not desperate. YET - but will be soon. So many questions. Hopefully some people here may be able to help.

Here's hoping

Simon.

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Simon

order LIOTHYONINE 20-25mg take 1/2 a table 3/day

If your doctor said that, starting straight away with 30-37.5mcg daily then he doesn't know how to treat with T3.

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Many thanks SeasideSusie and Shaws,

The more I read the more confused I am getting.

I did write TABLE instead of tablet... I'm not going for a table full three times a day!

This all seems very clandestine, the links he gave me as sources, are now closed, stopped selling or appear very dodgy. Can't believe this is allowed to happen. Seems that bodybuilders have used it all... is that true?

I have so many questions... hopefully someone here will listen... no GP has and the Consultant may not know all the answers, as you say, his dosages may be in error... but he wrote it all out for me.

Anyway, if anyone has a source please PM me.

Thanks in advance.

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No, not bodybuilders - they have been know to have been supplied with dodgy stuff so stay away from bodybuilder sites.

The Greek T3 Unipharma is extremely difficult to get hold of now, a couple of reasons have been circulating, but apparently the Greek pharmacies now require sight of a prescription before the distribution centres will supply, and then only one or two packets. That's the latest I heard. I think "Tourism T3" has come to an end in Greece.

Turkish Tiromel is still available as is Mexican T3.

I'm actually quite amazed than an NHS consultant is supplying sources of non-prescription T3! By doing that, one assumes he is in favour of T3 and he thinks you need it, but he's not prepared to put his head above the parapet and do anything about it on the NHS for you!

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My Doc is Endo Consultant Dr. S. Z. who members here rate as the best Endo there is...

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I agree with SeasideSusie.

If a member has information regarding T3 - we don't post any information on the open forum with regard to sourcing prescription medications but members will send you a private message if they have a source.

T3 (liothyronine is the only Active Thyroid Hormone) is absorbed into our body in a couple of hours and goes directly into the T3 receptor cells, whereas levothyroxine takes about a week and has to convert to T3.

If you are already on levothyroxine and not feeling good you can add 1/4 of T3 along with your T4 - taking both with one full glass of water and waiting about an hour before eating.

Take your pulse/temp several times a day so you have a starting point before adding T3 . If either goes too fast reduce dose of T4.

Always be aware of how your body is reacting to your new method. Research has found that a combination of 3 to 1 (T4/T3) suits many. After two weeks you can increase T3 by another 1/4 etc. When you are symptom-free that's your optimum dose.

Many Endocrinologists don't know much about T3 and in the UK recently they've been told not to prescribe has it has become exorbitant.

Blood tests always have to be at the very earliest, fasting (you can drink water) and allow a gap of 24 hours between your dose and blood test and take afterwards. This helps keep the TSH at its highest as doctors are apt to reduce the dose according to the TSH. It drops throughout the day.

Also ask GP to test B12, Vit D, iron, ferritin and folate.

Always get a print-out of your results with the ranges and post for comments.

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Many thanks SeasideSusie and Shaws,

The more I read the more confused I am getting.

I did write TABLE instead of tablet... I'm not going for a table full three times a day!

This all seems very clandestine, the links he gave me as sources, are now closed, stopped selling or appear very dodgy. Can't believe this is allowed to happen. Seems that bodybuilders have used it all... is that true?

I have so many questions... hopefully someone here will listen... no GP has and the Consultant may not know all the answers, as you say, his dosages may be in error... but he wrote it all out for me.

Anyway, if anyone has a source please PM me.

Thanks in advance.

1 like
Reply

simonwellwr,

This is absolutely not acceptable. Bad enough telling you to buy online but to then give you bad information...

I can only grudgingly accept that he at least recognised the sense of liothyronine for you, but that is completely undermined by not providing it. Funny how some doctors are trying to stand up to pharmaceutical companies regarding eye injections for macular degeneration - yet endocrinology (as a whole) has appeared to do absolutely NOTHING.

If any endocrinologists read this, and wish to put another side, feel welcome. But from the patient perspective it looks to be an open and shut case.

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Helvella,

Is this forum open to message professionals?

I was told by someone that it’s not ethical to be active if you don’t have the condition. Obviously Dr Hoenderkamp and Dr Peatfield opinions would be gratefully received but an Endo without symptoms or our illness?

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EbonyEvans,

Most posts on this forum are open in the sense of being accessible without being a member, being indexed by search engines, etc. This is the choice of the original poster (or, occasionally, set later by administrators for some reason).

Therefore potentially anyone can see this post.

Private Messages can be sent by any member of HealthUnlocked. So any endocrinologist who wished to respond could do so by simply joining HU - they would not need to join this forum specifically.

And, should there be any endocrinologists who join up, well, we wouldn't know unless they post or respond and declare themselves - or say so in their profile (and we happen to look at it). Whilst we try to keep this pretty much restricted to people with thyroid issues, it isn't a cast iron rule - most obviously family (and friends) of sufferers quite often join and post.

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